The Project Sleep Podcast

Two Year Misdiagnosis: Brooke Buckley's Narcolepsy Story - Rising Voices Ep 33

Project Sleep — Sun, 08 Mar 2026 22:14:00 +0000

Brooke Buckley is a graduate from Duquesne University where she majored in biochemistry. She was diagnosed with narcolepsy about at 22 years old. As a speaker with Project Sleep’s Rising Voices program, she shares her story in hopes of helping others by bringing awareness to this often misunderstood condition.

Please note: this audio was originally recorded in 2020. For up-to-date facts about narcolepsy treatment options, visit https://project-sleep.com/facts-about-narcolepsy/

Visited by Demons: Katy Roden's Narcolepsy Story - Rising Voices Ep 32

Project Sleep — Sun, 01 Mar 2026 23:46:00 +0000

Katy Roden is a small business owner from New Braunfels, TX who loves sports and outdoor adventures. She was diagnosed with narcolepsy type 1 with cataplexy at the age of 18. As a speaker with Project Sleep’s Rising Voices program, Katy shares her story to improve the public’s understanding of this neurological condition. She hopes everyone will come away from her presentation with a better understanding of this silent and often misunderstood disorder.

Please note: this audio was originally recorded in 2020. For up-to-date facts about narcolepsy treatment options, visit https://project-sleep.com/facts-about-narcolepsy/

Diagnosed at 11: Leah Boyle's Narcolepsy Story - Rising Voices Ep 31

Project Sleep — Sun, 22 Feb 2026 23:36:00 +0000

Leah Boyle works in social media and has worked in a variety of industries from television to health. She lives in London and enjoys travelling and hiking among other activities. She has lived with narcolepsy since she was 7 years old. She was diagnosed at 11 and is now a trained speaker for Project Sleep’s Rising Voices. Neurological conditions are often invisible or misunderstood, so Leah aims to raise awareness of this condition by sharing her story.

Please note: this audio was originally recorded in 2020. For up-to-date facts about narcolepsy treatment options, visit https://project-sleep.com/facts-about-narcolepsy/

Blogger from Portugal: Iris Vasconcelos's Narcolepsy Story - Rising voices Ep 30

Project Sleep — Mon, 16 Feb 2026 01:06:00 +0000

Iris Vasconcelos is an avid advocate for invisible illnesses, freelance writer, and blogger from Portugal. She was diagnosed with narcolepsy at 28 years old after experiencing symptoms for 13 years. As a speaker with Project Sleep’s Rising Voices Program, she is telling her story with the hope of empowering others to do the same.

Please note: this audio was originally recorded in 2020. For up-to-date facts about narcolepsy treatment options, visit https://project-sleep.com/facts-about-narcolepsy/

Nursing Graduate: Connor Baker's Narcolepsy Story - Rising Voices EP 29

Project Sleep — Mon, 09 Feb 2026 01:46:00 +0000

Connor Baker is a recent nursing graduate from Aurora University in Illinois. He was diagnosed with narcolepsy with cataplexy at 20 years old. Now, as a trained speaker with Project Sleep’s Rising Voices program, he wants to share his story to help spread awareness and end stigma surrounding narcolepsy.

Please note: this audio was originally recorded in 2020. For up-to-date facts about narcolepsy treatment options, visit https://project-sleep.com/facts-about-narcolepsy/

Olympic Dreams: Amanda Myers’s Narcolepsy Story - Rising Voices Ep.28

Project Sleep — Sun, 01 Feb 2026 23:20:00 +0000

Amanda Myers is a college student who splits her time between studying biology and competing in olympic weightlifting. At the age of 20, she was diagnosed with narcolepsy, and now serves as a speaker for the Rising Voices program. In her presentation, she’ll detail the symptoms most people don’t attribute to the condition and offer some perspective on de-stigmatizing invisible illness.

Please note: this audio was originally recorded in 2020. For up-to-date facts about narcolepsy treatment options, visit https://project-sleep.com/facts-about-narcolepsy/

Project Sleep's Sleep Helpline: https://project-sleep.com/helpline/

Crown and Sash: Kristen's Narcolepsy Story - Rising Voices Ep.27

Project Sleep — Mon, 26 Jan 2026 01:28:00 +0000

Kristen is a marketing professional and pageant titleholder from Florida. She was diagnosed with narcolepsy at the age of 35 after 25+ years of misdiagnosis. As a speaker with Rising Voices, Kristen shares her story with others to build awareness and to help others find a quicker path to diagnosis.

Please note: this audio was originally recorded in 2020. For up-to-date facts about narcolepsy treatment options, visit https://project-sleep.com/facts-about-narcolepsy/

Project Sleep's Sleep Helpline: https://project-sleep.com/helpline/

Abducted by Aliens: Alexa Cuevas's Narcolepsy Story - Rising Voices Ep. 26

Project Sleep — Tue, 20 Jan 2026 19:53:16 +0000

Alexa Cuevas is a pharmacist in Mexico. In this episode, Alexa recounts the hypnagogic and hypnopompic hallucinations she has experienced. She was diagnosed with narcolepsy type 1 in 2019, and graduated from Project Sleep’s Rising Voices Program in 2020. Alexa uses her voice and social media platform to raise awareness of this often misunderstood condition and share empathy with others.

Please note: this audio was originally recorded in 2020. For up-to-date facts about narcolepsy treatment options, visit https://project-sleep.com/facts-about-narcolepsy/

Project Sleep's Sleep Helpline: https://project-sleep.com/helpline/

Scared of the Dark: Kayla Douglas’s Story with Narcolepsy - Rising Voices Ep. 25

Project Sleep — Mon, 12 Jan 2026 11:05:00 +0000

Kayla is a Life Coach from Indiana who loves learning. She has lived with narcolepsy her whole life, and now, as a Rising Voices speaker, is sharing her story to raise awareness and understanding of the condition.

The Rising Voices Series features a variety of first-hand stories from people living with sleep disorders around the world. At Project Sleep, we believe in the power of storytelling to raise awareness and break down stigma. This is why we train people with sleep disorders on how to share their experiences through the Rising Voices program. To request a Rising Voices speaker or apply for an upcoming training, visit: https://project-sleep.com/rising-voices/
Please note: this audio was originally recorded in 2020. For up-to-date facts about narcolepsy treatment options, visit https://project-sleep.com/facts-about-narcolepsy/

Project Sleep's Sleep Helpline: https://project-sleep.com/helpline/

New Medications For Sleep Apnea - Sleep Apnea Squad Ep. 6

Project Sleep — Sun, 03 Aug 2025 21:07:00 +0000

Could a pill help treat your sleep apnea? In this important discussion, we explored all medications for sleep apnea, including new prescription medication options being developed, when these might be available, and how different types of medications are used to help you feel informed for your next doctor’s appointment.

About Our Guest:

Dr. Klar Yaggi

Dr. Klar Yaggi is a professor of medicine and the Vice Chief for Research in the Yale Section of Pulmonary, Critical Care, and Sleep Medicine. He also serves as the Director of the Yale Centers for Sleep Medicine.

His research employs translational methods applied to sleep science, circadian biology, and respiratory neurobiology to investigate the mechanistic pathways between sleep deficiency (sleep deprivation, noncircadian wakefulness/sleep, and impaired sleep quality/architecture due to insomnia/sleep-disordered breathing) and cardio-metabolic disease, substance use disorders, cognitive impairment, and mental illness.

His research approach integrates physiology, clinical medicine, and novel biostatistical methods in epidemiologic designs, including large, multicenter observational cohort studies of adult populations and mechanistic randomized controlled trials.

His work has 1) informed the prognostic implications of the phenotypic expression of sleep disorders through polysomnographic physiologic traits and biomarkers and 2) examined the impact of interventions targeting sleep deficiency that may help to improve markers of disease and health outcomes.

His lab, the Yale Translational Sleep, Circadian, and Respiratory Neurobiology Research Center on Yale’s West Campus, provides infrastructure for supporting multi-disciplinary translational sleep research.

He is committed to mentoring and training the next generation of scientists, which he considers the most rewarding aspect of his professional work, and he has successfully mentored postdoctoral fellows and junior faculty to independence.

The New Medications For Sleep Apnea Toolkit is coming soon!

Project Sleep's Sleep Helpline: https://project-sleep.com/helpline/

Project Sleep’s Sleep Apnea Squad series invites listeners to dive deeper into specific topics relevant to living with Sleep Apnea. https://project-sleep.com/sleep-apnea-squad/

Fighting Sleep Apnea Shame & Stigma - Sleep Apnea Squad Ep. 5

Project Sleep — Mon, 28 Jul 2025 04:18:47 +0000

From being judged as “lazy” to worrying about a partner’s reaction to a CPAP machine, we’re breaking down the shame & stigma of sleep apnea––together.

In this powerful discussion, we address the issues no one is talking about. Young people can feel confused or even embarrassed by this diagnosis, often associating it with older adults.

We dive into the emotional side of living with sleep apnea and how we can help change the narrative.

This conversation is part of Sleep Apnea: Let’s Face It!, a campaign launched by Project Sleep to shatter stereotypes and showcase real faces of people living with sleep apnea.

To learn more and to participate in the campaign, visit https://project-sleep.com/sleep-apnea-lets-face-it/.

About our Guests:

Jason Webb

Jason Webb lives in North Queensland with his girlfriend and comes from a family of four, including a younger brother. He enjoys gardening, fishing, and traveling. Diagnosed with moderate obstructive sleep apnea at 28 after experiencing symptoms for about a year, he faced numerous challenges in understanding and managing his condition. With no specialist in his rural town, he struggled to navigate his diagnosis alone. He has undergone nasal surgery to correct a deviated septum, battled depression, and now happily wears a CPAP every night. Having faced these obstacles firsthand, he is passionate about helping others on their sleep apnea journey, so they don’t have to go through the same struggles alone.

Edgar Castro Tello

Edgar Castro Tello is Venezuelan born and raised, but now calls Tampa, Florida his more humid, tropical home, where he lives with his partner, Frankie. He’s an environmental scientist with a passion for programs and policy in the field of refuse and waste reduction. His career started in environmental consulting with migratory birds and informal education in zoos, quickly falling in love with public service and policy change. He was diagnosed with severe obstructive sleep apnea in 2016 at the age of 25; a diagnosis that was too late in the making. Edgar hopes his story will shed some light on the prevalence of sleeping disorders in the gay bear community and early signs from teenage years.

The Fighting Sleep Apnea Shame & Stigma Toolkit is coming soon!

Project Sleep's Sleep Helpline: https://project-sleep.com/helpline/

Project Sleep’s Sleep Apnea Squad series invites listeners to dive deeper into specific topics relevant to living with Sleep Apnea. https://project-sleep.com/sleep-apnea-squad/

Making CPAP Comfortable - Sleep Apnea Squad Ep.4

Project Sleep — Tue, 22 Jul 2025 04:18:19 +0000

Are you wrestling with CPAP therapy to treat your sleep apnea? Or maybe your CPAP has turned into a dust collector on your nightstand? You’re not alone, and we’re here to help!

About our Guests:

Kath Hope

Kath Hope is the Founder & CEO of the Hope2Sleep Charity and a patient with severe OSA and nocturnal ‘non-obesity’ hypoventilation. Kath was diagnosed with severe OSA around 18 years ago and, like many, struggled at the beginning of her CPAP therapy with comfort issues. She went from dreading bedtime to now never considering sleeping without her machine for a full night’s sleep every night! Her passion was to help her fellow patients, which resulted in the formation of a charity that currently supports around 25k patients in the UK and even worldwide.

Dr. Sarah Silverman

Dr. Sarah Silverman is a Stanford-trained sleep psychologist and behavioral sleep medicine specialist who’s passionate about helping others improve their sleep through science-backed and non-medication treatment approaches. Dr. Silverman is an expert in Cognitive Behavior Therapy for insomnia (CBTi), the first-line, drug-free treatment approach for adults with chronic insomnia. CBTi is an effective way to improve sleep naturally and overcome chronic insomnia without medication. Dr. Silverman is also an expert in CBT for positive airway pressure (PAP) therapy, which is an effective way to help with any difficulty related to using CPAP and provide drug-free assistance with PAP therapy adjustment. Connect with Dr. Sarah @drsarahsleep on Instagram and other socials.

The Making CPAP Comfortable Toolkit is coming soon!

Project Sleep's Sleep Helpline: https://project-sleep.com/helpline/

Project Sleep’s Sleep Apnea Squad series invites listeners to dive deeper into specific topics relevant to living with Sleep Apnea. https://project-sleep.com/sleep-apnea-squad/

Sleepless in Hollywood - Sleep Insights Series Ep 16

Project Sleep — Sun, 27 Apr 2025 20:15:40 +0000

In honor of World Sleep Day 2025, Hollywood, Health & Society and Project Sleep hosted an exciting panel discussion at the Writers Guild of America West, “Sleepless in Hollywood? Anxiety, Insomnia & the Truth About Sleep Disorders.” The conversation on March 13th, 2025, included hearing from sleep specialists, people living with sleep disorders, and industry professionals who have thoughtfully featured sleep disorder portrayals on TV including Brent Miller, Executive Producer of Amazon’s hit show Clean Slate (which features sleep apnea) and Al Jean, Executive Producer of The Simpsons (which featured narcolepsy). TV writers and industry professionals were so engaged and fascinated to learn more about sleep and sleep disorders. We look forward to continuing our efforts to educate and inspire Hollywood toward crafting accurate and authentic storylines involving sleep and sleep disorders.

Learn more about Project Sleep’s partnership with Hollywood, Health & Society for accurate sleep disorder depictions on TV: https://project-sleep.com/hollywood-sleep-initiative/

Need support? Reach out to Project Sleep’s Sleep Helpline: https://project-sleep.com/helpline/

Sleeping While Queer - Sleep Insights Series Ep 15

Project Sleep — Sun, 06 Apr 2025 17:40:00 +0000

This conversation was recorded in June 2023.

What does LGBTQ+ identity have to do with sleep? More than you might think. Experiences shared by many LGBTQ+ people can affect sleep health and sleep disorders in challenging and often invisible ways. Our fantastic panel of community members shares how their identities and sleep are closely intertwined.

This discussion is part of Project Sleep’s ongoing commitment to advancing sleep equity through real stories and lived experiences. Learn more about sleep equity and ways to promote healthy sleep for all: https://project-sleep.com/sleep-equity/.

If you are an LGBTQ+ adult age 18 or older, we invite you to share your experiences in our LGBTQ+ Sleep Survey. Your insights will directly inform future advocacy and awareness campaigns. Take the survey and share it with your community: https://project-sleep.com/lgbtq-sleep-survey/

Need support? Reach out to Project Sleep’s Sleep Helpline: https://project-sleep.com/helpline/

Artist Profile with Tatiana Corbitt - Sleep Insights Series Ep 14

Project Sleep — Sun, 23 Mar 2025 16:37:00 +0000

During Project Sleep’s Sleep In 2024, narcolepsy community leader, writer, and artist extraordinaire, Tatiana Maria Corbitt, joined us to speak to their narcolepsy journey and artistic endeavors. During this interview, Tatiana also shares one of their favorite poems about their experience with narcolepsy in the outdoors.

About Tatiana:
Tatiana Maria Corbitt is a writer and multidisciplinary artist living in the Pacific Northwest. They have a M.S. in Applied Biological Sciences from Arizona State University. In addition to being published on narcolepsy.sleep-disorders.net and in “Blood Sweat Tears," which can be ordered at https://www.ruggedoutdoorswoman.com/online-store/?aff=4 (please put “narcolepsy” in the purchase notes so that Tatiana can be partially credited for any sales), Tatiana recently published their first poetry book. “Wild Brujeria" includes many references to living with narcolepsy, and can be purchased at https://www.curiouscorvidpublishing.com/product-page/wild-brujeria?srsltid=AfmBOoqFtlUfh_NvqN22JKLNN5qTBeocnzqDsCwvbh4CyBAHsFXw0ICc.

Tatiana is currently writing an autobiographical fictional fantasy novel starring a queer and narcoleptic ex-scientist who hikes into a new world (release date to be determined) and spends their days reading, napping, writing, painting, and hiking with their German shepherd service dog.

Project Sleep's Sleep Helpline: https://project-sleep.com/helpline/

Congressional Briefing on Sleep & Public Health - Sleep Insights Series Ep 13

Project Sleep — Sun, 09 Mar 2025 02:32:00 +0000

On Tuesday, July 16th, 2024, Project Sleep proudly hosted “Awakening America: A Congressional Briefing on Sleep and Public Health” followed by a first-ever Sleep Screening event on Capitol Hill. Over 100 people attended Project Sleep’s events, with great interest from Hill staffers looking to learn more about their sleep and Project Sleep’s activities, including Project Sleep’s free national Sleep Helpline and the new SLEEP Act!

Lindsay Scola moderated the briefing and shared about being a Hill staffer earlier in her career while facing an undiagnosed sleep disorder.

Dr. Michael Grandner shared exciting scientific advancements in our understanding of the importance of sleep for our overall health and well-being.

Next, Dr. Kali Cyrus shared her personal story of eventually finding a sleep disorders diagnosis after many years of experiencing symptoms while in medical school and beyond.

Lastly, Project Sleep’s President & CEO, Julie Flygare, JD, discussed challenges we face to educate the public and medical providers about sleep and sleep disorders. Flygare shared about what Project Sleep is doing to help improve public awareness of sleep and sleep disorders and how policymakers can play a key role as well.

Project Sleep's Sleep Helpline: https://project-sleep.com/helpline/

Sleep Disorders Conversation for Journalists - Sleep Insights Series Ep 12

Project Sleep — Sun, 23 Feb 2025 14:47:00 +0000

This conversation informed and educated media professionals on how to accurately cover sleep health and sleep disorders. In this conversation, people living with different sleep disorders shared insights from their journeys and what they wish they had read. Journalists toolkit and resources: https://project-sleep.com/sleep-media-center/

This broadcast was originally recorded in March 2023, during the annual Sleep In event. Learn more about the Sleep In here: project-sleep.com/sleepin/

Project Sleep's Sleep Helpline: https://project-sleep.com/helpline/

Breaking Barriers in Sleep Research with Dr. Robert Turner - Sleep Insights Series Ep 11

Project Sleep — Tue, 11 Feb 2025 22:36:00 +0000

Dr. Robert W. Turner II is a former professional football player and Assistant Professor in the Department of Clinical Research and Leadership at The George Washington University School of Medicine & Health Science. In this interview, Dr. Turner shared about his journey toward taking on innovative community-focused sleep research, including a new collaboration with Project Sleep & Dr. Michael Grandner to better understand Black Americans’ perspectives on sleep and sleep disorders to improve future awareness efforts.

This broadcast was originally recorded in March 2023, during the annual Sleep In event. Learn more about the Sleep In here: project-sleep.com/sleepin/

Project Sleep's Sleep Helpline: https://project-sleep.com/helpline/

Sleep Apnea Treatment Options- Sleep Apnea Squad Ep. 3

Project Sleep — Mon, 23 Dec 2024 00:24:00 +0000

CPAP is a commonly used first-line treatment for sleep apnea, but it’s not the only option! In this Sleep Apnea Squad broadcast, we explored ALL the currently available treatments for sleep apnea and how to access them.

About our Guests:

Karen Wolk

Karen Wolk was diagnosed with obstructive sleep apnea in late 2015 at the age of 44. Karen first tried using CPAP therapy for two years and had problems adapting to it.

Karen’s doctor suggested that a hypoglossal nerve stimulator could be a good treatment option for her, and she received her Inspire implant in July 2018. Following her successful implant, Karen is back to working full-time and enjoying life to the fullest. Her memory has drastically improved, and she no longer falls asleep unintentionally during the day.

Karen is the mother of three adult children and three dogs. She works full-time managing a Petco store and uses her story to help others as a volunteer patient ambassador for Inspire Medical Systems. Karen is also an Advisor at the Alliance of Sleep Apnea Partners.

Dr. Meredith Broderick, MD

Dr. Meredith Broderick is a triple board-certified sleep neurologist based in Seattle, WA. Her passion is combining holistic, preventative, allopathic, and behavioral sleep medicine to optimize health and wellness. In her personal life, she is passionate about the performing arts and outdoor adventure, and she has climbed some of the highest mountains on planet Earth. She sees patients one-on-one from her boutique sleep practice, Sound Sleep Guru, and shares from her life and tips as a sleep medicine physician on Instagram and TikTok @sleepdoctormer.

The Sleep Apnea Treatment Options Toolkit is coming soon!

Project Sleep's Sleep Helpline: https://project-sleep.com/helpline/

Project Sleep’s Sleep Apnea Squad series invites listeners to dive deeper into specific topics relevant to living with Sleep Apnea. https://project-sleep.com/sleep-apnea-squad/

Sleep Apnea Testing - Sleep Apnea Squad Ep. 2

Project Sleep — Mon, 16 Dec 2024 19:19:22 +0000

What’s a sleep apnea test? The latest Apple Watch alerts users of possible sleep apnea. But what kind of doctor do you see to get tested for sleep apnea and what’s the difference between an at-home test versus an in-lab test? Join us to discuss all the options, insurance v. paying out of pocket, and advocating for yourself and your health.

About Our Guests:

Jody Martin

Jody Martin is a husband, Marine Corps veteran, and business owner. He lives in Texas with his wife of 30 years, Rachel. In 2019, Jody underwent testing in a sleep clinic and received a diagnosis of severe obstructive sleep apnea. After a difficult start to CPAP therapy, Jody abandoned it.

Later, when he tried to get help, he was told he would have to go through the entire process again, starting with his primary care doctor. It was a process he was unwilling to repeat. That was until he discovered Lofta, an online sleep apnea home testing company, and was able to go through testing, diagnosis, and getting set up on CPAP therapy entirely from home and with the support of Lofta staff. Jody is passionate about sharing his journey to encourage other people living with undiagnosed sleep apnea to learn about their testing options and get the testing, diagnosis, and treatment they need.

Andrea Ramberg MS, CCSH, RPSGT

Andrea Ramberg has spent 16 years in sleep medicine, learning every component of polysomnography, from clinical to administrative. She is double credentialed with her RPSGT and CCSH and holds a Master of Science in Industrial and Organizational Psychology. Andrea is EnsoData’s Clinical Director, and she joined the team in 2020 because of her passion for bringing Sleep Medicine into the future. From 2021-2023, Andrea served as President of the Board of Registered Polysomnographic Technologists, BRPT, and her goal is to empower sleep technologists in new roles through the CCSH credential as Sleep Coaches, Sleep Educators, and Sleep Navigators.

The Sleep Apnea Testing Toolkit is coming soon!

Project Sleep's Sleep Helpline: https://project-sleep.com/helpline/

Project Sleep’s Sleep Apnea Squad series invites listeners to dive deeper into specific topics relevant to living with Sleep Apnea. https://project-sleep.com/sleep-apnea-squad/

Could I Have Sleep Apnea? - Sleep Apnea Squad Ep. 1

Project Sleep — Mon, 09 Dec 2024 04:57:00 +0000

Sleep apnea symptoms can fly under the radar, even in the doctor’s office. Are you questioning if you or a loved one has sleep apnea symptoms? If you are living with sleep apnea, did you experience a delay to diagnosis?

About Our Guests:

Sam Kashani, MD

Dr. Sam Kashani is a board-certified Sleep Physician who practices at UCLA Health in Los Angeles. His clinical interests include chronic insomnia, sleep apnea, narcolepsy, restless legs syndrome, parasomnias, pediatric sleep disorders, and the associations between sleep, mental, and metabolic health.

Dr. Kashani completed his residency at Arrowhead Regional Medical Center in Southern California, where he worked with the medically underserved population of San Bernardino County with plans of becoming a primary care physician. Upon completing his residency, he chose to pursue his interest in Sleep Medicine and completed a fellowship in Sleep Medicine at the David Geffen School of Medicine at UCLA.

Dr. Kashani currently serves as President-elect of the California Sleep Society and is an enthusiastic member of Project Sleep’s expert advisory board.

Bob File

Bob File is a former major league baseball player living with obstructive sleep apnea.

At Jefferson University Bob was a 2004 Hall of Fame inductee and 2018 Retired Jersey Recipient was one of the strongest all-around baseball players in school history. He is only one of four Rams to have their jersey retired by the school. File was drafted in the 1998 MLB Amateur Entry Draft by the Toronto Blue Jays in the 19th round (561st overall) and went on to appear in three 1/2 seasons for the Blue Jays with 89 appearances across 111.1 innings.

Currently the Sr. Director of Solution Engineering at Ledger Run, Bob provides leadership and oversees Ledger Run’s solution engineering, ensuring successful solution architecture, application delivery, and standing up enterprise tech solutions for life sciences’ business challenges.

Bob is a proud husband and father who enjoys spending time with his wife and daughter.

Download the Could I Have Sleep Apnea Toolkit for more resources: https://project-sleep.com/sleep-apnea-squad-could-i-have-sleep-apnea/

Project Sleep's Sleep Helpline: https://project-sleep.com/helpline/

Project Sleep’s Sleep Apnea Squad series invites listeners to dive deeper into specific topics relevant to living with Sleep Apnea. https://project-sleep.com/sleep-apnea-squad/

Talking to Your Doctor About Sleep Issues - Narcolepsy Nerd Alert Ep. 21

Project Sleep — Wed, 27 Nov 2024 19:40:28 +0000

Feeling like you might be more than “just tired?” Wondering how to talk about sleep issues with your primary care provider? You’re not alone. In Talking to Your Doctor About Sleep Issues, guests shared insights from clinical and patient perspectives on discussing sleep issues and daytime sleepiness with general practitioners, and how to get referred to a sleep specialist.

About our Guests:

Joshua Roland, MD

Studied psychology at Temple University in Philadelphia, where he developed an interest in sleep and its role in mental health and well-being. Before attending medical school, he worked in clinical research conducting studies on sleep pharmacotherapies. Dr. Roland completed his residency at Drexel University College of Medicine and then did a sleep medicine fellowship at Emory University School of Medicine. He practiced sleep medicine at UCLA, and worked on guidelines for the American Academy of Sleep Medicine, as well as serving on the California Sleep Society board of directors. He currently is the medical director of River at Thirty Madison.

Kristen Cascio

Kristen Cascio is a clinical social worker and world traveler from Boston. She was diagnosed with obstructive sleep apnea at age 31. Kristen now hopes to raise awareness while encouraging others to never feel self-conscious about their diagnosis. As a speaker with Project Sleep’s Rising Voices program, she shares her story to increase public knowledge around sleep apnea diagnosis and treatment.

Lauren Oglesby, MPH

Lauren Oglesby serves as Programs Manager for Project Sleep, and is a public health educator and advocate focused on healthcare and resource accessibility. Recently diagnosed with obstructive sleep apnea at age 44 after experiencing symptoms for years, she shares her story to validate and empower others in self-advocacy and healthcare navigation.

Resources:

Talking to Your Doctor About Sleep Issues Toolkit Coming Soon!

Project Sleep's Sleep Helpline: https://project-sleep.com/helpline/
Finding Your Sleep Healthcare Team: https://project-sleep.com/finding-your-sleep-healthcare-team/
Sleep Disorders Screener: https://sleephealthscreen.com/
Epworth Sleepiness Scale: https://sleep.hms.harvard.edu/education-training/public-education/sleep-and-health-education-program/sleep-health-education-90
Hypersomnia Foundation's Directory of Healthcare Professionals who treat hypersomnias: https://www.hypersomniafoundation.org/directory/
Find an AASM Accredited Sleep Center: https://sleepeducation.org/sleep-center/

The Narcolepsy Nerd Alert series invites listeners to dive deeper into specific topics relevant to living with narcolepsy. project-sleep.com/narcolepsy-nerd-alert/

Narcolepsy + Relationships - Narcolepsy Nerd Alert Ep. 20

Project Sleep — Mon, 18 Nov 2024 20:51:49 +0000

In this Narcolepsy Nerd Alert we discuss everything from dating and early stages to long-term partnerships and marriage, with people living with narcolepsy and a supporter.

About our Guests:

Taylor Dillon is a Filipina-American NERD who loves hiking and dancing in Los Angeles. She was diagnosed with narcolepsy at age 18, and now creates educational resources, the Narcolepsy Nerd Alert toolkits with Project Sleep. As a speaker with Project Sleep’s Rising Voices program, Taylor shares her story to increase public understanding of narcolepsy and decrease stigma around sleep disorders.

Lindsay Scola is an entertainment impact strategist and outdoor enthusiast living in Los Angeles. She was diagnosed with narcolepsy at 35 and is now a speaker with Project Sleep’s Rising Voices program. Lindsay shares her story of experiencing mysterious symptoms and advocating for her diagnosis to help others with sleep related issues get answers and seek the treatment they need.

Bob Cloud is a retired lawyer living in Northern Vermont. He grew up in Ohio and married an Indiana girl, Margaret, with whom he has two children. His excessive sleepiness, cataplexy, and related symptoms appeared at age 33, during his first year of night law school. Bob practiced family, criminal, and general law for 30 years, during which time he learned to live with narcolepsy. As a Rising Voices speaker, Bob shares how supportive family, creative doctors and pharmaceutical providers, and understanding friends stood by him as a husband, father, lawyer, patient, and occasional fisherman with narcolepsy.

Margaret Cloud has been married to Bob for 52 years. Following a career of 30 years in clinical laboratory leadership for major medical centers and national labs, she moved with Bob to northern Vermont. Margaret’s insights into supporting a spouse with narcolepsy raise issues not often discussed by individuals, families, and professionals.

Jeff Discount is a father of three who enjoys a career as a sales engineer and business development consultant, and has a passion for building both his physique and meaningful relationships. He was diagnosed with narcolepsy at age 40, which provided considerable challenges in maintaining high levels of fitness and balancing important facets of his life. Jeff encourages other people with narcolepsy to connect and learn from each other, and is thrilled to share some of the ways he has overcome his own challenges with this neurological condition.

Narcolepsy + Relationships Toolkit Coming Soon!

Project Sleep's Sleep Helpline: https://project-sleep.com/helpline/

The Narcolepsy Nerd Alert series invites listeners to dive deeper into specific topics relevant to living with narcolepsy. project-sleep.com/narcolepsy-nerd-alert/

Coping with Cataplexy - Narcolepsy Nerd Alert Ap. 19

Project Sleep — Mon, 11 Nov 2024 06:04:56 +0000

Cataplexy is a unique form of muscle weakness experienced by some people with narcolepsy, but how can you recognize this symptom? What are the emotional triggers? And how do you cope with cataplexy? During Narcolepsy Nerd Alert: Coping With Cataplexy, sleep medicine physician Dr. Katie Sharkey and Rising Voices speaker Katie Mehin shared their insights.

About our Guests:

Dr. Katie Sharkey, MD, PhD is a sleep medicine physician and associate professor of Medicine and of Psychiatry & Human Behavior at the Alpert Medical School of Brown University. She earned her MD-PhD and completed a combined internal medicine and psychiatry residency at Rush University in Chicago, IL. Dr. Sharkey is a recognized expert on sleep and circadian rhythms, particularly as they relate to mood regulation and women’s health. She is an Associate Editor of Behavioral Sleep Medicine and Frontiers in Sleep, and serves on the editorial board of Sleep Health.

Katie Mehin is a project analyst for an educational tech company specializing in empowering adult learners to thrive in higher education. Outside of work, she enjoys spending time with her husband and two elementary-age sons. She was diagnosed with narcolepsy with cataplexy as a college sophomore, almost five years after the initial onset of her symptoms. As a trained speaker with Project Sleep’s Rising Voices program, Katie hopes to spread awareness of this neurological sleep disorder to help others in obtaining more timely diagnoses.

Download theCoping With Cataplexy Toolkit for more resources: https://project-sleep.com/wp-content/uploads/2024/11/Coping-with-Cataplexy-Toolkit.pdf

Project Sleep's Sleep Helpline: https://project-sleep.com/helpline/

The Narcolepsy Nerd Alert series invites listeners to dive deeper into specific topics relevant to living with narcolepsy. project-sleep.com/narcolepsy-nerd-alert/

Could I Have Narcolepsy - Narcolepsy Nerd Alert Ep. 18

Project Sleep — Mon, 28 Oct 2024 20:49:14 +0000

Wondering if you or a loved one could have narcolepsy? Sleep medicine specialist Dr. Lindsay McCullough, MD joined us to discuss symptoms, diagnosis, and treatment and share her own journey to being diagnosed with narcolepsy.

About Our Guest:

Dr. Lindsay McCullough, MD is a sleep medicine specialist, assistant professor of sleep medicine, and associate program director of the sleep medicine fellowship at Rush University Medical Center in Chicago, IL. After struggling with unexplained daytime sleepiness and misunderstanding from those around her for ten years, she was diagnosed with type 2 narcolepsy without cataplexy as a fourth-year medical student. Dr. McCullough shared her story as a sleep physician living with narcolepsy in the Fall 2022 issue of the American Academy of Sleep Medicine’s member magazine, Montage.

Download the Could I Have NArcolepsy? Toolkit Toolkit for more resources: https://project-sleep.com/wp-content/uploads/2024/09/Could-I-Have-Narcolepsy-Toolkit-Final-2024.pdf

Project Sleep's Sleep Helpline: https://project-sleep.com/helpline/

The Narcolepsy Nerd Alert series invites listeners to dive deeper into specific topics relevant to living with narcolepsy. project-sleep.com/narcolepsy-nerd-alert/

Narcolepsy + Art - Narcolepsy Nerd Alert Ep. 17

Project Sleep — Mon, 21 Oct 2024 16:00:00 +0000

What’s your creative outlet? In this Narcolepsy Nerd Alert, an incredible panel of artists from around the world share their work and discuss the relationship between creative expression and living with narcolepsy.

About Our Guests:

Ulrike Nordquist is a mother of two, photographer, painter, and Rising Voices speaker living in Sweden. She developed type 1 narcolepsy with cataplexy at the age of 38 after receiving the Pandemrix H1N1 vaccine. During the years coping with her new situation, she made her passion for painting and photography into a business that fit her schedule. Ulrike conceptualizes her way of thinking: “I use self-luminous colors to lighten up dark parts in my paintings!”

Silence Hands is a mother of two and a multidisciplinary artist from Tennessee. She was diagnosed with type 1 narcolepsy with cataplexy at age 35 and wishes to motivate others to listen closely to what their bodies are telling them. As a speaker with Project Sleep’s Rising Voices program, Silence shares her experiences with others to improve awareness of narcolepsy and hopes to undo misconceptions of this neurological condition.

Shu Horiike is a freelance designer, web engineer, and digital art director living in Japan. His artwork expresses the specific feelings of narcolepsy and hypersomnia, with the fear of memories being sliced out, anxiety of shaking vision, distorted sounds, and feeling uncomfortable under the gaze of others. Shu is a member of the Japan Narcolepsy Association, and hopes to use his art to raise awareness of narcolepsy in Japan.

Jonathan Correa is a photography hobbyist and outdoor enthusiast. He was diagnosed with narcolepsy in 2014, more than 10 years after initial symptoms. Jonathan is a lifelong resident of the Shenandoah Valley in Virginia.

Dana Harel lives in Israel with her husband and two children. She is a developmental psychologist and an artist. She was diagnosed with type 1 narcolepsy with cataplexy at age 34, after living with symptoms since she was 18. Her artwork primarily involves paper craft, scrapbooking and mixed media.

Jayden Rowland is an art major at Oklahoma Community College. They were diagnosed with type 1 narcolepsy with cataplexy at age 15 and have been raising awareness ever since. As an artist and speaker with Project Sleep’s Rising Voices program, Jayden conveys the struggles of not being taken seriously, achieving a diagnosis, and their ongoing battle with depression and self-acceptance.

Download the Narcolepsy + Art Toolkit Toolkit for more resources: https://project-sleep.com/wp-content/uploads/2024/04/Narcolepsy-and-Art-Toolkit.pdf

Project Sleep's Sleep Helpline: https://project-sleep.com/helpline/

The Narcolepsy Nerd Alert series invites listeners to dive deeper into specific topics relevant to living with narcolepsy. project-sleep.com/narcolepsy-nerd-alert/

Living with Type 2 Narcolepsy: Kim Leatherman’s Story With Narcolepsy - Rising Voices Ep. 24

Project Sleep — Mon, 08 Jul 2024 21:04:38 +0000

Kim Leatherman works with preschoolers with autism and is a health and wellness coach. She was diagnosed with type 2 narcolepsy without cataplexy in her early 40s, but has been experiencing symptoms since her late teens. In sharing her story as a Rising Voices speaker, she hopes to shed light on this invisible sleep disorder and the impacts of living with it.

The Rising Voices Series features a variety of first-hand stories from people living with sleep disorders around the world. At Project Sleep, we believe in the power of storytelling to raise awareness and break down stigma. This is why we train people with sleep disorders on how to share their stories through the Rising Voices training program. To request a Rising Voices speaker for your conference or apply for an upcoming training program, visit: https://project-sleep.com/rising-voices/

Project Sleep's Sleep Helpline: https://project-sleep.com/helpline/

Please note: this audio was originally recorded in 2020. For up-to-date facts about narcolepsy treatment options: https://project-sleep.com/facts-about-narcolepsy/

News Producer: Kristyn Beecher’s Story With Narcolepsy - Rising Voices Ep. 23

Project Sleep — Mon, 01 Jul 2024 21:26:28 +0000

Kristyn Beecher is a storyteller and news producer from Houston, Texas. She was diagnosed with type 2 narcolepsy without cataplexy at age 24, but had lived with symptoms for many years before that. As a speaker with Project Sleep’s Rising Voices program, she tells her own story and hopes to let others living with narcolepsy know they aren’t alone.

The Rising Voices Series features a variety of first-hand stories from people living with sleep disorders around the world. At Project Sleep, we believe in the power of storytelling to raise awareness and break down stigma. This is why we train people with sleep disorders on how to share their stories through the Rising Voices training program. To request a Rising Voices speaker for your conference or apply for an upcoming training program, visit: https://project-sleep.com/rising-voices/

Project Sleep's Sleep Helpline: https://project-sleep.com/helpline/

Please note: this audio was originally recorded in 2020. For up-to-date facts about narcolepsy treatment options: https://project-sleep.com/facts-about-narcolepsy/

Self-Employed Web Designer: Katie Williamsen’s Story With Narcolepsy - Rising Voices Ep. 22

Project Sleep — Wed, 26 Jun 2024 21:07:54 +0000

Katie Williamsen is an entrepreneur and web designer. She has lived with type 1 narcolepsy with cataplexy for over six years and, by sharing her story, aims to raise awareness of this life-changing condition.

The Rising Voices Series features a variety of first-hand stories from people living with sleep disorders around the world. At Project Sleep, we believe in the power of storytelling to raise awareness and break down stigma. This is why we train people with sleep disorders on how to share their stories through the Rising Voices training program. To request a Rising Voices speaker for your conference or apply for an upcoming training program, visit: https://project-sleep.com/rising-voices/

Project Sleep's Sleep Helpline: https://project-sleep.com/helpline/

Please note: this audio was originally recorded in 2020. For up-to-date facts about narcolepsy treatment options: https://project-sleep.com/facts-about-narcolepsy/

Educational Diagnostician: Victoria’s Story With Narcolepsy - Rising Voices Ep. 21

Project Sleep — Thu, 13 Jun 2024 23:44:23 +0000

Victoria is a homeschooling mother of two, educational diagnostician, and major horse enthusiast. She was diagnosed with type 1 narcolepsy with cataplexy at 26 years old and now hopes to raise awareness of this condition. As a speaker with Project Sleep’s Rising Voices program, Victoria shares her experiences finding her diagnosis and living with narcolepsy. Through her story, she hopes to emphasize that feeling understood and accepted is important, even when you don’t understand and accept yourself.

The Rising Voices Series features a variety of first-hand stories from people living with sleep disorders around the world. At Project Sleep, we believe in the power of storytelling to raise awareness and break down stigma. This is why we train people with sleep disorders on how to share their stories through the Rising Voices training program. To request a Rising Voices speaker for your conference or apply for an upcoming training program, visit: https://project-sleep.com/rising-voices/

Project Sleep's Sleep Helpline: https://project-sleep.com/helpline/

Please note: this audio was originally recorded in 2020. For up-to-date facts about narcolepsy treatment options: https://project-sleep.com/facts-about-narcolepsy/

La Historia de Grisel Con la Narcolepsia - Rising Voices Ep. 20

Project Sleep — Tue, 04 Jun 2024 21:56:06 +0000

This episode is spoken in Spanish. Grisel Pantoja fue diagnosticada con narcolepsia tipo 1 con cataplejía en 2016 pero esto no le impidió cumplir sus sueños. Grisel recibió su Licenciatura en psicología en FIU (Universidad Internacional de la Florida) con una especialización en educación en el 2017. Actualmente está cursando su maestría de psicología en consejería con especialización en salud mental.

Grisel quiere crear conciencia de lo que es la narcolepsia compartiendo su experiencia como oradora en el programa Rising Voices de Project Sleep. Grisel también disfruta en su tiempo libre de tocar el violín, escribir, le gusta la fotografía y pasar tiempo con su familia.

Rising Voices es el programa de capacitación de liderazgo de Project Sleep para crear conciencia sobre la narcolepsia y al mismo tiempo ayudar a nuevas generaciones de pacientes que compartan su historia a través de escribirlas y comunicarlas a otros. Aprende más: https://project-sleep.com/rising-voices/

Project Sleep's Sleep Helpline: https://project-sleep.com/helpline/

Please note: this audio was originally recorded in 2020. For up-to-date facts about narcolepsy treatment options: https://project-sleep.com/facts-about-narcolepsy/

L'Histoire d'Anne-Claude Avec la Narcolepsie - Rising Voices Ep. 19

Project Sleep — Wed, 29 May 2024 02:41:06 +0000

This episode is spoken in French. Anne-Claude Foucault est associée aux opérations et à la mobilité des talents pour une agence de publicité pancanadienne. Elle est mère à temps plein et adore l'activité physique, en particulier le jogging et l'escalade. Elle a vécu sans le savoir avec une narcolepsie de type 1 avec cataplexie pendant 25 ans avant de recevoir son diagnostic en 2018. Aujourd'hui, en tant que conférencière pour Rising Voices of Narcolepsy, elle espère faire prendre conscience du vrai visage de ce trouble neurologique souvent mal compris. et entouré de clichés.

Rising Voices℠ est un programme de formation au leadership de Project Sleep

qui vise à sensibiliser aux troubles du sommeil tout en permettant à une nouvelle génération de défenseurs des patients de partager leurs histoires par l'écriture et la parole. Apprendre encore plus: https://project-sleep.com/rising-voices/

Project Sleep's Sleep Helpline: https://project-sleep.com/helpline/

Please note: this audio was originally recorded in 2020. For up-to-date facts about narcolepsy treatment options: https://project-sleep.com/facts-about-narcolepsy/

Montreal Mother: Anne-Claude’s Story With Narcolepsy - Rising Voices Ep. 18

Project Sleep — Mon, 13 May 2024 20:42:50 +0000

Anne-Claude Foucault is a Traffic Manager & Operation Partner in a Montreal-based marketing agency, a full-time mother, and a woman who loves physical activity, especially jogging and climbing. She lived with symptoms for 25 years before receiving her diagnosis of type 1 narcolepsy with cataplexy in 2018. Now, as a Rising Voices speaker, she hopes to deconstruct the preconceptions and clichés that surround this neurological disorder.

The Rising Voices Series features a variety of first-hand stories from people living with sleep disorders around the world. At Project Sleep, we believe in the power of storytelling to raise awareness and break down stigma. This is why we train people with sleep disorders on how to share their stories through the Rising Voices training program. To request a Rising Voices speaker for your conference or apply for an upcoming training program, visit: https://project-sleep.com/rising-voices/

Project Sleep's Sleep Helpline: https://project-sleep.com/helpline/

Future Scientist: Stephanie Manuli’s Story with Narcolepsy - Rising Voices Ep. 17

Project Sleep — Tue, 07 May 2024 22:34:25 +0000

Stephanie Manuli is an undergraduate student at North Carolina State University, where she is studying Biochemistry. Stephanie was diagnosed with type 2 narcolepsy without cataplexy in 2014 and is now a trained speaker with Project Sleep’s Rising Voices leadership program. Stephanie shares her story with the goal to raise awareness of this misunderstood condition.

The Rising Voices Series features a variety of first-hand stories from people living with sleep disorders around the world. At Project Sleep, we believe in the power of storytelling to raise awareness and break down stigma. This is why we train people with sleep disorders on how to share their stories through the Rising Voices training program. To request a Rising Voices speaker for your conference or apply for an upcoming training program, visit: https://project-sleep.com/rising-voices/

Project Sleep's Sleep Helpline: https://project-sleep.com/helpline/

Please note: this audio was originally recorded in 2020. For up-to-date facts about narcolepsy treatment options: https://project-sleep.com/facts-about-narcolepsy/

Real Life Superhero: Rachel Nesmith’s Story With Narcolepsy - Rising Voices Ep. 16

Project Sleep — Tue, 30 Apr 2024 21:37:04 +0000

Rachel Nesmith is a wife, mother, and speaker. She was diagnosed with type 1 narcolepsy with cataplexy in February 2002 and considers herself a real Superhero. As a Rising Voices trained speaker, she shares her story to raise awareness and reduce the stigma of this misunderstood neurological condition.

The Rising Voices Series features a variety of first-hand stories from people living with sleep disorders around the world. At Project Sleep, we believe in the power of storytelling to raise awareness and break down stigma. This is why we train people with sleep disorders on how to share their stories through the Rising Voices training program. To request a Rising Voices speaker for your conference or apply for an upcoming training program, visit: https://project-sleep.com/rising-voices/

Project Sleep's Sleep Helpline: https://project-sleep.com/helpline/

Please note: this audio was originally recorded in 2020. For up-to-date facts about narcolepsy treatment options: https://project-sleep.com/facts-about-narcolepsy/

Speech & Debate Competitor: Jordan Taylor's Story With Narcolepsy - Rising Voices Ep. 15

Project Sleep — Tue, 16 Apr 2024 18:14:01 +0000

Jordan Taylor is a graduate of the University of Alabama where she had a prominent role on the university’s speech and debate and slam poetry teams. Diagnosed with narcolepsy type 1 at the age of 14, Jordan joined Project Sleep’s Rising Voices to share her story and raise awareness about the often misunderstood condition.

The Rising Voices Series features a variety of first-hand stories from people living with sleep disorders around the world. At Project Sleep, we believe in the power of storytelling to raise awareness and break down stigma. This is why we train people with sleep disorders on how to share their stories through the Rising Voices training program. To request a Rising Voices speaker for your conference or apply for an upcoming training program, visit: https://project-sleep.com/rising-voices/

Project Sleep's Sleep Helpline: https://project-sleep.com/helpline/

Please note: this audio was originally recorded in 2020. For up-to-date facts about narcolepsy treatment options: https://project-sleep.com/facts-about-narcolepsy/

Professional Songwriter: Kêta’s Story With Narcolepsy - Rising Voices Ep. 14

Project Sleep — Mon, 08 Apr 2024 05:05:01 +0000

Kêta is a professional songwriter for SonyATV, traveling between LA and Atlanta for her work. She was diagnosed with narcolepsy with cataplexy at age 17 and now, as a Rising Voices trained speaker, she is educating audiences about what it is actually like to have narcolepsy while encouraging them to dream big and live full lives. You can learn more by finding her on Twitter or Instagram at @ThisIsKeta.

The Rising Voices Series features a variety of first-hand stories from people living with sleep disorders around the world. At Project Sleep, we believe in the power of storytelling to raise awareness and break down stigma. This is why we train people with sleep disorders on how to share their stories through the Rising Voices training program. To request a Rising Voices speaker for your conference or apply for an upcoming training program, visit: https://project-sleep.com/rising-voices/

Project Sleep's Sleep Helpline: https://project-sleep.com/helpline/

Please note: this audio was originally recorded in 2020. For up-to-date facts about narcolepsy treatment options: https://project-sleep.com/facts-about-narcolepsy/

Becoming an Activist: Ming Lai’s Story With Narcolepsy - Rising Voices Ep. 13

Project Sleep — Tue, 02 Apr 2024 20:45:38 +0000

Ming Lai lives in Nevada and is a Registered Nurse, permaculturist, and Council Member and co-Office Manager for an antinuclear weapons interfaith peace nonprofit. He has lived with narcolepsy for over 30 years and now, as a Rising Voices writer, hopes to spread awareness and share his story.

The Rising Voices Series features a variety of first-hand stories from people living with sleep disorders around the world. At Project Sleep, we believe in the power of storytelling to raise awareness and break down stigma. This is why we train people with sleep disorders on how to share their stories through the Rising Voices training program. To request a Rising Voices speaker for your conference or apply for an upcoming training program, visit: https://project-sleep.com/rising-voices/

Project Sleep's Sleep Helpline: https://project-sleep.com/helpline/

Please note: this audio was originally recorded in 2020. For up-to-date facts about narcolepsy treatment options: https://project-sleep.com/facts-about-narcolepsy/

"Always Sleeping" Amy Desmarais’ Story With Idiopathic Hypersomnia - Rising Voices Ep. 12

Project Sleep — Mon, 23 Oct 2023 04:15:00 +0000

Amy Desmarais is an SEO Analyst living in the Boston, MA area. She was a member of the Board of Directors for the Hypersomnia Foundation from 2017 – 2020, which she became involved with after being diagnosed with idiopathic hypersomnia in 2015. As a Rising Voices trained speaker, Amy hopes to spread awareness of hypersomnia by sharing her story.

The Rising Voices Series features a variety of first-hand stories from people living with sleep disorders around the world. At Project Sleep, we believe in the power of storytelling to raise awareness and break down stigma. This is why we train people with sleep disorders on how to share their stories through the Rising Voices training program. To request a Rising Voices speaker for your conference or apply for an upcoming training program, visit: https://project-sleep.com/rising-voices/

Please note: this audio was originally recorded in 2020. For up-to-date facts about narcolepsy treatment options: https://project-sleep.com/facts-about-narcolepsy/

Architecture in Dreams: Eilís Finnegan’s Story With Narcolepsy - Rising Voices Ep. 11

Project Sleep — Mon, 16 Oct 2023 04:39:00 +0000

Eilís Finnegan completed her Bachelor of Architecture, Bachelor of Interior Architecture Degrees from Auburn University. Eilís was diagnosed with type 1 narcolepsy with cataplexy in 2017 as a college sophomore and is now a trained speaker with Project Sleep’s Rising Voices program. In her presentation, Eilís educates on the basic facts of narcolepsy while also taking you on a journey through her “dreamscape”— her road to diagnosis, how she creatively manages symptoms today, and how she uses her career in Architecture to advocate for research into sleep conditions.

Check out Eilís' DREAM*S artwork on Instagram: @eilis_arch

The Rising Voices Series features a variety of first-hand stories from people living with sleep disorders around the world. At Project Sleep, we believe in the power of storytelling to raise awareness and break down stigma. This is why we train people with sleep disorders on how to share their stories through the Rising Voices training program. To request a Rising Voices speaker for your conference or apply for an upcoming training program, visit: https://project-sleep.com/rising-voices/

Please note: this audio was originally recorded in 2020. For up-to-date facts about narcolepsy treatment options: https://project-sleep.com/facts-about-narcolepsy/

"The Awakening" Rachel Miyazaki's Story With Narcolepsy - Rising Voices Ep. 10

Project Sleep — Mon, 09 Oct 2023 04:15:00 +0000

Rachel Miyazaki is a production coordinator and houseplant enthusiast originally from Hawai’i, now living in Seattle. She struggled with sleep disorders since childhood and is living with type 1 narcolepsy with cataplexy. Now, as a Rising Voices writer, she wants to advocate for fellow people with narcolepsy, especially students and employees. In this episode, Rachel reads her thoughtful and witty essay, “The Awakening,” followed by a Q&A. Read her essay here: http://www.bmpvoices.com/the-awakening

The Rising Voices Series features a variety of first-hand stories from people living with sleep disorders around the world. At Project Sleep, we believe in the power of storytelling to raise awareness and break down stigma. This is why we train people with sleep disorders on how to share their stories through the Rising Voices training program. To request a Rising Voices speaker for your conference or apply for an upcoming training program, visit: https://project-sleep.com/rising-voices/

Please note: this audio was originally recorded in 2020. For up-to-date facts about narcolepsy treatment options: https://project-sleep.com/facts-about-narcolepsy/

Recreational Therapist: Elizabeth Terry’s Story With Narcolepsy - Rising Voices Ep. 9

Project Sleep — Mon, 18 Sep 2023 04:10:00 +0000

Elizabeth Terry is a lifelong “Hoosier,” Indiana University graduate, and recreational therapist. Diagnosed with type 1 narcolepsy with cataplexy while in college in 2015, she became a trained speaker through Project Sleep’s Rising Voices program in 2018. By sharing her story, Elizabeth continues to build awareness for this misunderstood neurological condition and encourages others to do the same.

The Rising Voices Series features a variety of first-hand stories from people living with sleep disorders around the world. At Project Sleep, we believe in the power of storytelling to raise awareness and break down stigma. This is why we train people with sleep disorders on how to share their stories through the Rising Voices training program. To request a Rising Voices speaker for your conference or apply for an upcoming training program, visit: https://project-sleep.com/rising-voices/

Please note: this audio was originally recorded in 2020. For up-to-date facts about narcolepsy treatment options: https://project-sleep.com/facts-about-narcolepsy/

Download episode transcription Here

Identical Twin & Engineer: Ebony Lay’s Story With Narcolepsy - Rising Voices Ep. 8

Project Sleep — Mon, 11 Sep 2023 04:16:00 +0000

Ebony is a telecommunications engineer and identical twin from Leawood, KS, living with type 1 narcolepsy with cataplexy. As a trained speaker of Project Sleep’s Rising Voices program, Ebony shares her story to help separate facts from myths and spread awareness about this often misunderstood neurological condition.

The Rising Voices Series features a variety of first-hand stories from people living with sleep disorders around the world. At Project Sleep, we believe in the power of storytelling to raise awareness and break down stigma. This is why we train people with sleep disorders on how to share their stories through the Rising Voices training program. To request a Rising Voices speaker for your conference or apply for an upcoming training program, visit: https://project-sleep.com/rising-voices/

Please note: this audio was originally recorded in 2020. For up-to-date facts about narcolepsy treatment options: https://project-sleep.com/facts-about-narcolepsy/

Download episode transcription Here

Father of Three: Matthew Horsnell’s Story With Narcolepsy - Rising Voices Ep. 7

Project Sleep — Tue, 05 Sep 2023 03:18:50 +0000

Matthew Horsnell is a father of three, amateur strength athlete, and science nerd who incorporates invertebrate fossils into rock sculptures. Matt calls Nashville, TN, home. He was diagnosed with type 1 narcolepsy with cataplexy in 2007 and now, as a trained speaker with Project Sleep’s Rising Voices leadership program, aims to raise awareness about narcolepsy and sleep.

The Rising Voices Series features a variety of first-hand stories from people living with sleep disorders around the world. At Project Sleep, we believe in the power of storytelling to raise awareness and break down stigma. This is why we train people with sleep disorders on how to share their stories through the Rising Voices training program. To request a Rising Voices speaker for your conference or apply for an upcoming training program, visit: https://project-sleep.com/rising-voices/

Please note: this audio was originally recorded in 2020. For up-to-date facts about narcolepsy treatment options: https://project-sleep.com/facts-about-narcolepsy/

Download episode transcription Here

Sent to Truancy Court: Brittany Matthews’ Story With Narcolepsy - Rising Voices Ep. 6

Project Sleep — Tue, 22 Aug 2023 04:16:00 +0000

Brittany Matthews is a Texas girl living in a Chicago world. She earned a Bachelor of Science degree in Communication Disorders from the University of Houston. At the age of 19 after more than 12 years of struggling with mysterious symptoms, she learned she had type 1 narcolepsy with cataplexy. As a trained speaker with Project Sleep’s Rising Voices program, Brittany shares her story to health care professionals and the general public to shed light on the reality of living with this challenging and misunderstood condition.

The Rising Voices Series features a variety of first-hand stories from people living with sleep disorders around the world. At Project Sleep, we believe in the power of storytelling to raise awareness and break down stigma. This is why we train people with sleep disorders on how to share their stories through the Rising Voices training program. To request a Rising Voices speaker for your conference or apply for an upcoming training program, visit: https://project-sleep.com/rising-voices/

Please note: this audio was originally recorded in 2020. For up-to-date facts about narcolepsy treatment options: https://project-sleep.com/facts-about-narcolepsy/

Download episode transcription Here

"Laugh at Me, Not My Narcolepsy" Actor and Writer Anna Marr's Story - Rising Voices Ep. 5

Project Sleep — Tue, 15 Aug 2023 23:53:29 +0000

Anna Marr is an LA-based actor, writer, and voiceover artist living with type 1 narcolepsy. When not performing or writing comedy, she enjoys consuming odd ice cream flavors, female-driven TV shows, and theme parks. She is a co-founder of Bluelaces Theatre Co., a non-profit that creates interactive, multi-sensory theatre for individuals with developmental differences. Anna was diagnosed with narcolepsy as a senior at Northwestern University. As a Rising Voices writer, she aims to change how the media represents this chronic neurological condition. She developed an award-winning short film about narcolepsy, Walking through Peanut Butter, based on her experiences navigating New York’s comedy scene with narcolepsy. You can learn more at https://project-sleep.com/walking-through-peanut-butter/

The Rising Voices Series features a variety of first-hand stories from people living with sleep disorders around the world. At Project Sleep, we believe in the power of storytelling to raise awareness and break down stigma. This is why we train people with sleep disorders on how to share their stories through the Rising Voices training program. To request a Rising Voices speaker for your conference or apply for an upcoming training program, visit: https://project-sleep.com/rising-voices/

Please note: this audio was originally recorded in 2020. For up-to-date facts about narcolepsy treatment options: https://project-sleep.com/facts-about-narcolepsy/

Download episode transcription Here

27 Years to Diagnosis: Dr. Mindi Mckenna's Story With Narcolepsy - Rising Voices Ep. 4

Project Sleep — Mon, 07 Aug 2023 04:28:46 +0000

Dr. Mindi McKenna is a retired grandmother of five, with a third-degree Black Belt in Tae Kwon Do, living in Kansas City. She has been living with narcolepsy type 2 for over 25 years and shares her story because she hopes to help accelerate diagnosis and improve treatment for this often misunderstood condition. As a speaker with Project Sleep’s Rising Voices program, she will help us all understand what it can be like to be diagnosed with and live with this serious sleep disorder.

The Rising Voices Series features a variety of first-hand stories from people living with sleep disorders around the world. At Project Sleep, we believe in the power of storytelling to raise awareness and break down stigma. This is why we train people with sleep disorders on how to share their stories through the Rising Voices training program. To request a Rising Voices speaker for your conference or apply for an upcoming training program, visit: https://project-sleep.com/rising-voices/

Please note: this audio was originally recorded in 2020. For up-to-date facts about narcolepsy treatment options: https://project-sleep.com/facts-about-narcolepsy/

Download episode transcription Here

College Diagnosis: Katie Mehin’s Story With Narcolepsy - Rising Voices Ep. 3

Project Sleep — Mon, 24 Jul 2023 04:10:00 +0000

Katie Mehin is the Director of Career Services for a public school district in Arizona specializing in Career and Technical Education. Outside of work she enjoys spending time with her husband and two boys. Entering her sophomore year of college, she was diagnosed with narcolepsy and cataplexy, almost 5 years after the initial onset of symptoms. Katie hopes to spread awareness of this neurological sleep disorder in an effort to help others in obtaining a more timely diagnosis.

The Rising Voices Series features a variety of first-hand stories from people living with sleep disorders around the world. At Project Sleep, we believe in the power of storytelling to raise awareness and break down stigma. This is why we train people with sleep disorders on how to share their stories through the Rising Voices training program. To request a Rising Voices speaker for your conference or apply for an upcoming training program, visit: https://project-sleep.com/rising-voices/

Please note: this audio was originally recorded in 2020. For up-to-date facts about narcolepsy treatment options: https://project-sleep.com/facts-about-narcolepsy/

Download episode transcription Here

Retired Lawyer & Fisherman: Bob Cloud’s Story With Narcolepsy - Rising Voices Ep. 2

Project Sleep — Tue, 18 Jul 2023 04:58:03 +0000

Bob Cloud is a retired lawyer from Ohio, now living in Northern Vermont. He married an Indiana girl, with whom he has two children. Bob practiced family, criminal, and general law for 30 years, during which time he learned to live with narcolepsy. His excessive sleepiness, cataplexy, and related symptoms appeared at age 33, during Bob’s first year of night law school. Now, many years later, and as a Rising Voices speaker, Bob is happy to share his journey in which supportive family, creative doctors and pharmaceutical providers, and understanding friends stood by him as a husband, father, lawyer, patient, and occasional fisherman with narcolepsy.

The Rising Voices Series features a variety of first-hand stories from people living with sleep disorders around the world. At Project Sleep, we believe in the power of storytelling to raise awareness and break down stigma. This is why we train people with sleep disorders on how to share their stories through the Rising Voices training program. To request a Rising Voices speaker for your conference or apply for an upcoming training program, visit: https://project-sleep.com/rising-voices/

Please note: this audio was originally recorded in 2020. For up-to-date facts about narcolepsy treatment options: https://project-sleep.com/facts-about-narcolepsy/

Download episdoe transcription Here

Epilepsy Misdiagnosis: Sheila Coutts' Story With Narcolepsy - Rising Voices Ep. 1

Project Sleep — Mon, 10 Jul 2023 04:15:00 +0000

Sheila Coutts is a retired pediatric nurse with an interest in health education and wildlife rehabilitation living in Nova Scotia, Canada. She was diagnosed with narcolepsy after 25 years of symptoms. As a trained Rising Voices speaker, she shares her story to educate others and help bring sleep disorders to the mainstream of society and medicine.

The Rising Voices Series features a variety of first-hand stories from people living with sleep disorders around the world. At Project Sleep, we believe in the power of storytelling to raise awareness and break down stigma. This is why we train people with sleep disorders on how to share their stories through the Rising Voices training program. To request a Rising Voices speaker for your conference or apply for an upcoming training program, visit: https://project-sleep.com/rising-voices/

Please note: this audio was originally recorded in 2020. For up-to-date facts about narcolepsy treatment options: https://project-sleep.com/facts-about-narcolepsy/

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Tackling Insomnia with Diane Macedo - Sleep Insights Series Ep. 10

Project Sleep — Mon, 03 Jul 2023 04:15:00 +0000

Emmy Award-winning news anchor and correspondent Diane Macedo struggled with insomnia for years. She decided to attack the problem as a journalist, poring through research and interviewing sleep experts from all over the world to get to the bottom of what really keeps us from sleeping—and the various ways to fix it. Now recovered from insomnia, Macedo shares what she learned in her bestselling book, “The Sleep Fix,” offering readers expert wisdom, cutting edge research, and practical ways to incorporate evidence-based sleep solutions into our busy, everyday lives. This broadcast was originally recorded in March 2023, during the annual Sleep In event. Learn more about the Sleep In here: project-sleep.com/sleepin/

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Narcolepsy, Immunology & Neurology with Dr. Emmanuel Mignot - Sleep Insights Series Ep. 9

Project Sleep — Mon, 15 May 2023 04:15:00 +0000

What are the connections between upper airway infections like the flu, our immune systems, and our brains? In today’s podcast, we're honored to speak with the 2023 Breakthrough Prize winner, Dr. Emmanuel Mignot, Director of the Stanford Center for Sleep Sciences and Medicine. Together, we discuss new advancements in our understanding of narcolepsy type 1 as a likely autoimmune disorder brought on by genetic and environmental factors like certain flu strains. This episode was recorded in April 2020 when the COVID-19 pandemic was still very new, yet this discussion remains timely and important as we continue to learn so much from the fascinating frontiers of immunology and neuroscience.

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Shifting Cultural Perceptions of Sleep with Dr. Michael Grandner - Sleep Insights Series Ep. 8

Project Sleep — Mon, 01 May 2023 04:15:00 +0000

Sleep is often seen as this boring thing that doesn’t get us anywhere. In this podcast, we speak with sleep expert, Dr. Michael Grandner about re-shaping cultural perceptions of sleep, seeing sleep as an investment in our future. We also discuss the importance of winding down at night and cognitive behavioral therapy for insomnia. Dr. Michael Grandner is a licensed clinical psychologist, Director of the Sleep and Health Research Program at the University of Arizona, and Director of the Behavioral Sleep Medicine Clinic at the Banner-University Medical Center in Tucson, AZ. Find Dr. Grander at his website: http://www.michaelgrandner.com/ and on Instagram: https://www.instagram.com/michaelgrandner/ This conversation was originally recorded in March 2020, during Project Sleep’s annual Sleep In to help society make peace with sleep. Learn more: https://project-sleep.com/sleepin/

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Untangling Sleep, Anxiety & Depression with Dr. Shelby Harris - Sleep Insights Series Ep. 7

Project Sleep — Mon, 17 Apr 2023 04:06:00 +0000

How do you know if you have an occasional bad night's sleep or an actual sleep disorder? How do you untangle anxiety, depression, and insomnia? In this episode, we speak with Dr. Shelby Harris, a clinical psychologist, behavioral sleep medicine specialist, and the author of The Women's Guide to Overcoming Insomnia. Dr. Harris's Instagram: https://www.instagram.com/sleepdocshelby/ Dr. Harris's website: https://www.drshelbyharris.com/ This conversation was originally recorded in March 2021, during Project Sleep’s annual Sleep In to help society make peace with sleep. Learn more: https://project-sleep.com/sleepin/

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Why Aren’t Primary Care Doctors Asking About Sleep? - Sleep Insights Series Ep. 6

Project Sleep — Mon, 03 Apr 2023 04:15:00 +0000

Why aren’t primary care doctors asking about sleep? This podcast covers an important but underrated discussion about what work is actually being done to develop better sleep disorder assessments and screening tools so that primary care doctors are better equipped to discuss sleep and more people reach an accurate diagnosis and treatment sooner. Guests include: Dr. Dennis Hwang - Pulmonologist, Primary Investigator for Sleep Vital Sign Study, Kaiser Permanente Sleep Medicine and Department of Research and Evaluation. Dr. Michael Perlis - Associate Professor of Psychiatry; Associate Professor of Nursing; Director of Behavioral Sleep Medicine Program at the University of Pennsylvania. Dr. Andrew Philip - clinical health psychologist and a leader working on healthcare transformation initiatives. He's passionate about integrating care to better address patient and provider needs, and enhancing care for underserved and often undervalued populations. This discussion was originally recorded during Project Sleep’s Sleep Advocacy Forum in October 2021. Learn more: https://project-sleep.com/2021-sleep-advocacy-forum/

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Alida Abdullah's Story with Sleep Apnea - Sleep Insights Series Ep. 5

Project Sleep — Thu, 16 Mar 2023 04:06:00 +0000

If you tell your doctor that you’re tired all the time, would they take you seriously? What if you said you’re snoring? In this podcast, we talk to Alida Abdullah about finding her sleep apnea diagnosis, getting treatment, and what she wishes she’d known earlier in her journey. We also discuss a challenge many of us face: how to balance a busy lifestyle as a mom and teacher while also prioritizing her treatment and sleep. Alida Abdullah is a wife, mother of four, and teacher living in the Atlanta area. She was initially diagnosed with sleep apnea over 10 years ago, but didn’t understand the severity of the disorder until more recently, when she learned of the many other health issues that sleep apnea can cause. Alida is sharing her story to help raise awareness of under-diagnosed but serious sleep conditions like sleep apnea and how they can affect other areas of people’s lives. This discussion was originally recorded in July 2020.

Download episode transcription here.

What’s Light Got to Do with It? with Dr. Till Roenneberg - Sleep Insights Series Ep. 4

Project Sleep — Mon, 06 Mar 2023 05:15:00 +0000

How much light did you get today? In this fascinating episode, we speak with Dr. Till Roenneberg, a Professor of Chronobiology for the Institute of Medical Psychology at Ludwig-Maximilian University in Munich, Germany. Dr. Roenneberg explains how powerful light and darkness are in setting our internal clocks and how industrialization has shifted how we use light. We discuss how variable our internal clocks can be and the importance of figuring out if you’re a lark, owl, dove, or peacock. This discussion was originally recorded as part of Project Sleep's annual Sleep In 2021 event in March 2021. Learn more: https://project-sleep.com/sleepin/

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Your Environment & Sleep Disparities with Dr. Dayna Johnson - Sleep Insights Series Ep. 3

Project Sleep — Fri, 17 Feb 2023 05:15:00 +0000

When talking about creating a healthy sleep environment, we often assume that things like light, temperature, safety, and our sleep schedules are all within our personal control. In this episode, Dr. Dayna Johnson talks about important and under-discussed factors influencing people’s ability to get a good night’s sleep and how policies can shape our individual behaviors, sleep, and overall health. Dr. Dayna Johnson, PhD, is an Assistant Professor of Epidemiology at Rollins School of Public Health at Emory University in Atlanta, Georgia. Dr. Johnson’s research has uncovered much about the social contributors to racial and gender disparities in sleep by assessing the effects of social, household-level and neighborhood-level factors in correlation with insufficient sleep. This discussion was originally recorded as part of Project Sleep's annual Sleep In 2021 event in March 2021. Learn more: https://project-sleep.com/sleepin/

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Sleep, Race, & Health Disparities - Sleep Insights Series Ep. 2

Project Sleep — Mon, 06 Feb 2023 05:12:00 +0000

What is the connection between sleep, race, ethnicity, and health disparities? What is being done to reduce these disparities? In this episode, Dr. Michael Grandner provides an overview of sleep health disparities research. Next, Dr. Carmela Alcántara highlights a community engagement sleep intervention in the Spanish-speaking LatinX population. Dr. Michael Grandner is a licensed clinical psychologist, Director of the Sleep and Health Research Program at the University of Arizona, and Director of the Behavioral Sleep Medicine Clinic at the Banner-University Medical Center in Tucson, AZ. His work focuses on translational sleep research and Behavioral Sleep Medicine. Dr. Carmela Alcántara is an Associate Professor of Social Work at Columbia School of Social Work. She is a clinical psychological scientist with additional expertise in social epidemiology and behavioral medicine. This discussion was recorded in October 2020, during Project Sleep’s Sleep Advocacy Forum. Learn more: project-sleep.com/watch-now-highlights-from-inaugural-sleep-advocacy-forum-2020/

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Teens & Sleep with Dr. Afolabi-Brown - Sleep Insights Series Ep. 1

Project Sleep — Mon, 23 Jan 2023 05:15:00 +0000

If you’ve ever spent time around teenagers, you probably know that many teens are struggling with sleep. In fact, nearly 70 percent of high school students sleep less than the recommended 8-9 hours a night. In this podcast, we talk to Dr. Funke Afolabi-Brown about how we can make sleep cool to teens and their parents too! Dr. Afolabi-Brown is board-certified in pediatric pulmonary medicine and pediatric sleep disorders. As a double board-certified pediatric respiratory sleep medicine physician, Dr. Brown helps her patients breathe better and sleep better. By extension, she helps improve the sleep of their parents. Dr. Brown is a speaker, an educator, a writer, and the founder of Restful Sleep MD and also a member of Project Sleep's Expert Advisory Board. Find her on Instagram: @restfulsleepmd or her website: https://www.restfulsleepmd.com/ This conversation was recorded in March 2022, during Project Sleep’s annual Sleep In event to help society make peace with sleep. Learn more: https://project-sleep.com/sleepin/

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Sleep Paralysis + Hallucinations - Narcolepsy Nerd Alert Series Ep. 16

Project Sleep — Mon, 19 Dec 2022 05:15:00 +0000

With sleep paralysis and hypnagogic and hypnopompic hallucinations, the lines between sleeping and waking can be blurred. In this episode, we talk with three incredible narcolepsy advocates about these underappreciated, often terrifying, and confusing symptoms and how to cope with them.

About Our Guests:

Chelsea Cataldi is a world traveler who enjoys creating things with her hands. She was diagnosed with type 1 narcolepsy with cataplexy in 2010 while living in Japan. As a speaker with Project Sleep’s Rising Voices program, Chelsea raises awareness to combat misperceptions about narcolepsy and let others know they’re not alone.

Kistyn Beecher is a storyteller and news producer from Houston, Texas. She was diagnosed with type 2 narcolepsy without cataplexy at age 24, but lived with symptoms for many years before that. A graduate of Hampton University and Rising Voices speaker, Kristyn works daily to make sure underrepresented voices are heard and their stories shared.

Connor Baker is a CDU nurse working at Rush Copley Medical Center in Aurora, Illinois. He was diagnosed with type 1 narcolepsy with cataplexy at 20 years old. Connor shares his story as a Rising Voices speaker to spread awareness and end stigmas surrounding narcolepsy.

Download the Sleep Paralysis + Hallucinations Toolkit for more Resources: https://project-sleep.com/wp-content/uploads/2023/12/Sleep-Paralysis-and-Hallucinations-Toolkit.pdf

The Narcolepsy Nerd Alert series invites listeners to dive deeper into specific topics relevant to living with narcolepsy. project-sleep.com/narcolepsy-nerd-alert/

Download episode transcription Here

Narcolepsy at Work - Narcolepsy Nerd Alert Series Ep. 15

Project Sleep — Mon, 31 Oct 2022 04:15:00 +0000

Navigating the workplace with narcolepsy can be intimidating. When should you bring up narcolepsy? What kinds of work accommodations are helpful and also reasonable to ask for? In this episode, we bring together a wonderful panel to discuss working in a variety of settings while living with narcolepsy. About Our Guests: Tre Burge is a proud Iowa native and paraprofessional working with elementary school students with disabilities. He was diagnosed with narcolepsy type 1 at age 18, and is a trained speaker with Rising Voices. Lindsey Kizer is from Belmont, NC and leads her workplace’s Chronic Illness and Disabilities employee group. She was diagnosed with narcolepsy type 1 at 29 and is a trained speaker with Rising Voices. Nicole Zamary is a Human Resources professional at the University of West Florida. She was diagnosed with narcolepsy type 2 at the age of 44, and is a trained speaker with Rising Voices. Download the Narcolepsy at Work Toolkit for More Resources: https://project-sleep.com/wp-content/uploads/2023/03/Narcolepsy-at-Work-Toolkit.pdf The Narcolepsy Nerd Alert series invites listeners to dive deeper into specific topics relevant to living with narcolepsy. project-sleep.com/narcolepsy-nerd-alert/

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Types of Narcolepsy - Narcolepsy Nerd Alert Series Ep. 14

Project Sleep — Mon, 24 Oct 2022 04:16:00 +0000

What distinguishes narcolepsy type 1, type 2, and idiopathic hypersomnia? Can your diagnosis change? In this episode, we speak with Dr. Chad Ruoff about the latest research and perspectives on this topic.

About Our Guest:

Chad Ruoff, M.D., is an internal medicine physician specializing in sleep medicine. He is active in research and education and has authored numerous publications in sleep medicine on topics including sleep apnea and narcolepsy.

The Narcolepsy Nerd Alert series invites listeners to dive deeper into specific topics relevant to living with narcolepsy. project-sleep.com/narcolepsy-nerd-alert/

Download the Narrating Narcolepsy Toolkit for more resources:bit.ly/types-of-narcolepsy-toolkit

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Narrating Narcolepsy - Narcolepsy Nerd Alert Series Ep. 13

Project Sleep — Mon, 10 Oct 2022 04:15:00 +0000

Storytelling is so powerful. In this episode, we speak with two amazing fellow authors who wrote books about narcolepsy, Claire Crisp and Henry Nicholls. Together, we share some behind-the-scenes stories and tips for aspiring writers.

About Our Guests:

Claire Crisp is an award-winning author of Waking Mathilda—A Memoir of Childhood Narcolepsy which charts her family’s heart-wrenching journey to find an accurate diagnosis and then move from the UK to the USA in search of life changing treatment for their youngest child, Mathilda.

HenryNicholls is a teacher, science journalist, and author, and his book Sleepyhead: The Neuroscience Of A Good Night’s Rest explores the neuroscience of sleep and the impact sleep disorders have on physical and mental health.

And of course, your host, Julie Flygare, author of Wide Awake and Dreaming: A Memoir of Narcolepsy which tracks Julie’s journey developing and adjusting to narcolepsy in her early twenties while in law school, from collapsing to the ground to the start line of the Boston Marathon.

Book Links:

Waking Mathilda—A Memoir of Childhood Narcolepsy: https://www.amazon.com/Waking-Mathilda-Memoir-Childhood-Narcolepsy-ebook/dp/B06W584QT6/ref=sr_1_1?crid=MBLAJKFC3P31

Sleepyhead: The Neuroscience Of A Good Night’s Rest: https://www.amazon.com/Sleepyhead-Neuroscience-Good-Nights-Rest/dp/1541672577/

Wide Awake and Dreaming: A Memoir of Narcolepsy: https://www.amazon.com/Wide-Awake-Dreaming-Memoir-Narcolepsy/dp/0988314908

Download the Narrating Narcolepsy Toolkit for more resources: bit.ly/narrating-narcolepsy-toolkit

The Narcolepsy Nerd Alert series invites listeners to dive deeper into specific topics relevant to living with narcolepsy. project-sleep.com/narcolepsy-nerd-alert/

Download episode transcription Here.

Health Insurance 101 - Narcolepsy Nerd Alert Series Ep. 12

Project Sleep — Mon, 03 Oct 2022 04:14:00 +0000

If you’ve ever felt like navigating health insurance is a full-time job, you’re not alone. Today, we speak to Megan Donnell about healthcare coverage and resources. About Our Guest: Megan Donnell is a passionate advocate for those living with rare disorders and also has over 20 years of professional experience working in the healthcare and insurance benefits industry. Megan has two children in college, one of whom is living with idiopathic hypersomnia. Download the Health Insurance 101 Toolkit for more resources: bit.ly/health-insurance-toolkit The Narcolepsy Nerd Alert series invites listeners to dive deeper into specific topics relevant to living with narcolepsy. project-sleep.com/narcolepsy-nerd-alert/

Download episode transcription Here.

Pregnancy + Narcolepsy - Narcolepsy Nerd Alert Series Ep. 11

Project Sleep — Mon, 26 Sep 2022 04:18:00 +0000

If you’re interested in starting a family while living with narcolepsy, this podcast is for you. How might you manage medications or symptoms during pregnancy? What about adoption as an option? We brought together an incredible panel with so much real-life experience and insights, including people with narcolepsy who have walked this journey and an amazing clinician, Dr. Anne Marie Morse, to discuss and share.

About Our Guests:

DianaAnderson lives with narcolepsy type two and is the mother of a 4-year-old son. She also works full-time in physician assistant education.

Emily Barker, PhD is a scientist living with narcolepsy with cataplexy and is the mom of three boys. Emily is also a co-facilitator for the Wake Up Narcolepsy Pregnancy and Parenting peer support group.

Ashley Nutter, MEd is the mother of three children and a person living with narcolepsy with cataplexy. Ashley also has a Masters in Education Community Agency Counseling.

Katie Williamsen is a mom to one daughter and a web designer living with narcolepsy with cataplexy.

Michelle Zagardo is a photographer and teacher living with narcolepsy with cataplexy and the mother of a 6 month old daughter.

Dr. Anne Marie Morse, DO is a board-certified and fellowship-trained pediatric neurologist specializing in sleep medicine at Geisinger Health System in Pennsylvania.

Download the Pregnancy + Narcolepsy Toolkit for more resources: bit.ly/pregnancy-narcolepsy-toolkit.

The Narcolepsy Nerd Alert series invites listeners to dive deeper into specific topics relevant to living with narcolepsy. project-sleep.com/narcolepsy-nerd-alert/

Download episode transcription Here.

Narcolepsy Around the World - Narcolepsy Nerd Alert Series Ep. 10

Project Sleep — Mon, 19 Sep 2022 04:15:00 +0000

Every year, we raise awareness and celebrate our international community on World Narcolepsy Day, Sept. 22nd. In this episode, you’ll hear incredible stories from people living with narcolepsy in China, Australia, Poland, Germany, Israel, Angola, and Brazil. You’ll find that our experiences are more similar than we imagined. We may be spread out over many continents and time zones, but we are connected in very profound ways around the world.

Download the Narcolepsy Around the World Toolkit for more resources: bit.ly/narcolepsy-around-the-world-toolkit

The Narcolepsy Nerd Alert series invites listeners to dive deeper into specific topics relevant to living with narcolepsy. project-sleep.com/narcolepsy-nerd-alert/

Download episode transcription Here.

Science of Narcolepsy - Narcolepsy Nerd Alert Series Ep. 9

Project Sleep — Mon, 12 Sep 2022 04:15:00 +0000

We’re joined by renowned narcolepsy expert, Dr. Thomas Scammell to answer all your questions about the science of narcolepsy. What causes narcolepsy? Is it genetic or are there environmental factors? What are orexins or hypocretin? And how does losing these neurotransmitters impair the wake-promoting systems? About Our Guest: Dr. Thomas Scammell is a Professor in Neurology at Harvard Medical School, Beth Israel Deaconess Medical Center, and Boston Children’s Hospital. He has published over 150 journal articles and chapters and lectured around the world on narcolepsy and the neurobiology of sleep and wakefulness. Download the Science of Narcolepsy Toolkit for more resources: bit.ly/science-of-narcolepsy-toolkit The Narcolepsy Nerd Alert series invites listeners to dive deeper into specific topics relevant to living with narcolepsy. project-sleep.com/narcolepsy-nerd-alert/

Download episode transcription Here.

Navigating School with Narcolepsy - Narcolepsy Nerd Alert Series Ep. 8

Project Sleep — Mon, 05 Sep 2022 04:15:00 +0000

Students with sleep disorders have the right to an equitable education, but how do you work with your school and doctor to get accommodations? And what accommodations should you ask for? We're joined by two amazing women and Jack & Julie Narcolepsy Scholarships recipients, Kenya Gradnigo and Danielle Brooks, to discuss navigating school with narcolepsy. About Our Guests: Danielle Brooks was diagnosed with type 1 narcolepsy with cataplexy during her freshman year of high school. Danielle recently graduated with a Master of Science in communication sciences and disorders, and is now working as a school speech language pathologist. Kenya Gradnigo was diagnosed with type 1 narcolepsy with cataplexy when she was eight years old. Kenya recently secured her Master of Social Work degree and is now working in the mental health social work space. She’s also a member of Project Sleep’s board of directors. Download the Navigating School with Narcolepsy Toolkit for more resources: bit.ly/navigating-school-toolkit The Narcolepsy Nerd Alert series invites listeners to dive deeper into specific topics relevant to living with narcolepsy. project-sleep.com/narcolepsy-nerd-alert/

Download episode transcription Here.

Napping + Narcolepsy - Narcolepsy Nerd Alert Series Ep. 7

Project Sleep — Mon, 29 Aug 2022 04:15:00 +0000

Is napping an unwelcome symptom of narcolepsy or a helpful treatment? In today’s episode, we speak with Dr. Luis Ortiz and Mary Murray about how we make space for naps in our busy daytime lives, especially in a culture where sleeping is laziness or weakness. About our Guests: Luis E. Ortiz, MD is a pediatric sleep specialist at Johns Hopkins All Children’s Hospital in St. Petersburg, Florida. Living with narcolepsy himself, Dr. Ortiz offers invaluable insights from both a medical perspective and first-hand lived experience. Mary Murray is a teacher and mother living with idiopathic hypersomnia in Los Angeles, CA. Mary is also a Rising Voices of Narcolepsy advocate and her powerful essay “Nap Roulette” is published on Project Sleep’s website. Download the Napping + Narcolepsy Toolkit for more resources: bit.ly/napping-narcolepsy-toolkit The Narcolepsy Nerd Alert series invites listeners to dive deeper into specific topics relevant to living with narcolepsy. project-sleep.com/narcolepsy-nerd-alert/

Download episode transcription Here.

Narcolepsy Goes to Hollywood - Narcolepsy Nerd Alert Series Ep. 6

Project Sleep — Mon, 22 Aug 2022 04:15:00 +0000

In this episode, we take a closer look at Hollywood’s portrayals of narcolepsy to better understand why they matter and how we can play a role in shaping future portrayals of narcolepsy in the entertainment industry. We are joined by Al Jean, the Executive Producer and head writer for The Simpsons, and Anna Marr, a Los Angeles-based actor, writer, and voiceover artist originally from Ohio.

About our Guests:

AL Jean has been working on The Simpsons for 32 years and has received nine Emmy awards and two Peabody Awards for his work on the show. He developed Season 27, Episode 1 of The Simpsons, when Homer Simpson is diagnosed with narcolepsy.

Anna Marr is the co-founder of Bluelaces Theater, a nonprofit organization that creates interactive multi-sensory theater for individuals with developmental disabilities. Anna developed a dark comedy short film called "Walking Through Peanut Butter" based on her experience navigating New York's comedy scene with narcolepsy. She is also a Rising Voices of Narcolepsy advocate who aims to change how the media represents this chronic neurological disorder.

Download the Narcolepsy Goes to Hollywood Toolkit for more resources: bit.ly/narcolepsy-goes-to-hollywood-toolkit

The Narcolepsy Nerd Alert series invites listeners to dive deeper into specific topics relevant to living with narcolepsy. project-sleep.com/narcolepsy-nerd-alert/

Download episode transcription Here.

Friends + Family + Narcolepsy - Narcolepsy Nerd Alert Series Ep. 5

Project Sleep — Mon, 15 Aug 2022 04:15:00 +0000

How can I get my friends and family to understand narcolepsy? It can be hard to know how to explain narcolepsy and ask for help. And even the most thoughtful friends and family members may not be sure how best to support the person with narcolepsy’s experience. We’ve enlisted two amazing narcolepsy advocates and dear friends, Lauren Thomas and Anne Taylor, to discuss this important topic.

About Our Guests:

Lauren Thomas is a person living with narcolepsy with cataplexy. She was diagnosed in 2019 after a long journey with misdiagnosed sleepiness.

Anne Taylor is a nurse and mother of a daughter living with narcolepsy. Anne also serves on the Board of Directors for Project Sleep.

Download the Friends + Family + Narcolepsy Toolkit for more resources: bit.ly/friends-family-narcolepsy-toolkit

The Narcolepsy Nerd Alert series invites listeners to dive deeper into specific topics relevant to living with narcolepsy. project-sleep.com/narcolepsy-nerd-alert/

Download episode transcription Here.

Narcolepsy & Brain Fog - Narcolepsy Nerd Alert Series Ep. 4

Project Sleep — Mon, 08 Aug 2022 04:10:00 +0000

Is brain fog a symptom of narcolepsy? In this episode, we talk with pediatric sleep neurology expert, Dr. Kiran Maski and Rising Voices trained speaker, Shannon Burkoth about some more invisible and under-recognized aspects of living with narcolepsy, including Brain Fog or Mental Fogginess, Automatic Behavior, Micro-sleeps, and Mood Instability. We also discuss current research and tips for managing and communicating about Brain Fog.

About Our Guests:

Shannon Burkoth was diagnosed with Narcolepsy Type 1 in 2010. She has been a trained speaker with the Rising Voices program since 2017, and advocates for both narcolepsy and rare disease.

Dr. Kiran Maski is a sleep medicine physician at Boston Children's Hospital specializing in narcolepsy and sleep problems of children. She is also a sleep researcher, and her work on improving the diagnosis of narcolepsy has been published in SLEEP, the official journal of the Sleep Research Society.

Download the Narcolepsy & Brain Fog Toolkit for more resources: bit.ly/brain-fog-toolkit

The Narcolepsy Nerd Alert series invites listeners to dive deeper into specific topics relevant to living with narcolepsy. https://project-sleep.com/narcolepsy-nerd-alert/

Download episode transcription Here.

Becoming a Narcolepsy Advocate - Narcolepsy Nerd Alert Series Ep. 3

Project Sleep — Mon, 01 Aug 2022 04:15:00 +0000

So you’d like to advocate for narcolepsy, but aren’t sure where to start? In this episode, we are joined by two incredible narcolepsy advocates, Ana E. Lara and Matthew Horsnell. Together, we talk about the power of YOUR story and break down narcolepsy advocacy into three categories: self-advocacy, raising your voice publicly, and legislative advocacy.

Ana E. Lara is a poet and stay-at-home mom who is passionate about writing. She is a person with narcolepsy, who advocates for sleep health and serves on the board of directors for Project Sleep.

Matthew Horsnell is a father of three and science nerd living with type 1 narcolepsy with cataplexy. He is a Rising Voices of Narcolepsy trained speaker and a facilitator for Wake Up Narcolepsy online small groups.

Download the Becoming a Narcolepsy Advocate Toolkit for more resources: https://bit.ly/becoming-a-narcolepsy-advocate

The Narcolepsy Nerd Alert series invites listeners to dive deeper into specific topics relevant to living with narcolepsy. https://project-sleep.com/narcolepsy-nerd-alert/

Download episode trasncription Here.

New + Upcoming Narcolepsy Treatments - Narcolepsy Nerd Alert Series Ep. 2

Project Sleep — Mon, 25 Jul 2022 11:30:00 +0000

It’s no secret that the prospect of novel narcolepsy treatment options gives hope to many people living with narcolepsy. In this episode, we speak with Dr. Anne Marie Morse to discuss current treatment options, what’s on the horizon in drug development, and how people with narcolepsy can get involved by participating in clinical trials.

About Our Guest:

Dr. Anne Marie Morse is a board-certified and fellowship-trained pediatric neurologist specializing in sleep medicine at Geisinger Health System in Pennsylvania. She is certified by the American Board of Psychiatry and Neurology in neurology with special qualification in child neurology.

Download the New + Upcoming Narcolepsy Treatments Toolkit for more resources: bit.ly/new-upcoming-narcolepsy-treatments

The Narcolepsy Nerd Alert series invites listeners to dive deeper into specific topics relevant to living with narcolepsy. https://project-sleep.com/narcolepsy-nerd-alert/

Download Episode Transcription Here.

Narcolepsy Roadmap - Narcolepsy Nerd Alert Series Ep. 1

Project Sleep — Sat, 16 Jul 2022 07:57:00 +0000

Navigating narcolepsy doesn’t come with a roadmap, but it should. What do you wish you’d known at diagnosis? In this episode, we break down the narcolepsy journey into the medical experience, social experience and internal experience.

Download the Narcolepsy Roadmap Toolkit: https://bit.ly/narcolepsy-roadmap-toolkit

The Narcolepsy Nerd Alert series invites listeners to dive deeper into specific topics relevant to living with narcolepsy. https://project-sleep.com/narcolepsy-nerd-alert/

Download Trascription here.