Dr. Kirschner shares a bold vision for change rooted in education, partnership, and reimagining the role of healthcare itself. From training the next generation of clinicians to building a lifespan disability clinic which elevates the voices of people with lived experience, this episode explores what it takes to move from compliance to true inclusion. The University of Illinois Health Lifespan Disability Clinic, offers comprehensive, disability-inclusive primary care for both children and adults with a wide range of physical, intellectual, and developmental disabilities, including complex, multifaceted conditions. 

Listen to witness the power of reframing because disability is not a limitation, it is a lens for innovation, creativity, and a more humane, interconnected world. This is a conversation about dignity, design, and the future of care, and why getting it right matters for all of us.

Learn more about the UI Health Lifespan Disability Clinic https://hospital.uillinois.edu/primary-and-specialty-care/disability-inclusive-care

Explore their website to access their resources: https://adih.uic.edu/

Chapters

• (00:00:03) - Coming soon: Disability in the World
• (00:00:48) - Advocates in Action: Equity and Inclusion in Healthcare
• (00:07:11) - The role of health professionals with disabilities
• (00:16:18) - The Disability Inclusive Health Care
• (00:24:39) - Living with Disabilities in 2026
• (00:34:29) - Advocates in Action: Week 3

Through community-based participatory research, student-led clinics, culturally rooted care, and innovative programs like a medical Spanish curriculum and ancestral nutrition initiatives, this team  reveals what happens when research is done in partnership with communities, not on them.

We also explore the hard decisions behind ethical leadership, what it means to walk away from funding when trust is compromised, how to share power authentically, and why being an “outsider” requires humility, accountability, and invitation. In the face of policy shifts, fear-driven public health crises, and real-time community needs, you’ll hear a moving example of what responsive care looks like when systems fall short.

Listen to this conversation about hope found in students who carry the mission forward, in communities who open their doors, and in a model of care that refuses to leave anyone behind.

Explore their website to learn more about their work: https://www.unidasporsalud.com

Chapters

• (00:00:03) - Advocates in Action: When Equity and Inclusion in Health
• (00:01:35) - Community based participatory research in the Coachella Valley
• (00:12:32) - The BLAMOS Clinic in the Coachella Valley
• (00:15:00) - Mentees of the Medical Student Program
• (00:17:23) - The role of shared leadership in science
• (00:24:48) - Advocates in Action: The Coachella Valley Free Clinic

Learn more about Health Equity Strategies & Solutions

When the COVID-19 pandemic exposed deep cracks in our healthcare system, Dr. LaShyra “Lash” Nolen didn’t wait for someone else to fix them—she stepped up. As vaccine rollouts began, she saw firsthand how the needs of marginalized communities were being ignored. In response, she launched the We Got Us Project—a revolutionary health justice initiative designed to bridge the divide between medicine and the people it serves.

In this powerful episode, Dr. Nolen shares the origin story of We Got Us, a grassroots coalition committed to combating racism in our communities through increasing access to equitable healthcare, community-centered health education, and direct healing. Listen to hear how the power of audacity—passed down from her mother and grandmother has fueled every step of her journey. Tune in to hear how one woman’s determination is transforming communities, rebuilding trust, and changing the face of public health.

This season is brought to you as a collaboration between Patient Advocate Foundation and Massey Comprehensive Cancer Center at Virginia Commonwealth University, a project made possible in part by support from the Danaher Foundation.

Check Out the We Got Us Project.

In this powerful conversation, Simone reflects on her journey—how Chadwick’s resilience inspired her and how, through caregiving, she discovered her own strength. Her mission now? To empower others to take charge of their health and advocate for themselves with the same courage and determination she learned along the way.

This season is made possible through a collaboration between the Patient Advocate Foundation and Massey Comprehensive Cancer Center at Virginia Commonwealth University, with generous support from the Danaher Foundation.

Check Out the Chadwick Boseman Foundation for the Arts.

Redefining Care: Kathleen Noonan on Transforming Health Systems

In the U.S., our healthcare system often treats problems in isolation—healthcare, housing, education, and more are handled separately, leaving many with complex needs without coordinated care. But what if there was a way to break down these silos? Complex care aims to change that by improving health and well-being for people with multiple needs, reshaping how care is delivered at every level—from individual to community to system-wide.

Join Kathleen Noonan, JD, President & CEO of the Camden Coalition, as she reveals how the organization is pioneering a multidisciplinary, community-based approach to care. Hear about the power of community partnerships, how they’ve built a model that fosters trust and collaboration, and the essential ingredients for forming meaningful, lasting relationships that transform care.

This season is made possible through a collaboration between the Patient Advocate Foundation and Massey Comprehensive Cancer Center at Virginia Commonwealth University, with generous support from the Danaher Foundation.

 Check Out Camden Coalition's Mission

Learn more about the importance of complex care.

Explore Camden Coalition's Resources.

Health justice is more than just a concept—it's a powerful, community-led movement that’s all about building power and creating transformative change from the ground up. And at the heart of this movement is Clovia “Ms. Community Clo” Lawrence, a relentless advocate for her community in Richmond, Virginia.

In this inspiring conversation, Ms. Community Clo shares the incredible work she’s doing to foster multidisciplinary partnerships that have profoundly impacted lives in her community. Her blueprint for success is refreshingly simple yet deeply impactful: Serve with heart, leverage your strengths, and surround yourself with a dedicated team that shares your mission. By living her motto—“Every day I wake up, I make an impact”—she’s built a legacy of empowerment, compassion, and community-driven change.

Ms. Community Clo has created a ripple effect of transformation by organizing initiatives that address health inequities and bring vital resources directly to those who need them most. Whether it’s health education, advocacy, or community wellness, her work demonstrates how powerful it is when individuals come together to change the landscape of care and support.

In this episode, you’ll hear firsthand how Clovia’s commitment to service and her ability to build meaningful partnerships are helping to shape a brighter future for those around her. Her journey is a reminder that no matter the scale, every action can make a difference when driven by purpose and passion.

This season is brought to you as a collaboration between the Patient Advocate Foundation and Massey Comprehensive Cancer Center at Virginia Commonwealth University, with invaluable support from the Danaher Foundation.

Over the past few decades, healthcare has seen monumental advancements in technology, treatments, and systems. But have these breakthroughs reached the communities that need them most? In this powerful discussion, join Gwen Darien from the Patient Advocate Foundation, along with three transformative leaders who are on the frontlines of healthcare access and equity:

• Freddie White-Johnson, founder of the Fannie Lou Hamer Cancer Foundation

• Dr. Robert A. Winn, director of VCU Massey Comprehensive Cancer Center

• Dr. Reginald Tucker-Seeley, principal and owner of Health Equity Strategies and Solutions

Together, they dive deep into the critical issue of healthcare disparities—exploring the persistent barriers that keep vulnerable communities from accessing quality care. From structural inequalities to systemic challenges, the conversation sheds light on the stark contrasts in healthcare access across different regions. These experts not only examine the root causes of these disparities but also discuss innovative solutions and strategies that are making a real difference in their communities.

Their insights will challenge you to think about healthcare in a new way, focusing on the importance of equity and community-driven change. In their regions, these leaders are working tirelessly to break down the barriers to care, build trust, and provide meaningful support to those who have been historically underserved.

If you’re ready to hear about real-world solutions and the bold actions needed to create a more equitable healthcare system, this is a conversation you don’t want to miss. Their dedication and vision are reshaping the future of healthcare for the communities that need it the most.

This season is brought to you as a collaboration between the Patient Advocate Foundation and Massey Comprehensive Cancer Center at Virginia Commonwealth University, with crucial support from the Danaher Foundation.

A medical diagnosis can be life-altering, thrusting you into a whirlwind of information, treatment options, and a new reality you never expected. The path ahead can often feel overwhelming, isolating, and even defeating. But you don’t have to navigate it alone. Patient navigators are there to help guide you every step of the way—offering support, reducing stress, and ensuring you don’t get lost in the complexities of the healthcare system.

In this insightful conversation, L. Tiffani Collins, Senior Program Administrator of Cancer Support Care SDOH Navigation Services at VCU Massey Comprehensive Cancer Center, delves into the vital role patient navigators play in providing personalized support. From screenings and diagnoses to treatment and follow-ups, these professionals are there to help you break through barriers, ease your concerns, and connect with the right resources.

Tiffani shares how patient navigators work tirelessly to ensure that no patient falls through the cracks and that each person receives the care they need—both medically and emotionally. By working closely with patients, they help create a smoother, more accessible healthcare journey, empowering individuals to focus on healing, rather than the complexities of navigating a challenging system.

If you’ve ever felt lost or unsure about how to manage your healthcare, this conversation will shed light on a resource that can make all the difference.

This work is a part of Patient Advocate Foundation's Shared Decision-Making at Critical Points in a Long Illness Journey, a project made possible in part by support from the Danaher Foundation.

There’s a special kind of connection when you work to improve the health and well-being of the very community you call home. Darryl Jefferson embodies this deep-rooted commitment to change as he pours his passion into transforming the health landscape of Jackson, Mississippi. With his roles as the Director of the Heart Disease and Stroke Prevention Program for the Mississippi State Department of Health, founder of the Fannie Lou Hamer Cancer Foundation, and leader of his own business, Darryl brings unmatched knowledge, dedication, and a fierce commitment to health equity to everything he does.

In this inspiring conversation, Darryl opens up about his unwavering belief in the power of community-driven solutions. He shares how, rather than imposing top-down strategies, it’s essential to learn from communities and respect the wisdom of the people who live there. By centering the voices of those who are most affected, Darryl is helping to create sustainable, impactful change that truly meets the needs of his community.

Listen as Darryl discusses how bringing people together—listening to their insights and valuing their lived experiences—is key to building effective solutions for health disparities and fostering long-term equity in care.

This work is a part of Patient Advocate Foundation's Shared Decision-Making at Critical Points in a Long Illness Journey, a project made possible in part by support from the Danaher Foundation. 

When faced with a breast cancer diagnosis, each person must decide whether to take the journey privately or lean on the support of those around them. For Desiree Nuckols, who was diagnosed at just 28 years old, the choice was clear—she would face the fight with her family by her side. This decision wasn’t without its challenges, especially after the loss of her mother to breast cancer just a few years prior. But Desiree’s journey brought unexpected blessings—moments of deep gratitude, faith, and unity.

In this heartfelt episode, Desiree opens up about how this difficult chapter not only strengthened her bond with her family but also transformed her life. From giving her life to God to learning how to advocate for herself in the healthcare system, Desiree shares how she found empowerment in the face of fear. She also discusses the deep satisfaction of paying forward the kindness she received to other patients in need.

Despite the fear, there were moments of joy that reminded her of the strength of love and connection. Join us as Desiree reflects on how her cancer journey, though tough, became a path to self-discovery, gratitude, and healing for her and her family.

This work is a part of Patient Advocate Foundation's Shared Decision-Making at Critical Points in a Long Illness Journey, a project made possible in part by support from the Danaher Foundation. 

What if your doctor made you feel like you were their only patient? For Vanessa Spurlock, this was her reality—and it empowered her to take control of her own journey through breast cancer. With a deep sense of trust, respect, and care, Vanessa formed a unique partnership with her healthcare team at Virginia Commonwealth University's Massey Comprehensive Cancer Center that allowed her to make informed decisions and navigate her treatment with confidence.

Without any prior knowledge of cancer, Vanessa’s providers took the time to educate her, patiently explaining her treatment options, reassuring her during tough times, and even encouraging her to seek a second opinion if she wished. This personalized care gave Vanessa the clarity and peace of mind she needed as she faced the unknown. Throughout her journey, she journaled her thoughts, discovering a new sense of freedom and strength within herself.

Now, six years into survivorship, Vanessa is on a mission to help newly diagnosed patients find that same freedom. By empowering others to find their voice and advocate for themselves, she’s giving back the kind of support that made such a difference in her own journey.

In this powerful episode, listen to Vanessa share how the right care, paired with her own inner strength, helped her rewrite her story and become a beacon of hope and guidance for others.

This work is a part of Patient Advocate Foundation's Shared Decision-Making at Critical Points in a Long Illness Journey, a project made possible in part by support from the Danaher Foundation. 

What does shared decision-making really mean for those living with cancer and chronic diseases? To answer that, we embarked on a year-long journey—traveling to Ruleville, Mississippi, Richmond, Virginia, and Los Angeles, California—to co-create workshops that brought together patients, caregivers, and providers. Along the way, we listened, learned, and gained invaluable insights into how people navigate their health decisions.

This journey wasn’t just about gathering data—it was about building authentic connections with individuals who shared their stories, wisdom, and experiences. We explored the deep histories that shape their healthcare choices, and uncovered the profound ways they weigh and make decisions about their lives and health.

Join us as we relive these powerful moments, reflect on the lessons learned, and share the meaningful stories that highlight what really matters when it comes to shared decision-making. It’s a conversation that sheds light on the complexities of healthcare choices, the importance of trust, and the resilience of the human spirit.

This work is a part of Patient Advocate Foundation's Shared Decision-Making at Critical Points in a Long Illness Journey, a project made possible in part by support from the Danaher Foundation. 

To truly tackle health inequities, we must first understand the unique challenges faced by each community. When it comes to the Hispanic and Latino populations, it’s crucial to avoid generalizations—these groups are not monolithic. The key to accurately assessing health disparities is in understanding the diverse experiences within these communities.

In this insightful episode, Dr. Luisa Borrell, a leading social epidemiologist, shares the framework she uses to unravel the complexities of health among Hispanic and Latino populations. By examining key factors such as ethnicity, socioeconomic status, education, income, immigration status, and neighborhood environment, Dr. Borrell provides a comprehensive approach to understanding the health status of these diverse groups.

In a world of intersectionality, Dr. Borrell explains that we cannot truly grasp the full picture of a person's health if we ignore the independent factors that shape their experience. Listen in as Dr. Borrell explores how a holistic approach to health is essential for addressing disparities and crafting equitable solutions that reflect the realities of each community.

Resources for this Episode Include:

Racial Identity Among Hispanics: Implications for Health and Well-Being: https://ajph.aphapublications.org/doi/10.2105/AJPH.2004.058172?url_ver=Z39.88-2003&rfr_id=ori%3Arid%3Acrossref.org&rfr_dat=cr_pub++0pubmed

The Impact of Salmon Bias on the Hispanic Mortality Advantage: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2546603/

The First Birth Control Pill Used Puerto Rican Women as Guinea Pigs: https://www.history.com/news/birth-control-pill-history-puerto-rico-enovid 

The Mexican-American War: https://www.thecollector.com/mexican-american-war-territory/ 

This season is brought to you in collaboration with American Board of Internal Medicine (ABIM). This compliments the ABIM Foundation's Building Trust Initiative. We will highlight different stories and context that illustrate racial, ethnic, and gender health disparities. Our goal is to provide this historical context, show how it is connected to inequities that still happen, and share how changemakers are taking action to ensure that history doesn't continue to repeat itself. 

"There have been so many attempts to erase us, to destroy us, to take our lands. And we are still here, we're strong. We're one of the youngest and fastest growing populations in the country." — Erik Stegman, Executive Director of Native Americans in Philanthropy

Imagine being torn from your family, your home, your community. For centuries, this was the painful reality for many Native people, forced into boarding schools designed by the federal government to strip away their culture and way of life. Erik Stegman offers both a historical and personal perspective on the generational trauma that continues to shape the lives of Native communities.

In this compelling conversation, Erik reflects on the deep wounds left by these harms, and how he brings his identities into his work—advocating for tribal law, policy reform, and the empowerment of Native voices. Despite the weight of this painful history, Erik shares a powerful message of hope and resilience, speaking to the future of Indian Country and the growing strength of Native populations.

Listen as Erik challenges us to understand the legacy of these injustices, while reminding us of the unshakable resilience of Native peoples and their vital role in shaping a brighter future.

This season is brought to you in collaboration with American Board of Internal Medicine (ABIM). This compliments the ABIM Foundation's Building Trust Initiative. We will highlight different stories and context that illustrate racial, ethnic, and gender health disparities. Our goal is to provide this historical context, show how it is connected to inequities that still happen, and share how changemakers are taking action to ensure that history doesn't continue to repeat itself. 

In this enlightening conversation, Dr. Concors shares how safe, inclusive spaces are crucial in ensuring that healthcare providers honor each patient’s unique needs, rooted in their identities, bodies, and life circumstances. When healthcare is personalized and inclusive, it paves the way for everyone—regardless of gender identity—to be their healthiest selves.

Tune in to hear how Dr. Concors is transforming the medical landscape to ensure that all people are seen, heard, and treated with respect, and why that’s key to building a healthier, more inclusive world.

This season is brought to you in collaboration with American Board of Internal Medicine (ABIM). This compliments the ABIM Foundation's Building Trust Initiative. We will highlight different stories and context that illustrate racial, ethnic, and gender health disparities. Our goal is to provide this historical context, show how it is connected to inequities that still happen, and share how changemakers are taking action to ensure that history doesn't continue to repeat itself. 

Resources for this Episode Include: 

Emergency Residents' Association (EMRA)’s Diversity & Inclusion Committee Webinar - LGBTQ Health: 101 for the EM Provider: https://vimeo.com/783395419 

In this powerful seventh season, host Ashley D. Freeman sits down for an intimate, intergenerational conversation with Pamela Browner White to explore their origin stories—how they first encountered the healthcare system and how caregiving at a young age shaped their understanding of advocacy. Both women share how their early experiences with caring for their parents sparked a lifelong commitment to improving healthcare and navigating systems that often overlook or harm marginalized communities.

Their candid discussion dives deep into the historic mistreatment of Black people in healthcare—highlighting the painful legacies of Henrietta Lacks, whose cells were used without consent, and J. Marion Sims, whose unethical experiments on Black women helped to shape modern gynecology. Through these stories, Ashley and Pamela reflect on how these systemic harms have left lasting scars in the Black community.

But the conversation doesn’t stop at the past—it extends into the present, with both women sharing their personal encounters with healthcare. They remind us that improving the quality of healthcare for African Americans doesn’t just uplift one community; it lifts all of us.

Tune in for a powerful exchange of stories, wisdom, and a shared vision for a more equitable healthcare system for all.

This season is brought to you in collaboration with American Board of Internal Medicine (ABIM). This compliments the ABIM Foundation's Building Trust Initiative. We will highlight different stories and context that illustrate racial, ethnic, and gender health disparities. Our goal is to provide this historical context, show how it is connected to inequities that still happen, and share how changemakers are taking action to ensure that history doesn't continue to repeat itself. 

Resources for this Episode Include:

1. 1. ABIM Foundation's Building Trust Initiative: https://buildingtrust.org/author/lnetwork/ 
   2. ABIM Foundation's Health Equity Background Paper: https://abimfoundation.org/wp-content/uploads/2020/07/Foundation-2020-Forum-Background-Paper.pdf 
   3. The White Dress Project focusing on fibroid advocacy and empowerment: https://www.thewhitedressproject.org/ 
   4. Therapy For Black Men: https://therapyforblackmen.org/ 
   5. Therapy for Black Girls: https://therapyforblackgirls.com/ 

What drives someone to dedicate over 20 years to public health and social justice? For Reggie Tucker-Seeley, it’s a deep-rooted commitment to building solutions that will create lasting change in the communities and populations that need it most. In this enlightening conversation, Reggie takes us on a journey through his professional path, explaining how each step has brought him closer to his mission of empowering underserved communities and advancing health equity.

With a wealth of experience and insight, Reggie doesn’t just define critical concepts like health equity, health disparities, and social determinants of health—he also offers a powerful framework for how to actively create change in these areas. Listen as Reggie shares his approach to tackling these complex issues, offering a fresh perspective on how we can all contribute to transforming the systems that affect public health.

If you’re passionate about creating real-world impact and want to understand what it takes to drive change in health systems, this episode is one you won’t want to miss.

This season is brought to you in collaboration with ZERO- The End of Prostate Cancer (ZERO). This builds upon the Promoting Health Equity in Cancer Care: A Virtual Workshop hosted by The National Academies of Sciences, Engineering, and Medicine (NASEM) which was co-chaired by Gwen Darien of PAF and Reggie Tucker-Seeley of ZERO.

Every experience in life shapes our health—whether it’s the environment we live in, the communities we’re part of, or the relationships that support us. Our lived experiences outside the doctor’s office are just as crucial as what happens within those walls. Kellan Baker reminds us that patients are the experts of their own lives and deserve to be respected as true partners in their healthcare journey.

In this compelling conversation, Kellan shares that the ultimate goal of health equity is simple yet profound: to allow everyone to be fully themselves. This means creating a healthcare system where care is not just tailored to clinical needs, but also reflects and honors the diverse identities, bodies, and life circumstances of each individual.

Kellan challenges us to envision a world where equitable care is a reality for all—where access to benefits, resources, and protections enables people to live at their healthiest, no matter who they are. Tune in as he explores the transformative power of recognizing the full humanity of every patient, and how that recognition can lead to a more just and inclusive healthcare system for all.

 This season is brought to you in collaboration with ZERO- The End of Prostate Cancer (ZERO). This builds upon the Promoting Health Equity in Cancer Care: A Virtual Workshop hosted by The National Academies of Sciences, Engineering, and Medicine (NASEM) which was co-chaired by Gwen Darien of PAF and Reggie Tucker-Seeley of ZERO.

When it comes to conducting research, how do you foster a genuine, healthy relationship with the communities you’re working with? In marginalized communities, where a history of harm and mistreatment runs deep, trust becomes the foundation for everything. Katie Cueva emphasizes that researchers must not only be invited into these communities but also ensure their intentions are aligned with the best interests of those they aim to serve.

In this eye-opening conversation, Katie takes us through the historical context of racism and colonialism in Alaska, exploring how these legacies continue to shape healthcare delivery today. She reveals the profound ways these historical injustices influence community trust and how researchers can work toward healing and reconciliation in their efforts.

Listen in as Katie shares valuable insights on the delicate balance between research, community, and healthcare, and how we can reshape the future by centering the voices of those who have been most affected. 

This season is brought to you in collaboration with ZERO- The End of Prostate Cancer (ZERO). This builds upon the Promoting Health Equity in Cancer Care: A Virtual Workshop hosted by The National Academies of Sciences, Engineering, and Medicine (NASEM) which was co-chaired by Gwen Darien of PAF and Reggie Tucker-Seeley of ZERO.

The conditions in which we live—safe housing, access to transportation, freedom from violence, access to nutritious foods, and clean water—are far more than just conveniences; they are critical to our overall health outcomes. But what happens when these basic needs are out of reach? Dr. Zinzi Bailey dives deep into the concept of social determinants of health and how they shape the health journeys of individuals and communities.

In this eye-opening episode, Dr. Bailey explores how racism, classism, heterosexism, and ableism intertwine to influence the availability and quality of these essential living conditions. These social systems drive the unequal distribution of resources, creating a vicious cycle where certain communities are trapped in environments that negatively impact their health.

But Dr. Bailey doesn’t just highlight the problems—she challenges us to rethink the preconceived notions we’ve formed about these inequities. She urges us to see how these social injustices are linked to poorer health outcomes and asks us to imagine a world where all people have access to the resources they need to thrive.

Join Dr. Bailey as she unpacks the profound impact of social systems on health and calls us to action in creating a more equitable and just healthcare system for all.

This season is brought to you in collaboration with ZERO- The End of Prostate Cancer (ZERO). This builds upon the Promoting Health Equity in Cancer Care: A Virtual Workshop hosted by The National Academies of Sciences, Engineering, and Medicine (NASEM) which was co-chaired by Gwen Darien of PAF and Reggie Tucker-Seeley of ZERO. 

Every day, the way we navigate the world is shaped by our race, gender, sexual orientation, and age—but how do these identities affect the care we receive and the care we provide? In this compelling conversation, Hanane Abdalla, Arthur Pope, MD, PhD, and Sandra Sufian, PhD, MPH share their deeply personal stories about how their identities influence their lives, their work, and their ability to navigate equitable healthcare.

Listen as they discuss how identity intersects with healthcare, and how their personal and professional experiences continue to shape their advocacy for health equity. From the way healthcare is delivered to how we access resources, they explore the complex layers of structural inequities that need to be dismantled to create a fairer system for all.

This season is brought to you in collaboration with ZERO- The End of Prostate Cancer (ZERO). This builds upon the Promoting Health Equity in Cancer Care: A Virtual Workshop hosted by The National Academies of Sciences, Engineering, and Medicine (NASEM) which was co-chaired by Gwen Darien of PAF and Reggie Tucker-Seeley of ZERO. 

For too long, the health concerns of Black women have been dismissed, leading to devastating disparities and worse health outcomes. Adrienne Moore, a two-time cancer survivor, respiratory therapist, and patient advocate, opens up about her personal battle—one that reveals how identity and bias delayed her own cancer diagnosis.

In this powerful episode, Adrienne shares her harrowing story of survival, and how the frustration of being ignored and misunderstood ignited her passion for health equity. She’s now on a mission to amplify the voices of Black women whose concerns are often overlooked in the healthcare system.

Join Adrienne as she transforms her experience into activism, fighting to ensure that the health of Black women is no longer sidelined—and that their voices are heard and respected in every corner of healthcare.

This season is brought to you in collaboration with ZERO- The End of Prostate Cancer (ZERO). This builds upon the Promoting Health Equity in Cancer Care: A Virtual Workshop hosted by The National Academies of Sciences, Engineering, and Medicine (NASEM) which was co-chaired by Gwen Darien of PAF and Reggie Tucker-Seeley of ZERO. 

Through the lens of narrative medicine, Derek explores the powerful tools that help health care providers listen deeply, respond meaningfully, and create spaces where patients feel seen, heard, and empowered. Built on the pillars of attention, representation, and affiliation, narrative medicine offers a roadmap for giving and receiving stories that truly matter.

Tune in as Derek shares how his training transformed the way he connects with patients—and how storytelling can become a healing force in the clinical setting.

When we talk about health literacy, what are we really saying? In this episode, Lisa Stewart unpacks the deeper layers behind the words we use in healthcare—from everyday language to professional titles—and how they shape our understanding, interactions, and biases. She challenges us to see health literacy not as a one-sided issue, but as a shared responsibility between patients, providers, and systems.

Lisa also introduces more precise terms like structural and social determinants of health literacy, helping us reframe the conversation. Through vivid examples, she paints a picture of a healthcare environment where patients feel safe to ask questions, learn through hands-on experiences, and connect meaningfully with providers who have the time and resources to truly listen.

Tune in to explore how communication rooted in respect and compassion can transform health outcomes—and what it takes to get there.

Your primary care doctor isn’t just someone who treats symptoms—they can be your most consistent partner in health. In this insightful episode, Dr. Carl Earl Lambert Jr. shares why he chose family medicine: to build long-term, meaningful relationships with his patients rooted in trust, respect, and empathy.

Dr. Lambert introduces his “check in and check in often” approach and explains how curiosity, humility, and shared decision-making shape every patient interaction. By focusing on open, two-way communication—not just between doctor and patient, but across the entire care team—he creates a space where patients feel heard, empowered, and truly involved in their care journey.

Listen in as Dr. Lambert explores what it means to co-create care plans that align with patients’ goals, values, and lived experiences—and how centering humanity in health care leads to stronger relationships and better outcomes.

What if the most important part of health care isn’t found in a lab or a chart—but in the connection between people? In this heartfelt episode, Beverly Rogers—a vibrant 80-year-old breast cancer survivor, caregiver, patient advocate, and entrepreneur—shares how her lived experiences have shaped her belief in the power of human connection within the health care system.

Beverly opens up about the real conversations she’s had with her provider, offering tangible examples of how mutual respect, empathy, and active listening created a foundation for trust—and ultimately, better care. She also shines a light on the often-overlooked wisdom of older adults and breaks down some of the most common (and damaging) misconceptions about aging and health care.

Whether you’re a provider, caregiver, or patient yourself, Beverly’s insights remind us that effective communication isn’t just a skill—it’s a lifeline. Tune in to hear how we can all do better at building relationships that honor the full humanity of the people at the center of care.

What if the key to better health outcomes wasn’t just access—but understanding? In this compelling episode, Christine Wilson, Vice President of Advocacy Communications and Marketing at Patient Advocate Foundation, challenges us to rethink what health literacy really means—and why it’s essential for equity in care.

Christine dives into how true health literacy goes beyond reading brochures or understanding medical jargon. It’s about creating two-way communication between patients and providers—where listening, empathy, and trust are at the core. Through powerful examples, she reveals how this approach can improve outcomes, especially for patients navigating systemic barriers and bias.

From implicit and explicit discrimination to the daily struggles BIPOC patients face in navigating the health care system, Christine offers both insight and action. Tune in to learn how we can dismantle communication barriers and move toward a more inclusive, patient-centered model of care.

For many patients, accessing quality, affordable health care isn’t just a medical journey—it’s a financial one. Behind every tough decision lies a complex web of costs, coverage, and care. In this episode, we explore how financial navigation can be a game-changer in that journey.

With a career rooted in oncology and pharmacy administration, Zinkeng Asonganyi brings a deep, firsthand understanding of how financial and social needs intersect. He shares powerful insights on how collaboration between financial navigators and clinical care teams leads to more informed choices, stronger trust, and better health outcomes.

Tune in to hear how financial navigation is helping to close the gap between health systems and the patients they serve—making care more compassionate, transparent, and truly accessible.

What if health care decisions were guided not just by data or policy—but by the lived experiences of patients themselves? In this thought-provoking episode, our host, Ashley D. Freeman sits down with Susan Perez, a trailblazer in patient-centered research and health policy. With years of experience amplifying the voices of those receiving care, Susan shares how she's working to shift the health care system to truly reflect what patients need—financially, emotionally, and socially.

From candid conversations about the cost of care to building actionable solutions when patients face barriers, Susan highlights why it’s critical to engage patients as equal partners in shaping the future of health. She also discusses the importance of bringing together diverse stakeholder voices—from providers and payers to community organizations—to create more responsive, compassionate, and effective systems of care.

If you’re ready to rethink how we design health care from the ground up—with patients at the very center—this episode is for you.

At just a teenager, Jamie Stokley stepped into the role of caregiver for her mother, determined to ensure that her mom could live a full life, despite the health challenges they faced. As she navigated the complexities of the healthcare system, Jamie quickly realized the many gaps that made it harder for families to access the support they needed. This sparked her passion to not only help her own family but to educate and empower others in similar situations.

Now, as a leader in the healthcare space, Jamie oversees a team of home health aides providing in-home services to elderly and disabled individuals, ensuring they receive the quality care they deserve. Beyond this, she runs an advocacy organization that helps clients navigate financial and social needs, offering crucial support that extends beyond medical care.

Listen as Jamie shares how her personal caregiving story drives her work, and how she’s using her experiences to be a catalyst for change, bringing much-needed care and advocacy to communities in need. Her journey shows how one person’s story can spark real, lasting impact in healthcare.

Imagine making health decisions without the constant worry of financial strain or navigating the maze of healthcare access challenges. In this powerful episode, Rebecca Kirch, Executive Vice President of Policy and Programs at the National Patient Advocate Foundation, explains how social and financial needs navigation services are critical to making this a reality for all patients.

Rebecca dives into how expanding needs navigation programs helps patients overcome the complex barriers of access and affordability, guiding them toward safety net solutions that ensure they can receive care without fear of financial ruin. She emphasizes that every person should have the right to make healthcare decisions based on their own needs and circumstances, not their bank balance.

As Rebecca shares, the National Patient Advocate Foundation and its partners are mobilizing efforts to integrate these services into mainstream medicine, pushing for health equity policies that benefit all patients—regardless of their income or background. The result? A win-win strategy that improves access to affordable, high-quality care for everyone, in every setting.

Imagine facing a $175,000 medical bill during a global pandemic. For Joe Sweeny, this was his reality. But with the help of Brooke Flores, a dedicated advocate at the Patient Advocate Foundation, Joe was able to navigate and overcome this overwhelming financial burden.

In this inspiring episode, Brooke, who has spent three years helping patients with appeals and denials, shares the inside story of how she worked with Joe to reduce his massive medical debt. Together, they recount the emotional and practical challenges of fighting for fair care in a healthcare system that can often feel impersonal and difficult to navigate.

Through their conversation, they highlight how the Patient Advocate Foundation serves as a beacon of hope, providing patients with the tools, support, and guidance they need to tackle financial barriers and health obstacles. Brooke and Joe’s journey shows that, even in the toughest of times, there’s a path forward with the right advocacy.

James Johnson, a dedicated hospice social worker from Multicare Home Health and Hospice in Tacoma, Washington, shares what it truly means to walk alongside individuals during their final days. Through his role, he empowers patients to communicate their values and preferences, ensuring their voices guide every aspect of care. Acting as a connector between patients, caregivers, and medical providers, he works to build trust and alignment so that quality of life remains front and center.

Listen as he shares powerful stories from the field—moments of courage, vulnerability, and connection—and discover how end-of-life care, when done with intention, can offer peace, and dignity.

In this episode, you’ll hear how Jackie approaches each case with empathy, patience, and an eye for the bigger picture. A patient may call about a single issue, but through careful, compassionate listening, she often uncovers deeper needs—financial stress, gaps in care, or overlooked resources. With creativity and commitment, Jackie and her fellow case managers connect patients to solutions that improve not only their care, but their quality of life.

Tune in to discover how advocacy becomes transformation, and how one conversation can truly change everything for a patient in need.

For a quarter of a century, PAF has stood beside patients during some of the most difficult moments of their lives. A serious diagnosis often brings more than just medical uncertainty — it can upend jobs, strain relationships, and bring crushing financial burdens. Suddenly, people are faced with confusing insurance plans, massive medical bills, and heartbreaking choices like whether to pay for prescriptions or put food on the table.

In this episode, Dr. Balch shines a light on the extraordinary work of PAF’s case managers — compassionate, knowledgeable professionals who help patients and caregivers navigate an often fragmented and intimidating health care system. These advocates don’t just solve problems; they empower individuals to speak up for themselves, understand their rights, and make informed decisions about their care.

Through personalized support, PAF has helped millions of people access the treatments they need, reduce their out-of-pocket costs, and regain a sense of control in the midst of chaos. Join us as we celebrate 25 years of impact, honor the everyday heroes behind the scenes, and look ahead to a future where no one has to face serious illness alone.

That early exposure didn’t just inspire Mica — it empowered her. Fueled by a desire to bring joy, movement, and mental stimulation to older adults, she launched Moxie Movez, a vibrant wellness initiative that combines brain games and physical activity to help seniors keep their mojo, stay sharp, and feel energized. Whether it’s a chair dance routine or a lively memory game, Moxie Movez is all about celebrating vitality at every age.

But Mica’s journey took on deeper personal meaning when both of her beloved grandmothers, Daisy and Florence, were diagnosed with Alzheimer’s. Suddenly, the knowledge she had cultivated professionally became a lifeline in her own caregiving experience. With patience and grace, she navigated the heartbreak of watching her grandmother Daisy forget who she was — choosing compassion over sorrow, presence over frustration. And with Florence, she found light even in the darkest days, creating joyful dance videos together and turning ordinary moments into magical ones — “like making every day feel like a birthday,” as Mica says.

Today, Mica shares her story not just to inspire, but to equip others. Through her work and voice, she offers practical tools, emotional insight, and heartfelt encouragement to caregivers walking the same path — helping families feel less alone and more empowered as they support loved ones living with dementia.

Mica’s story is one of resilience, joy, and purpose — a reminder that with creativity, patience, and love, we can meet even the toughest moments with grace and a little bit of moxie.

Emily shares how that experience lit a fire in her that has guided her ever since. For the past eight years, she’s brought that dedication to her work in professional caregiving roles across the continuum of care — from the Program for the All-Inclusive Care for the Elderly (PACE) to the Williamsburg Convalescent Center and now at Patient Advocate Foundation.

Throughout her journey, caregiving hasn’t just been a job — it’s been a calling. Emily opens up about the mindset she’s developed, the lessons she’s learned, and how she shows up every day with empathy, patience, and purpose. Whether you're in healthcare, caregiving, or simply passionate about equity and compassion in medicine, Emily’s story is one you won’t want to miss.

She reflects on the emotional complexities of caregiving — the quiet sacrifices, the moments of joy, and the times when setting boundaries becomes a radical act of self-care. Crispín offers honest insights about how caregivers must also tend to their own needs, and how learning to say “no” or ask for help can be just as compassionate as showing up every day.

In one of the most powerful parts of her story, she shares how she and her husband leaned on each other — emotionally and physically — to survive a life-threatening battle with COVID-19. Their shared experience is a testament to the strength of partnership and the healing power of mutual care.

Whether you're a caregiver, know someone who is, or simply want a deeper understanding of what it means to support a loved one through difficult times, this conversation offers wisdom, warmth, and inspiration.

Denise dives into the essential role that community health workers (CHWs) play — not just as caregivers or educators, but as trusted allies who walk alongside individuals and families through their health journeys. Whether it’s helping someone manage a chronic condition, navigate a complex health system, or access vital services, CHWs meet people where they are, both literally and emotionally.

At the core of their work is trust — built over time, through relationships rooted in empathy, cultural humility, and a deep understanding of the communities they serve. Denise explains how this trust allows CHWs to break down barriers, amplify voices, and ensure people are not just treated, but truly cared for.

This episode is a compelling look at how the most effective care doesn’t always happen in exam rooms or hospitals — but in homes, neighborhoods, and conversations, guided by people who lead with heart and a fierce commitment to equity.

We’re joined by Bea Rector, a leader at the Washington State Department of Social and Health Services, who shares how her team is helping people recognize their caregiving roles — often long before they even realize they’ve taken on that title. Bea talks about her state’s innovative programs that support unpaid caregivers with real, tangible services like transportation, help with housework, respite care, and even acupuncture.

But it doesn’t stop at providing support — Bea also explains how they’re measuring the impact of these services, not just in human terms, but in economic value as well. By tracking outcomes and focusing on holistic care, her team is proving that investing in caregivers benefits everyone.

What makes Bea’s work even more powerful is how personal it is. As a caregiver herself — for both her parents and in-laws — she brings lived experience and deep empathy to everything she does, ensuring that Washington’s programs don’t just check boxes, but truly meet people where they are.

This episode is a powerful look at caregiving as both a personal journey and a public priority — and how recognizing the role is the first step in supporting it.

Connect with Washington State's Department of Social and Health Services on social media!

Twitter: @waDSHS
Facebook: Washington State DSHS

This transformative experience inspired Janice to found Caregiver’s Respite in 2010, a nonprofit dedicated to supporting family caregivers through education, encouragement, and community events. Through her organization, Janice offers caregivers not only practical tools but also a network of understanding and hope.

Central to Janice’s story is her unwavering faith, which has been a beacon during her toughest moments. She shares how faith, combined with compassion and community, can help caregivers carry their burdens while also uncovering the unexpected blessings that caregiving brings.

In this episode, Janice invites listeners into her journey — one of challenge, growth, and mission — as she works tirelessly to strengthen others, ensuring no caregiver has to walk their path alone.

Learn more about Janice's organization Caregiver's Respite: https://janice-williams.com/ 

Visit our National Financial Resource Directory today to find ways to decrease the financial burden of medical treatment. You can filter our directory by your age, state, medical diagnosis and type of assistance needed. https://www.patientadvocate.org/explore-our-resources/national-financial-resource-directory/ 

Navigating this intense period required every ounce of her professional caregiving skills, combined with the deep well of personal experience she’s built over decades. As she balanced the demanding responsibilities of caring for her parents, raising her own children, and prioritizing her own physical and emotional health, Shonta confronted the complex realities of caregiving head-on.

In this deeply moving conversation, Shonta shares the emotional toll, the physical challenges, and the moments of quiet strength that define caregiving — especially during a global pandemic. She reflects on how this journey has been more than a duty or a role; it’s been a profound calling that has reshaped her understanding of love, sacrifice, and what it truly means to care for those who depend on us.

Shonta’s story is a testament to the resilience of caregivers everywhere — a source of hope and encouragement for anyone walking this difficult but rewarding path.

Do you need a case manager to help you navigate challenges while you seek the care you deserve? Contact our Case Management Services: https://www.patientadvocate.org/connect-with-services/case-management-services-and-medcarelines/ 

Visit our National Financial Resource Directory today to find ways to decrease the financial burden of medical treatment. You can filter our directory by your age, state, medical diagnosis and type of assistance needed. https://www.patientadvocate.org/explore-our-resources/national-financial-resource-directory/ 

In this episode, Naimi opens up about how honored she feels to support women during some of the most vulnerable and intimidating moments of their healthcare journey. She doesn’t just translate words—she translates comfort, confidence, and empowerment, ensuring every patient feels understood and cared for.

Beyond her current role, Naimi shares her ambitious vision for the future: to use her skills and passion to improve healthcare access and education in rural communities, where language barriers and limited resources often stand in the way of quality care.

Tune in to hear Naimi’s inspiring story of compassion, courage, and the powerful impact one young woman is making — proving that age is no barrier to creating change and lifting up others.

Are you in a rural area and need help accessing care? Visit our National Financial Resource Directory

In this episode, Suleima Salgado, the Director of Telemedicine for the Georgia Department of Public Health, invites us into the innovative world of virtual care delivery. She shares how her team has successfully connected patients and providers across all 159 counties in Georgia, overcoming geographic, economic, and logistical barriers that once stood in the way of quality healthcare.

Suleima reveals some of the best practices and collaborative strategies her department uses to maintain seamless communication and care coordination. This episode highlights the remarkable power of a united state workforce, demonstrating how multiple entities working together can break down barriers and ensure patients receive the timely, compassionate care they deserve.

Join us to explore how Georgia’s telemedicine pioneers are setting a powerful example for states everywhere—showcasing the potential for technology and collaboration to transform healthcare and create a more equitable future for all.

Watch a Video about Georgia's Telemedicine Network

Read More Georgia's Office of Telehealth & Telemedicine

Learn About Telemedicine in Your State: National Consortium of Telehealth Resource Centers

What sets Ed apart is his unwavering focus on capturing not just images, but stories of joy, strength, and resilience. Through his lens, he reveals the dignity and courage of the people he photographs, transforming his work into a powerful testament to social justice and a catalyst for meaningful change.

In this episode, Ed shares the inspiring experiences and deep connections that have shaped his vision as a photojournalist. Listen as he reflects on how photography can shine a light on marginalized communities, amplify unheard voices, and become a force for empathy, awareness, and action.

Explore Ed's portfolio.

Are you in a rural area and need help accessing care? Visit our National Financial Resource Directory

In this episode, Kate shares how her team captures the realities of patient experiences and identifies the critical gaps that prevent equitable healthcare access. These insights not only illuminate the systemic challenges within our healthcare system but also guide efforts to improve policies, support services, and patient outcomes.

Tune in to hear how data, when combined with compassion and expertise, becomes a powerful force for change. Kate’s work highlights the vital role of research in transforming healthcare—helping to ensure that every patient receives the care and support they deserve, no matter the hurdles they face.

Visit our website to explore show notes, additional episodes and our mission.

Are you in a rural area and need help accessing care? Visit our National Financial Resource Directory

Greta Goto and Mary Middleton first met while navigating these very struggles for their own children with special needs. Their shared experiences sparked a powerful partnership dedicated to supporting other families facing similar obstacles. Together, they work tirelessly to empower families by helping them locate and access quality care, while advocating for policies designed to address the unique and complex challenges of healthcare delivery in remote communities.

In this inspiring episode, hear how Greta and Mary’s collaboration is transforming lives — offering hope, guidance, and a collective voice for families who often feel isolated. Join us to learn about the real barriers rural families face and the innovative solutions being created to bridge the gaps and ensure no child is left without the care they need.

Explore information about the Alaska Highway system. 

Learn more about Stone Soup Group and the ways they support families in Alaska.

If you are located outside of Alaska and are looking for family to family support, please visit Family Voices and Parent Center Hub.

Visit our website to explore show notes, additional episodes and our mission.

Do you need help with transportation to your doctor's visit? Visit our National Financial Resource Directory

Beth volunteers for Global Healthy Living Foundation. Learn about their support program for patients.