The POTScast

Diaries with Amy on horses, family fun, and spending over half her life with POTS

Standing Up to POTS, Inc. — Sun, 10 May 2026 08:12:00 +0000

Amy is a mom and equestrian from North Carolina who has now spent over half her life with POTS. In this episode she shares how she finished high school (early), has enjoyed horses throughout periods of being able to ride or not being able to ride, her favorite POTSy activities, her TikTok videos (see them on TikTok at @amymarieeee00), her favorite quick meal, and so much more.

If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Find out more about Standing Up to POTS! Check us out on our
Website: www.standinguptopots.org
Facebook: https://www.facebook.com/standinguptopots/
Instagram: https://www.instagram.com/standinguptopots/
Twitter: https://twitter.com/POTSActivist
Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/

Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

Dr. Sally Daganzo on eating disorders, physical drivers of mental health and more

Standing Up to POTS, Inc. — Sat, 02 May 2026 13:07:00 +0000

Dr. Sally Daganzo is a board-certified internal medicine physician with advanced training in psychiatry, eating disorders and functional medicine. She has a private practice in San Rafael California and also offers telemedicine in several states. In this episode she discusses her approach to treating complex patients, the mental-physical health intersection, eating disorders and what made her decide to start her own clinic, whose website is https://www.sallydaganzomd.com/

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Elli (from ep 65) on new diagnoses and MALS surgery

Standing Up to POTS, Inc. — Sat, 25 Apr 2026 12:44:00 +0000

Elli from episode 65 is back to share what she wishes she'd known sooner after her 2-year ordeal that eventually resulted in several new diagnoses and surgery for MALS (median arcuate ligament syndrome). You can find Elli on most social media at potsie.life.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

The Long COVID Treatment Guide with Jen Curtin, MD and Charlie McCone

Standing Up to POTS, Inc. — Sun, 19 Apr 2026 12:10:00 +0000

Dr. Jen Curtin is the Medical Director and Co-founder of RTHM Clinic, which specializes in complex chronic conditions via their clinic, telemedicine services, Intelligence platform, medication access program and other innovative services. She is also a former complex chronic illness patient herself.

Charlie McCone is a San Francisco based Long Covid patient advocate and non-profit professional with a background in marketing, communications, fundraising, and organizing. He has worked in the fields of HIV/AIDS, environmental and urban planning, and political campaigns. He is a member of the Patient-Led Research Collaborative and his Long Covid advocacy efforts have been featured in the Washington Post, The Atlantic, TIME and PBS. He has also written pieces featured in The Guardian, San Francisco Chronicle, and STAT News.

Together their teams have brought us the Long COVID Treatment Guide, which summarizes efficacy findings on 18 drugs, 5 supplements, 4 lifestyle approaches and 2 Medical procedures that were studied by the Harvard/Stanford TREATME project, patient surveys or other studies of treatments for Long COVID. The idea behind the Guide is to facilitate conversations between patients and practitioners about pototential Long COVID treatments, while we wait for larger, more robust studies to come. Dr. Curtin and Charlie also give updates on other exciting projects in the works at their organizations.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Aryn on athletics, adapting and advocating for oneself

Standing Up to POTS, Inc. — Tue, 14 Apr 2026 19:16:00 +0000

Aryn was a serious college athlete when her POTS developed, and in this episode she shares how she has adapted and how despite having world class cardiology care for her symptoms, her diagnosis would have been missed if it hadn't been for another POTS patient recognizing her symptoms and then Aryn's specifically asking for a tilt table test.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Attorney Krysti Monaco on winning children's social security benefits

Standing Up to POTS, Inc. — Tue, 07 Apr 2026 14:34:00 +0000

Krysti Monaco helps families apply for disability benefits when their children are too disabled to work. In this episode she describes the available programs, application process, challenges, pitfalls, important deadlines and more. Krysti's law firm offers free consultations, daily YouTube videos, a free podcast and their website is here.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Cell membrane health with Dr. Melanie Stein on Mast Cell Matters with Dr. Tania Dempsey

Standing Up to POTS, Inc. — Wed, 01 Apr 2026 00:24:00 +0000

Dr. Melanie Stein, ND is a licensed Naturopathic Physician in Portland, Oregon and a recognized leader in Cell Membrane Therapy for the treatment of complex and chronic illness. She specializes in restoring health at the cellular level—repairing and revitalizing cell membranes to improve energy production, enhance detoxification, and restore healthy communication between cells.

In this episode, she and Dr. Dempsey discuss why cell membrane health is relevant to MCAS and many other chronic illnesses, testing and treatment approaches, their favorite in-office treatments, diet considerations and much more.

Dr. Stein's clinic's website is here.

Dr. Stein's book, Breaking Through Chronic Illness, is here on Amazon.

Dr. Tania Dempsey's website is here.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Elizabeth on her comeback and book: The Toll it Took

Standing Up to POTS, Inc. — Sun, 22 Mar 2026 13:48:00 +0000

Elizabeth was a teen athlete when she first became bed bound with POTS and several other conditions including narcolepsy, epilepsy and gastroparesis. After 5 years of struggling to be heard or helped, and wondering if the struggle was worth it, she is now back in school, working full time, and becoming the kind of healthcare professional she wishes she'd had. AND she has written a book -- The Toll it Took -- about her experiences! Her advice: "Even if you don't feel like it, keep going."

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Excessive sleep, fatigue and insomnia in POTS WITH Dr. Kirti Sivakoti

Standing Up to POTS, Inc. — Tue, 17 Mar 2026 23:18:00 +0000

Pediatric dysautonomia expert Dr. Kirti Sivakoti, MD, is a pediatrician specializing in complex chronic illness, Associate Professor of Pediatrics at University of Utah, and Associate Medical Director of the Pain and Autonomic Symptoms Evaluation (PAUSE) Program at Primary Children's Center. In this episode she discusses sleep issues commonly seen in POTS, such as excessive fatigue, sleepiness, hypersomnia, insomnia, and interesting findings seen in sleep studies of POTS patients. Dr. Sivakoti explains what can be tried at home (e.g., lifestyle strategies), medications that may help, and when a sleep study may be warranted. As always, Dr. Sivakoti is a wealth of information and compassion.

The mentioned review of sleep disorders in POTS (Miglis and Barwick, 2018) is here.

More information about Dr. Sivakoti and her practice is here.

Julie on the lengths she had to go to for recovery

Standing Up to POTS, Inc. — Sat, 07 Mar 2026 15:21:00 +0000

Julie's recovery from POTS and other serious conditions involved an epic tale of sheer determination, next-level advocacy, some unconventional treatments (which we are not endorsing: talk to YOUR doctor about what is right for you), a lot of internet research, traveling across the country to see a doctor with availability, and even winning a related lawsuit in the meantime. She discusses how she ultimately got treatment with 4 stents for her venous compressions, and how that has made a big difference.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Dr. Dempsey’s cutting edge treatments (part 2) - Mast Cell Matters

Standing Up to POTS, Inc. — Sun, 01 Mar 2026 22:07:00 +0000

Dr. Dempsey is always looking for new therapies that may help her complex patients. In this episode Dr. Dempsey discusses how she incorporates treatments with Methylene Blue, peptides, and the Nanovi breathing device. For each one she explains what it is, how it works, the risks and benefits, who is a good candidate, and more.

More information about Dr. Tania Dempsey and her clinic can be found at https://drtaniadempsey.com/.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Maggie on being both patient and Mental Health Therapist

Standing Up to POTS, Inc. — Wed, 25 Feb 2026 01:33:00 +0000

Maggie was 14 when she started passing out regularly, and she still does occasionally, but that didn't stop her from getting back to school, completing graduate work and becoming a Mental Health Therapist. Maggie shares how she helps others with invisible chronic illness and strategies she uses herself. Maggie also shares some statistics about living with disabilities and a recipe for cooking octopus! Maggie's website is here.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

The Dysautonomia Workbook with Joanna Behm, EDD OTR/L and Madison Thornton, OTD OTR/L

Standing Up to POTS, Inc. — Tue, 17 Feb 2026 16:32:00 +0000

Joanna Behm, EDD OTR/L and Madison Thornton, OTD, OTR/L are experts in occupational therapy (OT) as therapists, dysautonomia patients, and Joanna is even a professor of OT. Together they created a workbook that first shares the latest evidence and then leads readers through a series of worksheets and questions to help them find their best OT-based solutions and routines for living better with dysautonomia and related challenges. In this episode they explain occupational therapy, the workbook, and share many examples of how patients can get the most from it, and from an OT mindset in general.

The Dysautonomia Workbook is available here, and other handbooks and handouts created by Joanna and her team are available here.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Dr. Casey Kelley on Mast Cell Matters

Standing Up to POTS, Inc. — Tue, 10 Feb 2026 15:38:00 +0000

Dr. Casey Kelley is Board Certified in family and integrative medicine, teaches on the faculty of the Northwestern Medical School, and her care is informed by her own past experience having complex chronic invisible illness. Now she treats some of the very toughest cases, including Lyme, POTS, PANS/PANDAS, MCAS and more. In this episode she and Dr. Dempsey discuss cutting-edge treatment approaches for these conditions in pediatric patients, and we highly recommend this episode for anyone wanting to hear the latest thinking in treatments for these young patients. Dr. Kelley's website is here.

Dr. Dempsey's website is here.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Sophie on life after severe COVID

Standing Up to POTS, Inc. — Tue, 03 Feb 2026 15:49:00 +0000

Surviving severe COVID was just beginning of Sophie's health adventure. She discusses her unexpected COVID-related medical challenges, new job and living situation, the stenting procedure that helped (but not as much as hoped), how she has adjusted to her new situation and how it all has made her even better at her work in healthcare.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Attorney Nancy Cavey on disability benefits for POTS/dysautonomia

Standing Up to POTS, Inc. — Tue, 27 Jan 2026 15:33:00 +0000

Attorney Nancy Cavey has spent 39 years representing people with disabilities all over the U.S., and is an expert in helping people qualify based on POTS, MCAS, hEDS and other invisible illness. In this episode she describes the process, how to maximize your chances of success, common pitfalls, important deadlines and more. We will have a part 2 with Nancy's colleague in a few weeks, to address disability benefits for people under age 18. Nancy's book about disability benefits for POTS is here. Nancy's website is here.

Nancy has also written the following free e-books about:

Long-Term Disability Books

Social Security Disability Books

Your Rights to Social Security Disability

Medical Booklets / Pamphlets

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Singer-songwriter Nellie Clay on “the hangover without the party”

Standing Up to POTS, Inc. — Tue, 20 Jan 2026 11:46:00 +0000

Western folk singer-songwriter Nellie has recorded multiple albums and EPs, toured nationally from Alaska to Nashville, appeared on PBS’s Songs at the Center, opened for Grammy-nominated artists, and become a beloved regular at the Woody Guthrie Folk Festival. Most recently, she was profiled in Forbes for her life as an artist living with postural orthostatic tachycardia syndrome, bringing huge mainstream attention to POTS in the process. In this episode she shares her thoughts, experiences and wisdom on living with POTS, adjusting to major life changes, staying strong, redefining oneself and much more.

Nellie's article in Forbes is here.

Nellie's "Freedom Song" music video is here.

Nellie's music is available for purchase here.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Zac Spiritos, MD, MPH on neurogastroenterology with Dr. Tania Dempsey on Mast Cell Matters

Standing Up to POTS, Inc. — Tue, 13 Jan 2026 17:20:00 +0000

Dr. Spiritos is double board certified in gastroenterologist and internal medicine, and specializes in IBS, gut motility, POTS and the complex conditions and symptoms that go along with it. He and Dr. Dempsey discuss IBS, parasites, SIBO, CD117 staining, GLP-1 drugs for MCAS, his treatment approach, some promising news on the awareness front, and much more.

Dr. Spiritos's website is here

Dr. Dempsey's website is here

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Vascular surgeons Robert Hacker and Deena Chihade on venous compressions, stenting, and POTS

Standing Up to POTS, Inc. — Sun, 04 Jan 2026 13:13:00 +0000

Vascular surgeons Dr. Robert Hacker and Dr. Deena Chihade share their unusual path to POTS via looking at the venous system, and explain what they are seeing in patients before and after addressing venous compression syndromes such as May Thurner Syndrome and Nutcracker Syndrome. Dr. Hacker estimates that venous obstructions may play a role in more POTS patients than previously thought, and Dr. Chihade shares the research study she presented at the Dysautonomia International poster session. Both doctors explain how their clinic tests and treats patients for potential compressions and what the stenting procedure is like. Their website is https://stlvascular.com/.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Genetic collagen disorders and vascular issues with Heather Perne, NP-C, CWS

Standing Up to POTS, Inc. — Tue, 30 Dec 2025 20:09:00 +0000

Heather is a Nurse Practioner with long experience in vascular medicine, a dysautonomia patient herself, and is now working with a vascular clinic in Toledo, OH to bring genetic testing and counseling services to patients with suspected genetic connective tissue disorders, such as vascular EDS, Loeys-Dietz Syndrome, Marfan Syndrome and more. She also sees patients with vascular compressions, pelvic venous disease, venous insufficiency and more. In this episode she shares her professional and personal insights from the lens of vascular and genetic medicine. Questions can be emailed to Heather at heather.perne@promedica.org. No referral is needed unless the patient's insurance requires it.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Sarah from FL on life after COVID/POTS/MCAS

Standing Up to POTS, Inc. — Sun, 21 Dec 2025 13:58:00 +0000

Sarah loved her life as a busy mom an accomplished professional dog groomer, but after COVID left her with new symptoms suggestive of the 'Trifecta' (POTS, MCAS, hEDS) she is needing to make a new game plan....one that doesn't involve so many hours of standing and triggering fragrances. In this episode she discusses what she went through to get a diagnosis and how -- with the help of supportive family -- she is working through the challenges to design a new lifestyle.

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you love The POTScast and would like to help defray the costs associated with creating these episodes, please donate at: https://www.standinguptopots.org/donate

Dr. Dempsey on leading edge treatments she is finding helpful

Standing Up to POTS, Inc. — Mon, 15 Dec 2025 01:18:00 +0000

One of the most common questions we get from listeners is about the novel treatments that Dr. Dempsey mentions, such as therapeutic plasmapheresis exchange (or apheresis), SOT, ozone therapy, UV light blood irradiation and more. In this episode she discusses each treatment: What it is, how it works, the risks and benefits, who is a good candidate, and more.

More information about Dr. Tania Dempsey and her clinic can be found at https://drtaniadempsey.com/.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

New (free) AI intelligence platform for patients with Dr. Jen Curtin

Standing Up to POTS, Inc. — Tue, 09 Dec 2025 18:35:00 +0000

Dr. Jennifer Curtin is Medical Director of the RTHM clinic and former complex chronic illness patient herself, after having ME/CFS while in medical school. Now her team has created the RTHM intelligence platform which uses HIPAA-compliant artificial intelligence and other technology to provide guidance and care for people with Long COVID, ME/CFS, MCAS, POTS, hEDS and related conditions. In this episode she discusses the features, purpose, possibilities and how this free platform can help improve access to answers, insights, testing and treatment for patients with these complex conditions. if you would like to try the platform, it is free and can be found here.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Find out more about Standimg Up to POTS! Check us out on our
Website: www.standinguptopots.org
Facebook: https://www.facebook.com/standinguptopots/
Instagram: https://www.instagram.com/standinguptopots/
Twitter: https://twitter.com/POTSActivist
Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/

Jace on health policy, why “being a burden is a blessing”, and much more

Standing Up to POTS, Inc. — Tue, 02 Dec 2025 17:15:00 +0000

Jace had hEDS and POTS for years before it was diagnosed and then had to wait MORE years to start getting any treatment, but in the meantime graduated college, got an advanced degree, worked on state and federal health policy, made art and much more. Hear Jace's advice and words of wisdom as someone who has expertise when it comes to ADA and accommodations.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Progress for the COVID vaccine injured with REACT19 Co-Chairman Brianne Dressen

Standing Up to POTS, Inc. — Tue, 25 Nov 2025 14:08:00 +0000

Brianne Dressen co-founded REACT19 to help support people with life-altering COVID-19 vaccine injuries after being injured herself in one of the original clinical trials, and then learning the hard way that little was available in terms of answers, research, treatments or support. Now she oversees the science-based non-profit React19, which has created a provider network, support groups, research collaborations, lobbying efforts, and a grant program to help pay for medical bills of injured patients.

The mentioned Yale studies are:

1. Comparative Analysis of Long COVID and Post-Vaccination Syndrome: A Cross-Sectional Study of Clinica Symptoms and Machine Learning-Based Differentiation

2. Immunological and Immunogenic Signatures Associated with Chronic Illness after COVID 19 Vaccination (Dr. Been's presentation explaining the findings is here).

3. Post-Vaccination Syndrome: A Descriptive Analysis of Reported Symptoms and Patient Experiences after COVID-19 Vaccination

The book about Brianne is here.

Brianne's documentary film is here.

React19.org's YouTube channel with more educational videos by Dr. Been and more is here.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Dr. Eboni Cornish on root causes of brain inflammation with Dr. Dempsey on Mast Cell Matters

Standing Up to POTS, Inc. — Mon, 17 Nov 2025 14:24:00 +0000

This is a not-to-be-missed conversation for anyone interested in brain inflammation. Dr. Eboni Cornish, M.D. is Associate Medical Director at Amen Clinics, Fellow and Treasurer of the Board for the International Lyme and Associated Diseases Society (ILADS). With research training at the National Institutes of Health as a Howard Hughes Medical Fellow, she is nationally recognized for her evidence-based work in neuroinflammation, autism, chronic toxicity, and complex chronic illnesses, including autoimmune disease, Lyme, PANS/PANDAS, mold illness, CIRS, and long COVID among others. At Amen Clinics, she integrates SPECT brain imaging with advanced biomarker testing to uncover root-cause brain imbalances and has created the Amen Clinics 2-Week Neurointensive Program for complex neuroimmune disorders. A sought-after speaker and educator, Dr. Cornish is dedicated to advancing brain and body longevity while translating complex science into practical, patient-centered strategies.

In this episode she and Dr. Dempsey discuss neuroinflammation, the role of limbic system, gut imbalances, chronic infections and MCAS.

Dr. Dempsey's website is here.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Live from the 12th annual Run for Research - interviews with participants

Standing Up to POTS, Inc. — Tue, 11 Nov 2025 12:09:00 +0000

Our 12th annual 5k/2k took place virtually and at Wittenberg University in Springfield Ohio and raises funds for research to help today's struggling POTS patients. We interviewed several participants while they were waiting for the event to begin and got a chance to find out what brings them to the event, why they want to raise awareness of POTS and more.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Dr. Robert Groysman on mechanisms, novel treatments, E.A.T., stellate ganglion block and more

Standing Up to POTS, Inc. — Tue, 04 Nov 2025 19:58:00 +0000

Dr. Groysman is founder of the COVID Institute, where they treat POTS/dysautonomia, MCAS, ME/CFS, long COVID, and are reporting good outcomes with evidence-based treatments that are relatively novel in the U.S., such as stellate ganglion block, Epipharyngeal Abrasive Therapy (EAT), vagal nerve stimulation and more. In this episode Dr. Groysman describes his approach, the 6 main underlying mechanisms he sees at work in these conditions, novel treatments he is finding effective, and what patients can expect at his clinic. Dr. Groysman also offers an online community for patients to ask questions and have discussions with him (and other members) at https://www.longcovidfamily.com/

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Jill Krapf, MD on painful sex, vulvovaginal disorders and mast cells with Dr. Tania Dempsey on Mast Cell Matters

Standing Up to POTS, Inc. — Sat, 25 Oct 2025 23:53:00 +0000

Dr. Jill Krapf is a Board-Certified OB/GYN who specializes in genitopelvic pain and skin conditions, is founder of the Center for Vulvovaginal Disorders and co-author of the book When Sex Hurts: Understanding and Healing Pelvic Pain. She is a wealth of knowledge and with Dr. Dempsey they discuss the mechanisms behind these disorders, treatments, plus their findings about how mast cells may be involved.

Dr. Dempsey's website is here

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Tristan, from hiking, skating and EMT training to a looong wait

Standing Up to POTS, Inc. — Sun, 19 Oct 2025 09:17:00 +0000

Tristan was an avid hiker, skate boarder and EMT-in-training when his world suddenly started spinning. Although his doctor diagnosed POTS and referred him to a top specialist, he has been waiting two years for that appointment. In the meantime he deals with a lot of symptoms (e.g., starting each day vomiting) and is unable to work, however he remains upbeat and even shares his successful chronic illness reference on Tinder.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Dr. Kendal Stewart on a ‘hypo-adrenergic’ variant of POTS, genetics and novel treatments

Standing Up to POTS, Inc. — Sun, 12 Oct 2025 18:53:00 +0000

Dr. Kendal Stewart, former skull surgeon, now specializes in addressing root causes of neuroimmune conditions like POTS. In this episode he discusses seeing 'hypo-adrenergic' POTS, the underlying genetics that may cause it, value of genetic testing, nutrigenomics, plus novel treatments such as exosomes, peptides, CBD, and much more. You can find Dr. Stewart at https://www.drkendalstewart.com/ or his podcast, Coffee with Dr. Stewart.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Patrick Ussher, author of Understanding ME/CFS and Strategies for Healing

Standing Up to POTS, Inc. — Tue, 07 Oct 2025 19:13:00 +0000

Patrick Ussher is an author, advocate, educator and patient himself. His book Understanding ME/CFS and Strategies for Healing explains current research and theory about a unifying explanation for ME/CFS and what that means for treatment strategies. He explains the Mitodicure initiative to actually cure ME/CFS (pending funding), and also discusses some experimental (**i.e., not recommended: consult YOUR doctor about what's right for you**) treatments that he has tried, including HELP Apheresis, HBOT (hyperbaric oxygen therapy), a carnivore diet and more. He also shares why he wrote a book about "psychogenic drinking" that -- among POTS and ME/CFS patients -- may not be psychogenic after all.

Patrick's website is here.

His YouTube channel is here.

You can follow him here.

To put your name into the hat for the book giveaway, please follow this link

https://patrickscribe80.gumroad.com/l/jrfbq

There you will be able to download a free sample from the book by inputting your email. Under ’name a fair price’, just input ‘0’ to get the sample for free.

This will also sign you up to Patrick’s newsletter but, if you would rather not subscribe to this, just indicate this clearly in the ’newsletter opt-out’ box.

Three email addresses will be chosen at random two weeks after the podcast’s release date and winners will be contacted to arrange delivery of the book.

You can also use the contact form on Patrick’s website and let him know you are entering the draw, if preferred.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Kirti Sivakoti, MD, pediatric dysautonomia and complex illness expert

Standing Up to POTS, Inc. — Sun, 28 Sep 2025 11:48:00 +0000

Pediatric dysautonomia expert Dr. Kirti Sivakoti, MD, is a pediatrician specializing in complex chronic illness, Associate Professor of Pediatrics at University of Utah, and Associate Medical Director of the Pain and Autonomic Symptoms Evaluation (PAUSE) Program at Primary Children's Center. In this episode she discusses her observations in this patient population, why she left a more conventional community-based practice to lead a program focused on complex chronic illness, and how her clinic and programs now work to bring together resources and a multidisciplinary approach to helping children and teens with dysautonomia. Dr. Sivakoti also shares her thoughts on POTS, ME/CFS, complex illness, how the healthcare system needs to better help these patients and more. This is a great conversation with a very compassionate, thoughtful and knowledgable physician and researcher.

More information about Dr. Sivakoti and her practice is here.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Taylor’s pleasure cruise that turned into another journey

Standing Up to POTS, Inc. — Mon, 22 Sep 2025 12:25:00 +0000

Taylor caught COVID on a pleasure cruise and life has been pretty different ever since, but she is doing everything in her power to regain function and wellness, including going to top institutions and adding a service dog, Milo, to her already significant set of furry family members. Listen to her upbeat tales about living with POTS, gastroparesis and hypermobility.

You can find Taylor on Instagram here.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Dr. Greg Plotnikoff on favorite new findings and a thiamin theory with Dr. Tania Dempsey on Mast Cell Matters

Standing Up to POTS, Inc. — Sun, 14 Sep 2025 12:30:00 +0000

Dr. Greg Plotnikoff is a thought leader in dysautonomia/MCAS and complex chronic illness and in this episode he is freshly returned from giving two presentations at the Dysautonomia International Conference. He and Dr. Dempsey discuss what he learned and what he is currently excited/hopeful about, including new data about hypermobility as a potential underlying factor and how thiamine and other nutrients may theoretically play a key role in dysautonomia. Dr. Plotnikoff's article about 7 important questions to answer for symptomatic patients on a plant-based diet is here.

Dr. Plotnikoff's website is here.

Dr. Dempsey's website is here.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Valerie is thriving in law school after a life-threatening reaction to medication

Standing Up to POTS, Inc. — Mon, 08 Sep 2025 00:24:00 +0000

Valerie had a life-threatening reaction to a medication administered in the ER, and she has had POTS ever since. Valerie's advice to other patients with many sensitivities is to consider getting pharmacogenetic testing to see which drugs may be more or less well tolerated. Despite many challenges, Valerie is now thriving in law school, following her passion for justice reform.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Dr. Jeffrey Boris on the genetic landscape of POTS

Standing Up to POTS, Inc. — Mon, 01 Sep 2025 13:47:00 +0000

Dr. Boris is a Pediatric Cardiologist, Pediatrician, and leading expert on pediatric POTS. Here he explains his team's new findings about the genetic signals found in pediatric POTS patients: What they found, what this might mean for our understanding of POTS, and more. He also shares findings from his latest publication on longterm outcomes in POTS, and shares which hormones/oral contraceptives are helping some of the many patients who have worsening symptoms near menses. Dr. Boris is full of information and valuable nuggets, so don't miss this episode if you are interested in pediatric POTS.

Dr. Boris's genetics article is here.

Dr. Boris's first article on long-term POTS outcomes is here.

Dr. Boris's second article on long-term POTS outcomes is here.

Dr. Boris's website is here.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

12th Annual 5k/2k Invitation

Standing Up to POTS, Inc. — Sun, 31 Aug 2025 19:09:00 +0000

Please join us in Going The Distance for POTS Research by participating in our 12th annual 5k/2k event, which can be done virtually or in person at the Wittenberg campus in Springfield, OH. More information and registration is at https://www.standinguptopots.org/annual-5k

POTS Diaries with Mackenzie from Massachusetts

Standing Up to POTS, Inc. — Sun, 24 Aug 2025 10:51:00 +0000

Mackenzie from Massachusetts enjoys all kinds of artistic pursuits including writing and illustrating her own children's book. In this episode she describes her journey, including how a TikTok video helped her discover and manage her own POTS a couple years before the medical system diagnosed her.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

MCAS symptoms “down there” with Dr. Tania Dempsey

Standing Up to POTS, Inc. — Sat, 16 Aug 2025 12:30:00 +0000

MCAS doesn't ignore the nether-regions, so in this episode, Dr. Dempsey discusses symptoms and treatments in the genitourinary and surrounding areas, including some novel uses of antihistamines and mast cell stabilizers, as described in this research article. She also answers listener questions about hormones, hormone replacement, reactions to ultrasounds and ultrasound gel (this is the gel with fewer known allergens), and more.

Dr. Dempsey's website is here: https://drtaniadempsey.com/

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Bria from Wales, a professional patient rights advocate

Standing Up to POTS, Inc. — Sat, 09 Aug 2025 23:26:00 +0000

Bria started having symptoms in college, as an art and theater major, and told her doctor she suspected POTS. It still took her 8 more years to get a formal diagnosis. Bria is still looking for better solutions and answers (using ChatGPT), constantly experimenting and also working on acceptance.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Dr. Asad Khan on long COVID, micro-clots and more

Standing Up to POTS, Inc. — Mon, 04 Aug 2025 08:08:00 +0000

Dr. Asad Khan was a pulmonologist on the front lines of COVID in Manchester England when he became a long COVID patient himself. Now retired due to chronic illness, he is a leader in patient advocacy and has contributed to cutting edge research related to hypercoagulation and micro-clotting in long COVID and related conditions. In this episode he discusses the research and his own experiences with treatments for long COVID and micro-clots. Off-label and experimental treatments are discussed as part of Dr. Khan's experience, and are not meant to be recommendations. Consult your doctor about what treatments may be right for you.

You can follow and find Dr. Khan online at

@doctorasadkhan

Associate, Doctors with ME

Champion, Long Covid Kids

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

POTS Diaries with Randi: Surgical nurse, stoic and survivor

Standing Up to POTS, Inc. — Tue, 29 Jul 2025 12:23:00 +0000

Having POTS, myocarditis, COVID and a heart attack right before your 40th birthday is not for the faint of heart, but Randi is a smart, strong, stoic surgical nurse who tells us all about it and more in this episode.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Vagal nerve stimulation and heart rate variability with Exercise Physiologist Caelum Schild

Standing Up to POTS, Inc. — Sun, 20 Jul 2025 12:28:00 +0000

Caelum Schild is a Senior Exercise Physiologist in Adelaide Australia who specializes in POTS and related conditions. In this episode he describes some of the tools he uses, such as tVNS (transcutaneous vagal nerve stimulation) and HRV (heart rate variability), sharing some important research findings plus his clinic experience with these therapies. Caelum's website is https://loftyhealth.com.au/

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Kai, on living with profound ME/CFS

Standing Up to POTS, Inc. — Sun, 13 Jul 2025 09:24:00 +0000

Kai has severe ME/CFS, and is using precious energy for this episode to help us understand what life is like with profound energy limitations: what an average day is like, the price paid for doing basic activities, what it's like to pass the time avoiding sound and light, and what more people should understood about severe profound ME/CFS. Kai wrote this document for anyone who wants to learn more.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Todd Maderis, ND on novel treatments - Mast Cell Matters with Dr. Tania Dempsey

Standing Up to POTS, Inc. — Mon, 07 Jul 2025 23:50:00 +0000

Dr. Todd Maderis is a naturopathic physician in Marin, CA, who began his career in environmental medicine and now specializes in helping complex patients by searching for the root causes of their illness. He and Dr. Dempsey discuss their hypotheses about how and why some patients can get so sick, their favorite newer tests and treatments -- including genetic testing, SOT, phosphatidylcholine -- and how excess fibrin production may contribute to excessive blood coagulation and biofilms that help infections hide from treatment. And much more! Drs. Maderis and Dempsey cover a wide range of topics and compare notes on their approaches to helping the most complex patients.

Dr. Maderis's website and blog is here.

Dr. Dempsey's website is here

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Clare on being in law school with seizures and POTS

Standing Up to POTS, Inc. — Sat, 28 Jun 2025 12:23:00 +0000

Clare is a law student who has a genetic condition that causes epileptic seizures, which may have ultimately led to POTS. She is unfortunately highly experienced in losing consciousness. But she is still rocking law school (and studying health law) and in this episode discusses how she makes it all work.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

POTS Practitioners: Dr. Jen Curtin on the RTHM approach to improving care for complex patients

Standing Up to POTS, Inc. — Mon, 23 Jun 2025 13:02:00 +0000

Dr. Jennifer Curtin is using the latest technologies to improve patient care and offerings. She was a ME/CFS patient herself when she went to medical school, and now is Medical Director of the RTHM Clinic. Dr. Curtin describes her approach to care including traditional clinic care plus several innovative offerings that allow patients easier and remote access to common safe treatments for dysautonomia, MCAS, ME/CFS, long COVID and other common comorbid conditions. Her team has also created programs that can use HIPAA compliant artificial intelligence to review medical records for potential clues, suggested tests or treatments, and much more. Don't miss this episode if you want a potential view of the future of medical care for complex patients.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Alici’a, a nauseous, resilient, animal-lover

Standing Up to POTS, Inc. — Sun, 15 Jun 2025 12:25:00 +0000

Alici'a has spent a LOT of time hugging garbage pails, due to extreme nausea, and she did not get the support she hoped from her school or insurance company, but that didn't keep her from figuring out how to graduate high school, get accepted to college with needed accomodations, and feel she has become a better person for the challenges.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Cardiologist Alexis Cutchins on MCAS, POTS, venous outflow/pelvic congestion syndromes, MALS and more with Dr. Tania Dempsey on Mast Cell Matters

Standing Up to POTS, Inc. — Tue, 10 Jun 2025 00:12:00 +0000

This is an excellent discussion for patients and practitioners alike who are interested in the connections between MCAS, POTS, venous compression, pelvic venous disorder, and MALS. Cardiologist Dr. Cutchins and Dr. Tania Dempsey share tons of information plus their latest thinking on how to treat patients with these complex presentations, including an in-depth conversation about how MCAS patients are faring with stenting procedures for venous compressions.

You can follow Dr. Cutchins on Instagram at @drcutchins

Dr. Cutchins’s website is here.

Dr. Dempey’s website is here.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Caitlyn wrote a book!

Standing Up to POTS, Inc. — Tue, 03 Jun 2025 12:33:00 +0000

Caitlyn was a 4th grade teacher, mom, group fitness instructor and general ball of energy until she got Mononucleosis. Faced with all sorts of challenges, including losing relationships because her health was "too much", what did she do? She wrote. And it evolved into a book about her experiences and included thoughtful questions for readers, which Caitlyn wishes she's asked herself sooner. Above all, she wants other patients not feel alone. You can find her book here:

http://www.notmyproblembook.com/

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Biological Sex Differences in POTS with Marie-Claire Seeley, RN, PhD

Standing Up to POTS, Inc. — Mon, 26 May 2025 13:06:00 +0000

Dr. Marie-Claire Seeley explains new published findings from the Australian POTS Registry, looking at sex differences in symptoms, care seeking, diagnostic delay, and other parts of the patient journey. You can read the published article here and learn more about the Australian POTS Foundation here.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Invitation to DysCourse, presented by The Dysautonomia Project

Standing Up to POTS, Inc. — Mon, 19 May 2025 17:40:00 +0000

The DysCourse event is presented by The Dysautonomia Project. It is 100% free and is intended to provide practical strategies, information and community to patients and caregivers. Hope to see you there!

POTS Diaries with Sam, sharing her POTS and seizures on TikTok

Standing Up to POTS, Inc. — Sat, 17 May 2025 12:33:00 +0000

Sam was enjoying a post-graduation road trip when a series of unlucky medical issues left her with POTS including non-epileptic seizures. Although she still faces new challenges (MALS this time), Sam is still smiling, optimistic, and sharing her experiences and tips as an influener on TikTok. You can find her channel here.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Women’s sexual health with Dr. Anna Cabeca: Mast Cell Matters

Standing Up to POTS, Inc. — Mon, 12 May 2025 12:01:00 +0000

Dr. Anna Cabeca started her career as a researcher and busy physician, until her own fertility issues drove her to search the world over for better solutions for women's sexual health. In this interview with Dr. Dempsey we learn about hormones, symptoms, treatments, natural alternatives, that vaginal health is important for overall health, and much more.

Dr. Cabeca's website is here: https://drannacabeca.com/

Dr. Dempsey's website is here: https://drtaniadempsey.com/

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

POTS Diaries with Reilly, nurse and world adventurer

Standing Up to POTS, Inc. — Tue, 06 May 2025 12:45:00 +0000

Meet Reilly, a 29-year-old director of nursing from Northern British Columbia, Canada. Reilly shares insights into her life and career, details her experience with the healthcare system as both a provider and a patient, talks about the challenges of traveling with POTS, and describes her journey from the onset of symptoms to receiving a diagnosis.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Hyperventilation in POTS with Jacquie Baker, PhD

Standing Up to POTS, Inc. — Mon, 28 Apr 2025 08:00:00 +0000

Hyperventilation and POTS: Do POTS patients "breathe wrong?" Dr. Jacquie Baker explains the high-tech research studies performed in her (and Dr. Satish Raj's) lab to untangle the mechanistic causes and effects of hyperventilation in POTS. She also explains findings on how hyperventilation in POTS differs from hyperventilation in anxiety. You can find the discussed publications here and here. Dr. Raj & Dr. Baker's latest research projects at U. of Calgary Autonomic Lab are listed here.

Some of Dr. Baker's work was supported by a grant from Standing Up to POTS. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

POTS Diaries with Megan - finding the right doctor made all the difference

Standing Up to POTS, Inc. — Tue, 22 Apr 2025 12:32:00 +0000

Megan is a literacy advocate in Georgia and is very passionate about her work. When POTS and comorbid conditions struck, she had difficulty making it through the work day, and didn't get any relief or answers from the first 20 doctors she saw. Luckily she persisted and eventually found the one that made ALL the difference.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

MCAS in developmental & behavioral pediatrics with Donna Kirchoff, MD, FAAP: Mast Cell Matters with Dr. Tania Dempsey

Standing Up to POTS, Inc. — Tue, 15 Apr 2025 20:06:00 +0000

Dr. Donna Kirchoff is an integrative developmental and behavioral pediatrician who works with children who have complex conditions, often involving MCAS, autism and other neuroinflammatory conditions like PANS and PANDAS. In this episode she and Dr. Dempsey discuss the role of mast cells in these conditions and what can be done to help these young patients.

Dr. Kirchoff's website is here.

Dr. Dempsey's website is here.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Karen from rural Canada, both patient and healthcare practitioner

Standing Up to POTS, Inc. — Mon, 07 Apr 2025 12:32:00 +0000

Karen is a healthcare professional in rural Canadian who had onset of confusing and scary symptoms six days after her third COVID shot. It took a year to figure out symptoms like "feeling drugged when upright, yet feeling able to solve world problems when lying down." Karen shares how she found answers and the ability to be back at work, now able to recognize POTS in her patients.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Cerebral Blood Flow Findings with Marie-Claire Seeley, RN, PhD

Standing Up to POTS, Inc. — Sun, 30 Mar 2025 14:56:00 +0000

POTS patients with cognitive dysfunction had SPECT imaging done to measure the blood flow to their brains and lead author, Marie-Claire Seeley, RN, PhD, discusses the dramatic findings. You can read the published article here and learn more about the Australian POTS Foundation here.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Four nutrition findings with Jill Brook, MA

Standing Up to POTS, Inc. — Tue, 25 Mar 2025 13:31:00 +0000

Jill shares four nutrition findings from general nutrition (not done on POTS patients) that might still be of interest to POTS patients, as they have been shown to affect cognitive function, mood, pain and exercise tolerance. As always, this is not medical or dietary advice. Check with your own medical team about what is right for you.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Lily’s transition to career and adulting

Standing Up to POTS, Inc. — Sat, 15 Mar 2025 15:55:00 +0000

Lily was our first POTS Diaries guest (Episode #2) as a college student with severe POTS. She's back to discuss how she navigated planning a POTS-friendly career, the job hunt, cross-country move, 2 hurricanes, and maintaining her relationship with her partner -- all while managing fairly severe POTS and related conditions. Lily's smart strategies, insights and sense of humor make this episode extra valuable and fun.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Ayurvedic approach with Gillian Ehrlich, DNP, ARNP: Mast Cell Matters with Dr. Tania Dempsey

Standing Up to POTS, Inc. — Tue, 11 Mar 2025 08:07:00 +0000

Gillian Ehrlich's NeuroVeda Clinic in Seattle treats complex patients with a wide variety of treatments including peptides, Ayurvedic medicine, diet and nutrition, imaging, mind-shifting therapeutics, plasmapheresis, and more. In this episode, Dr. Tania Dempsey interviews Gillian about her Ayurvedic approach and also her experiences with plasmapheresis. More information about Gillian and her clinic is available here.

Dr. Dempsey's website can be found here.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Drug excipients and label inconsistencies with Data Scientist Mike Brook

Standing Up to POTS, Inc. — Tue, 04 Mar 2025 15:04:00 +0000

Patients with sensitivities to medications or their inactive ingredients ('excipients') often use NIH's DailyMed website to look up excipients or alternative drug formulations that might work better for them. This is important as 38 "inactive" ingredients have been reported to cause allergic reactions at the doses found in medications. Data Scientist Mike Brook explains the research project that found excipient list inconsistencies in ~40% of DailyMed drug product labels, and what sensitive patients can do about it.

The articles discussed are here and here.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Mechanisms and treatment of neuropsychiatric symptoms with Tena McLarty PMHNP-C, FNP-C

Standing Up to POTS, Inc. — Tue, 25 Feb 2025 09:06:00 +0000

POTS and related conditions are not psychiatric conditions, but can have neuropsychiatric symptoms. Nurse Practitioner Tena McLarty PMHNP-C, FNP-C specializes in POTS and comorbid conditions, with a particular interest in neuropsychiatric symptoms both from the conditions themselves and as possible side effects from drugs commonly used in these conditions. In this episode she shares the research findings - plus her personal experiences - relating to common symptoms, underlying mechanisms, potential psychiatric side effects of common drugs used for POTS, her advice for patients, and much more.

You can follow Tena here on Instagram.

You can see her professional profile here.

You can find her website here.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Erica on her surgeries, search, stent, and solution that finally worked…DNRS

Standing Up to POTS, Inc. — Mon, 17 Feb 2025 09:07:00 +0000

Erica was busy, active and career-focused when her health challenges began. She survived a thrice-collapsed lung, two lung surgeries (one with complications) and COVID, but was left with debilitating POTS with blood pressure spikes and chest pain. She spent thousands of dollars consulting concierge doctors, long COVID clinics, and even having a stent placed, but the thing that made the biggest difference for her POTS was neural retraining to calm her nervous system. In this episode Erica explains DNRS and how she credits it with helping her get most of her life back.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Dr. Michael Ruscio on SIBO and gut health as drivers of MCAS: Mast Cell Matters with Dr. Tania Dempsey

Standing Up to POTS, Inc. — Thu, 13 Feb 2025 12:23:00 +0000

Dr. Ruscio is a thought leader, expert, clinician, researcher and podcaster specializing in gut health and SIBO - small intestinal bacterial overgrowth. In this episode, he and Dr. Tania Dempsey discuss how gut health issues like SIBO can drive MCAS, plus Dr. Ruscio's approach to testing and treatment. This is a great conversation between top clinicians, full of practical tips for patients with SIBO and other GI issues in the context of MCAS.

Dr. Ruscio's website is here: https://drruscio.com/

Dr. Dempsey's website is here: https://drtaniadempsey.com/

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Provider Profiles: Dr. Leonard Weinstock and his most important patient, Max

Standing Up to POTS, Inc. — Wed, 05 Feb 2025 15:43:00 +0000

Dr. Leonard Weinstock -- gastroenterologist, prolific researcher, and clinician on a mission to cure syndromes -- returns with his grandchild, Max, to discuss MCAS, his latest research projects, the release of his Triad documentary, and why he is so driven to keep helping people with mysterious complex syndromes. If you are a fan of Dr. Weinstock as we are, you'll enjoy hearing him in the role of both dedicated physician and dedicated grandfather.

If you'd like to consider supporting the Triad documentary, please visit MCASfund.org.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Lisa on living independently with POTS, blindness, and an intuitive Pomeranian

Standing Up to POTS, Inc. — Sun, 26 Jan 2025 09:06:00 +0000

Since birth Lisa has lived without eyesight or normal hormones, but it wasn't until her 50's that POTS and long COVID struck. But that hasn't stopped her from travelling, singing in a choir (including solos) and living independently. Lisa is an expert on developing smart strategies to live better with physical challenges: In addition to doing it for her own unique combo of conditions, her profession is teaching classes to people without eyesight on living independently.

Lisa shares her practical tips and her 'layer cake' approach to finding solutions, hacks and life improvements. Lisa also discusses her work, travels, recreation, and taking cues when her pomeranian body slams her in the middle of the night. You can hear Lisa singing in her choir here - she is the second soloist.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Dr. Derik Anderson, DC, DSN, DCP on interconnections between hypermobility, POTS, MCAS, autoimmunity, dysbiosis

Standing Up to POTS, Inc. — Tue, 21 Jan 2025 01:43:00 +0000

Dr. Derik Anderson discusses the interconnections between POTS, hypermobility, MCAS, gut dysbiosis, autoimmunity, plus shares some of the approaches used by his clinic to identify and treat the 20% of issues causing 80% of the problems. He discusses shockwave therapy, fascia compression, heart rate variability and more.

The Muscle and Joint Clinic website can be found here. The slide show (with mentioned diagram) explaining connections between syndromes is available here: https://www.ehlers-danlos.com/wp-content/uploads/2023/07/Derik_Anderson_Deconditioning_How_to_Recondition.pdf.The mentioned diagram is slide #3

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

"Primary care without the Gaslighting" with Danielle Lazarowitz, Dr. Jen Rubin & Dr. Kate Eisenberg

Standing Up to POTS, Inc. — Tue, 14 Jan 2025 09:05:00 +0000

Danielle experienced first-hand the shortcomings of the conventional primary care model for patients with complex chronic illness like dysautonomia. So, what did she do? She founded a better one: "Primary care without the gaslighting"! Danielle and two of the physicians on her team, Dr. Jen Rubin and Dr. Kate Eisenberg, discuss their new model and clinic, how they provide care differently, why it makes a difference to have a PCP who understands POTS and related conditions, and their plans for the future.

You can learn more about their clinics HERE.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Designing the Uplift compression device with Kishen Mitra and Sameer Kunte

Standing Up to POTS, Inc. — Wed, 08 Jan 2025 00:49:00 +0000

Many POTS patients wear abdominal compression, but a team from Duke is researching ways to make it more comfortable and effective. Kishen Mitra and Sameer Kunte are leading the team and describe their work so far, researching patient preferences, technology, designs and plans to help POTS patients have better choices for abdominal compression devices.

The Uplift survey findings are published here.

Here is Uplift on LinkedIn

Here is the Uplift website

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E238:Kristy’s Wild Ride

Standing Up to POTS, Inc. — Tue, 31 Dec 2024 21:09:00 +0000

Kristy's POTS had her largely bedbound until her stubborn streak and competitive spirit led her to train for a 450 mile cycling race. She recounts the training, the 35-hour-long event, the aftermath, and what she's up to now.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E237:Great Resources from The Dysautonomia Project with Dr. June Bryant, DNP, APRN, CPNP-PC and Cheryl Faber

Standing Up to POTS, Inc. — Sun, 22 Dec 2024 12:49:00 +0000

The Dysautonomia Project is a Florida-based non-profit best known for their wonderful book on Dysautonomia for both patients and providers. But they also have other great resources including their DysCourse program for patients and caregivers, education courses for healthcare practitioners, list of recommended practitioners by geographic region, and more. Professor June Bryant, DNP, APRN, CPNP-PC and Educational Director Cheryl Faber explain their history, mission, upcoming events and how to get involved and/or take advantage of the offerings made possible by The Dysautonomia Project.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E236:Angela on MALS surgery, vascular compressions and more

Standing Up to POTS, Inc. — Tue, 17 Dec 2024 12:49:00 +0000

Angela was healthy, busy, active and loved hiking and traveling before the cascade of syndromes arrived: POTS, MCAS, hEDS, MALS, May Thurner Syndrome, Nutcracker Syndromes, ME/CFS. Angela discusses how she worked to find the right experts, get answers, how her surgery for MALS went, which symptoms it did and didn't help, and which treatments she is considering now. She also discusses how she copes and stays so productive while juggling these conditions. You can follow Angela at...

Instagram: @positivitypotsedsmcas

TikTok: @positivitypotsedsmcas

Facebook: https://www.facebook.com/positivitypotsedsmcas/

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E235:Heart Expert Joseph Anew on Mast Cell Matters with Dr. Tania Dempsey

Standing Up to POTS, Inc. — Mon, 09 Dec 2024 17:35:00 +0000

Joseph Anew is now the picture of health and fitness, but as a young man he was severely injured and received a dior diagnosis. When conventional treatments failed, he moved to a tropical beach to live out his few remaining days. What happened next has been the basis for his great fitness and career helping others to overcome health challenges, feel their best, and perform beyond expectations. Joseph describes the pillars of his approach, and Dr. Dempsey discusses her personal experience with his program. They include practical tips for where patients can start even if their health is currently very poor.

Joseph's program can be found here.

More information about Dr. Tania Dempsey and her practice can be found at https://drtaniadempsey.com/.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E234:Hyperbaric Oxygen Therapy with Dr. Scott Sherr

Standing Up to POTS, Inc. — Mon, 02 Dec 2024 20:36:00 +0000

Hyperbaric oxygen therapy (HBOT) can affect energy, healing, the central nervous system, immune system, GI and cognitive function and more. Dr. Scott Sherr is a Board-Certified Internal Medicine Physician and the director of Integrative Hyperbaric Medicine and Heath Optimization at Hyperbaric Medical Solutions and co-founder of OneBaseHealth, a company that makes home HBOT devices. In this episode he explains how HBOT works, mechanisms of action, risks and benefits, and how HBOT can fit into a broader treatment plan to address POTS and related conditions such as autoimmunity, underlying infections, and injuries.

Dr. Scott's telehealth practice is at Integrative HBOT.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E233:Methylene Blue for POTS with Dr. Scott Sherr

Standing Up to POTS, Inc. — Sat, 23 Nov 2024 12:48:00 +0000

Can a blue dye that was the first drug ever approved by the FDA help POTS energy and brain fog? Dr. Scott Sherr is a Board-Certified Internal Medicine Physician, expert in health optimization, and COO of Troscriptions. In this episode he explains Methylene Blue; what it is, how it affects the body, risks, benefits, and why he thinks it is helping POTS patients.

Here is Dr. Scott's company, Troscriptions, which makes Methylene Blue and other innovative products.

Here is Dr. Scott's telehealth practice, Integrative HBOT.

Here is Dr. Scott's non-profit HOMe/HOPe, providing education on health optimization.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E232:Dr. Steve Smith’s research update on treating pelvic venous disorders (and how it helps POTS and related syndromes)

Standing Up to POTS, Inc. — Sat, 16 Nov 2024 12:36:00 +0000

Dr. Steve Smith's most updated research suggests that stenting or embolizing dysfunctional pelvic veins may improve a wide array of POTS symptoms and related syndromes in patients with pelvic venous disorders/congestion.

Dr. Smith is now retired and publishing research, but in his long career as an interventional radiologist he noticed that many of his Pelvic Congestion Syndrome patients had POTS and related syndromes...which often got much better after treating the bad veins. Could poor blood flow be at the heart of some of these syndromes and symptoms? Dr. Smith makes the case. He reviews several studies that now show POTS and many other symptoms (and syndromes) improve after treating the veins with stents or embolization. His studies now show improvement in patients across 5 different centers, at 3-, 6- and 12-month follow-ups, and across numerous symptoms. Dr. Smith discusses his hypotheses about how venous disorders may underlie some cases of POTS, fibromyalgia, ME/CFS, migraine, brain fog, IBS, vulvodynia, ADHD and more.

Below are links to his published studies:

Imaging findings of pelvic venous insufficiency in patients with postural orthostatic tachycardia syndrome

An online survey of pelvic congestion support group members regarding comorbid symptoms and syndromes

Improvement in chronic pelvic pain, orthostatic intolerance and interstitial cystitis symptoms after treatment of pelvic vein insufficiency

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E231:Lumia tracks blood flow to the head with Daniel Lee

Standing Up to POTS, Inc. — Sun, 10 Nov 2024 11:35:00 +0000

Engineer and tech founder Daniel Lee created the Lumia to be a personal wearable device that fits in the ear and measures blood flow to the head, along with several other measurements and a phone app. This allows POTS patients, researchers and others to track how their activities, foods, medications, and other environmental factors are affecting blood flow to the head and symptoms of POTS. He explains how it all works and also shares interesting findings revealed by the Lumia in their research partnerships with major academic centers and also from POTS patients wearing the Lumia in normal life. Daniel is a wealth of information about POTS, especially coming from the perspective of circulation to the head.

You can learn more about the Lumia device at https://lumiahealth.com/.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E230:POTS vs. Anxiety with Author/Advocate Christie Cox

Standing Up to POTS, Inc. — Mon, 04 Nov 2024 19:29:00 +0000

Christie Cox is a best-selling author and patient advocate working to help others have an easier journey than she has had. Her latest article explains why POTS is often mistaken for anxiety, why this can lead to harm, and practical tips for how patients and healthcare practitioners can distinguish anxiety from POTS.

Christie's book, Holding It All Together When You're Hypermobile, can be found here. Her free living library, app and newsletter can be found here.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E229:Hormones and MCAS with Dr. Dempsey, Mast Cell Matters: Deep Dives on MCAS

Standing Up to POTS, Inc. — Sun, 27 Oct 2024 12:08:00 +0000

Another great episode where Dr. Dempsey explains how hormones can affect mast cells and vice verse, especially when it comes to puberty, menarche, pregnancy, and menopause.

More information about Dr. Tania Dempsey and her practice can be found at https://drtaniadempsey.com/.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E228: 11th Annual Standing Up to POTS 5K/2K LIVE

Standing Up to POTS, Inc. — Sat, 19 Oct 2024 21:24:00 +0000

Several POTS patients who traveled to Springfield, Ohio for the 11th Annual SUTP 5K/2K spoke with Jill live as they waited for the event to begin. These quick interviews are inspiring, and we hope that some of their tips and tricks will help our listeners!

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E227:Dr. Cathy Pederson on Travel Tips with POTS

Standing Up to POTS, Inc. — Tue, 15 Oct 2024 10:36:00 +0000

Dr. Cathy Pederson shares numerous practical tips for making travel easier for people with POTS, many of which she has tested in her own family's extensive world travels with severe POTS and related conditions.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E226:Molly from VA has 2 children with POTS

Standing Up to POTS, Inc. — Tue, 08 Oct 2024 15:47:00 +0000

Molly's life has changed dramatically since two of her three children developed POTS - at different times, from different triggers and with different symptoms and severity. Hear her story, insights and advice in this episode.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E225:Mold Remediation Expert Michael Rubino - Mast Cell Matters with Dr. Tania Dempsey

Standing Up to POTS, Inc. — Tue, 01 Oct 2024 14:42:00 +0000

Michael Rubino is an air quality expert, environmental wellness advocate and President of Change the Air Foundation. He is widely known as the trusted source for mold remediation expertise. In this episode Dr. Dempsey and Michael discuss how to avoid mold in your environment, even if you don't have the means to move out of a moldy home.

Here is the mold spore video discussed in this episode.

Michael's non-profit ChangeTheAirFoundation.org, has extensive resources for those dealing with mold in their homes. Dr. Dempsey is a Medical Advisor to the foundation.

More information about Dr. Tania Dempsey and her practice can be found at https://drtaniadempsey.com/.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E224:Dr. Dempsey on Mold/Mycotoxin Illness: Mast Cell Matters

Standing Up to POTS, Inc. — Tue, 24 Sep 2024 16:37:00 +0000

Dr. Dempsey explains the facts on mold as a trigger for mast cells, including symptoms, preferred tests, treatments, resources for remediation and expectations for recovery. This is a not-to-be-missed episode since -- as we learn in this episode -- nearly everyone has likely had exposure to the types of mold that can be problematic. Dr. Dempsey is a mold expert and serves on the Medical Board of non-profit ChangeTheAirFoundation.org, which has extensive resources for those dealing with mold in their homes.

More information about Dr. Tania Dempsey and her practice can be found at https://drtaniadempsey.com/.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E223:Nutrition for brain health with Erik Reis, DC, DACNB, CBIS

Standing Up to POTS, Inc. — Tue, 17 Sep 2024 18:40:00 +0000

Dr. Erik Reis is a Doctor of Chiropractic Medicine, Board-Certified Chiropractic Neurologist, Certified Brain Injury Specialist, past brain injury patient himself, and founder of The Neural Connection in Minneapolis, a clinic that focuses on treating complex neurological and orthopedic disorders that range from traumatic brain injuries, dysautonomia/POTS, concussions, and more. Here he discusses dietary approaches and four dietary supplements that can help heal the brain and keep it functioning at its best. He's a wealth of knowledge, and offers more information online at his website here and his extensive blog here.

Dr. Reis's Social Media Links:

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E222:Jess from Louisiana

Standing Up to POTS, Inc. — Tue, 10 Sep 2024 13:09:00 +0000

Jess was a busy, active student and essential worker as a medical case worker during COVID, and then her bout with COVID resulted in... hell. Among many other symptoms, one point she could barely even talk. But with tons of perseverance she eventually found a good doctor and some relief with IVIg. Hear her story and advice to others.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E221:Dr. Dempsey on Infections: Mast Cell Matters with Dr. Tania Dempsey

Standing Up to POTS, Inc. — Tue, 03 Sep 2024 17:49:00 +0000

In this 3rd Q&A session with the amazing Dr. Dempsey she goes deep on infections as a trigger for MCAS: How they're transmitted, symptoms, testing, treatment, and expectations for recovery. This is a not-to-be-missed episode since -- as we learn in this episode -- nearly everyone has likely had exposure to the types of infection that can be at play.

More information about Dr. Tania Dempsey and her practice can be found at https://drtaniadempsey.com/.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E220:S. founded the support organization she wished she’d had

Standing Up to POTS, Inc. — Tue, 27 Aug 2024 17:01:00 +0000

S. got POTS while becoming an occupational therapist and struggled through her graduate program, but now she reports having no more limitations than her friends and has founded the non-profit support organization that she wishes had been there for her. It has helped over 600 girls internationally who live with chronic illness.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E219:Hope for neurologic pain with Katinka van der Merwe, DC

Standing Up to POTS, Inc. — Tue, 20 Aug 2024 14:22:00 +0000

Dr. Katinka is a chiropractor in Arkansas dedicated to the treatment of neurological pain, a particularly stubborn type of chronic pain often seen in POTS, EDS, fibromyalgia, and CRPS. Dr. K leaves no stone unturned to try to help these patients and in this episode she discusses her approach to treating these tough pain conditions. Dr. K's website is here.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E218: Dr. Jill Carnahan’s new book and film and approach to MCAS: MCAS Matters with Tania Dempsey, MD

Standing Up to POTS, Inc. — Tue, 13 Aug 2024 15:42:00 +0000

This is a not-to-be-missed episode between two incredible physicians: Dr. Jill is a highly sought-after leader in functional medicine and a survivor of cancer/crohne's/MCAS. She and Dr. Dempsey compare approaches to treating MCAS, discuss Dr. Jill's new book and film, and describe some lesser-known treatment strategies like methylene blue with red light therapy.

Connect with Dr. Jill at the links below.

Instagram:

/ drjillcarnahan

Facebook:

/ flatironfunctionalmedicine

New Book: Readunexpected.com

Documentary: doctorpatientfilm.com

Dr. Jill's Website: https://www.jillcarnahan.com/

More information about Dr. Tania Dempsey and her practice can be found at https://drtaniadempsey.com/.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E217:Antonia from Virginia

Standing Up to POTS, Inc. — Tue, 06 Aug 2024 12:00:00 +0000

Antonia's fast-paced life as a video/TV producer got a shock starting 10 days after her first COVID shot, but don't miss this episode to hear how she is still producing, finding silver linings, and having some hopeful experiences with steroids. See Antonia's latest show here:

https://www.aetv.com/shows/find-my-country-house

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E216:Concussions in POTS with Erik Reis, DC, DACNB, CBIS

Standing Up to POTS, Inc. — Tue, 30 Jul 2024 15:07:00 +0000

Dr. Erik Reis is a Doctor of Chiropractic Medicine, Board-Certified Chiropractic Neurologist, Certified Brain Injury Specialist, past brain injury patient himself, and founder of The Neural Connection in Minneapolis, a clinic that focuses on treating complex neurological and orthopedic disorders that range from traumatic brain injuries, dysautonomia/POTS, concussions, and more. Here he discusses how concussions can cause dysautonomia and what can be done to help heal the brain. He's a wealth of knowledge, and offers more information online at his website here and his extensive blog here.

Dr. Reis's Social Media Links:

You can read the transcript for this episode here: https://tinyurl.com/potscast216

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E215:Intensive Pain/Exercise Programs for POTS with Dr. Cathy Pederson

Standing Up to POTS, Inc. — Tue, 23 Jul 2024 10:16:00 +0000

What are intensive hospital-based treatment programs and how do POTS patients rate their effectiveness? Dr. Cathy Pederson reports on her recent publication, showing these programs are not for everyone. Dr. Pederson's article can be found here.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E214:Kait from MI

Standing Up to POTS, Inc. — Tue, 16 Jul 2024 22:10:00 +0000

Kait lives on a farm in Michigan and has embraced exercise as a way of life for herself and for her clients. As a personal trainer and coach, Kait has enjoyed helping many people find wellness, including POTS patients who didn't think they could exercise. Kait's website -- KO Wellness -- which includes a program for POTS patients, can be found here.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E213: Breast Implants and MCAS Insights with Surgeon Eva Nagy: MCAS Matters with Tania Dempsey, MD

Standing Up to POTS, Inc. — Tue, 09 Jul 2024 18:03:00 +0000

Dr. Dempsey interviews breast surgeon Dr. Eva Nagy about her important new findings just published about evidence of mast cell activation in Breast Implant Illness. Dr. Nagy is the world's leading surgeon for explant surgery and previously covered Breast Implant illness in episode 184.

Dr. Nagy's website is here and her new publication is here.

Dr. Dempseys website can be found here.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E212: Laura from Alabama

Standing Up to POTS, Inc. — Tue, 02 Jul 2024 22:37:00 +0000

Laura has been described as a 'gregarious chameleon' and a force to be reckoned with. This mother of 2 estimates she's about 80% improved since her worst days, but she's had to work for it. Hear her story in this episode.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E211:Dr. Dempsey answers MORE listener questions as part of MCAS Matters with Dr. Tania Dempsey

Standing Up to POTS, Inc. — Tue, 25 Jun 2024 15:35:00 +0000

Nobody answers your MCAS questions as rapid-fire as Dr. Dempsey! She's back to answer listener questions, addressing the topics of anaphylaxis, Epi-Pens, difficult blood draws, itching, what to do when otherwise healthy or important activities cause flares, and so much more.

More information about Dr. Tania Dempsey can be found at https://drtaniadempsey.com/.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E210:Lexi from South Carolina

Standing Up to POTS, Inc. — Tue, 18 Jun 2024 16:25:00 +0000

Lexi is a busy mother of 3, a pediatric nurse, and started feeling POTSy while standing in lines at military school. Now she's a wealth of information and tips for dealing with medical situations.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E209:Dr. Kelly McCann’s Functional/Integrative/Environmental Medicine Approach to MCAS - Mast Cell Matters with Dr. Tania Dempsey

Standing Up to POTS, Inc. — Tue, 11 Jun 2024 15:00:00 +0000

Dr. Kelly McCann is a leading educator on MCAS and related complex disease, with her online seminars and an approach that combines functional, integrative and environmental medicine. Drs Dempsey and McCann have a far-reaching conversation about MCAS strategies and factors ranging from mindset to muscle testing to genetic predisposition for breaking down fibrinogen blood clots.

More information about Dr. McCann's practice can be found at https://thespringcenter.com/

More information about Dr. Tania Dempsey can be found at https://drtaniadempsey.com/.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E208: Laura and Sharon published a book about Dysautonomia!

Standing Up to POTS, Inc. — Tue, 04 Jun 2024 21:56:00 +0000

Laura and Sharon became great friends while they supported one another through dysautonomia and related conditions. Between Laura's writing experience, Sharon's nursing career, and their joint ability to find the humor in every situation, they decided to help others by writing The Dysautonomia Diary: Essays and Tips for Enjoying Life Despite Chronic Illness. Their book has a foreword by Dr. Blair Grubb and is available here on Amazon.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E207:Dr. Neil Nathan on Mold and MCAS with Dr. Tania Dempsey - Mast Cell Matters

Standing Up to POTS, Inc. — Tue, 28 May 2024 17:55:00 +0000

Dr. Neil Nathan is the leading expert on mold and mycotoxin illness, and in this episode he and Dr. Tania Dempsey discuss how mold can cause chronic illness and how to treat it. They also discuss Dr. Nathan's new book, The Sensitive Patient's Healing Guide, available here from Amazon. Dr. Nathan's other books and resources, plus information about working him, can be found at https://neilnathanmd.com/.

More information about Dr. Tania Dempsey can be found at https://drtaniadempsey.com/.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E206:Brianne Dressen on science-based support for COVID-19 vaccine injured

Standing Up to POTS, Inc. — Tue, 21 May 2024 12:12:00 +0000

Brianne Dressen founded React19 to help people struggling with Long COVID and COVID vaccine injuries after being injured herself in a COVID19 vaccine trial, and learning the hard way that there was not a resource for adequate answers, treatment, financial or social support, or representation. Now she oversees 100 volunteers who have created a provider network, are funding and conducting research, are lobbying congress to address inadequacies of the compensation programs, are fighting court cases, and giving out grants to pay for medical bills of select patients. Learn more about Brianne's science-backed work to help patients at React19.org.

If you have been injured by a COVID-19 vaccine, you can participate in their IRB approved survey here.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Your vote can raise awareness and funds - with (the very strong) Dr. Tania Dempsey

Standing Up to POTS, Inc. — Mon, 13 May 2024 00:12:00 +0000

Dr. Tania Dempsey shares her passion (and some tips) for bodybuilding, because she has been nominated to be on the cover of Muscle and Fitness Hers magazine! If she is voted to be on the cover, it will raise awareness of complex conditions like POTS/MCAS/hypermobility spectrum disorder, AND Dr. Dempsey would donate the $20,000 prize to the documentary in progress about the Triad. You can vote here (and see how strong she is) through Thursday, May 16th, 2024.

E205: Dr. Julie Maamari on perioperative considerations for complex patients

Standing Up to POTS, Inc. — Tue, 07 May 2024 17:00:00 +0000

Dr. Julie Hubbard Maamari is a Perioperative Clinical Pharmacy Specialist who helps patients before, during and after surgery by making sure they get the best medications for their needs. She has helped many complex patients, including those with POTS, MCAS and other hypersensitive or allergic conditions, and she has authored peer-reviewed articles. Dr. Maamari discusses what patients and their doctors can do to prevent mast cell reactions and have the safest, most comfortable outcomes.

The free patient guide by The Mast Cell Disease Society, with worksheets for emergency room response plan, list of medications to favor or avoid with MCAS, and surgical medication plan can be found here.

Dr. Hubbard Maamari's published article on perioperative consideration in patients with MCAS can be found here.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E204: Maddie can walk again! A POTS Diary follow-up

Standing Up to POTS, Inc. — Tue, 30 Apr 2024 10:34:00 +0000

In this episode we check in on Maddie from episode 83, and hear how she is doing, including how she regained the ability to walk again!

You can read the transcript for this episode here: https://tinyurl.com/potscast204

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E203:Humor in Chronic Illness with DoodleThru Creators Mike & Jill Brook

Standing Up to POTS, Inc. — Tue, 23 Apr 2024 10:20:00 +0000

Sometimes we have to laugh so we don't cry. In this episode, cartoonists and married couple Mike and Jill Brook describe what made them create DoodleThru.com, how it helped them cope, and remark at the endless supply of absurdities that are available to chronic illness humorists.

You can see their cartoons at https://doodlethru.com/.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E202: Dr. Theo Theoharides on mast cells driving dysautonomia and much more - Mast Cell Matters

Standing Up to POTS, Inc. — Tue, 16 Apr 2024 10:33:00 +0000

Dr. Theoharides is among the world's top mast cell researchers and speaks with Dr. Dempsey about his recent article reviewing how mast cells may drive dysautonomia and vice verse. They also cover a range of topics from mast cells' diversity to their role in autism, most effective mast cell stabilizers and much more. This episode is packed with advanced mast cell information.

Dr. Theoharides has a website here and his supplements can be found here.

You can learn more about Dr. Dempsey and her practice here.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E201:Allie

Standing Up to POTS, Inc. — Tue, 09 Apr 2024 09:54:00 +0000

In this episode we meet Allie, a student at Purdue University who, since getting POTS, has started introducing herself to one new stranger per day. How cool is that?!

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E200: Dr. Leticia Soares, PhD on female reproductive health concerns associated with long COVID, POTS, EDS, ME/CFS

Standing Up to POTS, Inc. — Tue, 02 Apr 2024 07:31:00 +0000

Dr. Leticia Soares is a research biologist who, before COVID, focused on infectious disease in birds. Now she serves on the leadership team of the Patient-Led Research Collective, conducting and publishing research to help improve treatment for people with Long COVID. Dr. Soares recently published a review article about female reproductive health issues associated with long COVID, ME/CFS, POTS, hEDS, and in this episode she discusses the main findings, challenges, some tips for fellow patients, and future research priorities.

You can follow Dr. Soares at @leticiasaurus on X.

You can read the transcript for this episode here: https://tinyurl.com/potscast200

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

199: Listener Q&A with Dr. Tania Dempsey — Mast Cell Matters

Standing Up to POTS, Inc. — Tue, 26 Mar 2024 13:54:00 +0000

Dr. Dempsey answers questions about MCAS and depression/anxiety/fatigue/brain fog; physical triggers; Kounis Syndrome; whether it's worth it to allow "small" flares in the name of pizza or other small joys; treatments such as stenting for venous compression; how long to try each antihistamine; and much more.

More information about Dr. Tania Dempsey can be found at https://drtaniadempsey.com/.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E198:POTS Diaries with Arianna from Indiana

Standing Up to POTS, Inc. — Tue, 19 Mar 2024 14:40:00 +0000

Arianna was an athlete until POTS and has now developed a large following as a social media influencer. She's sharing her POTS journey with her audience, too! You can follow her here on TikTok or follow her here on Instagram.

You can read the transcript for this episode here: https://tinyurl.com/potscast198

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E197:Dr. David Kaufman on ME/CFS, MCAS, POTS and complex disorders - Mast Cell Matters Series

Standing Up to POTS, Inc. — Tue, 12 Mar 2024 17:15:00 +0000

Dr. David Kaufman is renowned for working with the most complex patients and for his podcast on Patreon, Unraveled: Understanding Medical Complexity. He and Dr. Dempsey discuss the role of MCAS in ME/CFS and other complex disorders and how he starts unraveling these complex clusters of conditions. You can learn more about Dr. Kaufman and his practice here.

You can learn more about Dr. Dempsey and her practice here.

You can read the transcript for this episode here: https://tinyurl.com/potscast197

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E196:Jolie is Miss Chattanooga, spreading awareness of POTS at the Miss Tennesee Pageant

Standing Up to POTS, Inc. — Tue, 05 Mar 2024 21:39:00 +0000

Jolie was first featured in episode 160, and she's back to talk about how she's doing, how she successfully manages her POTS, and some big news: She was chosen to be Miss Chattanooga, TN! In this role she is helping raise awareness of POTS and in the next few days (March, 2024) she'll be competing in the Miss Tennesee Pageant. Thanks to Jolie for using her platform and growing notoriety to help our community!

You can find Jolie on TikTok or Instagram at @JolieMayes.

You can read the transcript of this episode here: https://tinyurl.com/potscast196

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E195: Kelley from Maryland

Standing Up to POTS, Inc. — Tue, 27 Feb 2024 21:51:00 +0000

Meet Kelley from Maryland, a driven student who loves to read, plays the guitar and has plans to pursue neuroscience so she can study the intersection between the brain, one's mindset and POTS.

You can read the transcript for this episode here: http://tinyurl.com/potscast195

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E194: Podcasts as a Form of Social Support with Dr. Melanie Finney and Kate Pederson

Standing Up to POTS, Inc. — Tue, 20 Feb 2024 10:50:00 +0000

POTScast listeners took a survey on podcasts and social support. Here are the results - podcasts can help individuals feel less socially isolated and provide them with informational and emotional support. Parasocial relationships between podcast listeners and hosts are also important.

You can read the transcript for this episode here: http://tinyurl.com/potscast194

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E193: Psychological Experiences of POTS Patients with Dr. Alissa Sheldon

Standing Up to POTS, Inc. — Tue, 13 Feb 2024 10:12:00 +0000

Learn about the psychological experiences of POTS patients in this episode with Dr. Alissa Sheldon. Understand how to trust your symptoms and navigate through life despite challenges.

You can read the transcript for this episode here: http://tinyurl.com/potscast193

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E192: POTS Diary with Erin from Connecticut, who loves to write

Standing Up to POTS, Inc. — Sat, 10 Feb 2024 10:28:00 +0000

Erin is working on her Master's degree in English, and loves to write. She's written stories about her journey with both lupus and POTS, which started in her late teens and early 20s, but her first love is fiction.

You can find her stories at https://vocal.media/fiction/waiting-room-lv3wu40jdv and https://www.artwifemag.com/short-stories/chinchilly

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E191: Dr. Jeffrey Boris on MCAS, POTS, hypermobility and pediatric cardiology as part of the Mast Cell Matters Series with Dr. Tania Dempsey

Standing Up to POTS, Inc. — Tue, 06 Feb 2024 02:25:00 +0000

Dr. Dempsey interviews pediatric cardiologist Dr. Jeffrey Boris about the Triad (MCAS, POTS and hypermobility syndromes) in his pediatric population. As an avid researcher and data analyst, Dr. Boris is always a wealth of knowledge on latest findings and yet-unpublished trends and hypotheses. The doctors also exchange interesting observations about MCAS and cholesterol, PCOS, and much more.

You can learn more about Dr. Boris and his practice here.

You can learn more about Dr. Dempsey and her practice here.

You can read the transcript for this episode here: http://tinyurl.com/potscast191

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E190: Possible Causes of Brain Fog, Dizziness and Nausea in POTS with Dr. Cathy Pederson

Standing Up to POTS, Inc. — Tue, 30 Jan 2024 10:02:00 +0000

Attention POTS patients and those who care about them: Ever wondered what exactly is happening in your body when you experience common POTS symptoms like fainting, nausea, dizziness or brain fog? Tune in to this episode with Dr. Cathy Pederson to unpack the potential causes of these symptoms.

You can read the transcript for this episode here: http://tinyurl.com/potscast190

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E189: Functional Medicine Nutrition with Megan Barnett

Standing Up to POTS, Inc. — Tue, 23 Jan 2024 18:58:00 +0000

This is a conversation between Jill Brook and Megan Barnett discussing the relationship between nutrition, gut health, and complex health conditions like POTS and mast cell disorders. They delve into topics like food sensitivities, the importance of micronutrients, and the role of functional medicine in managing these conditions.

Megan's website is: https://bioloungepdx.com

You can read the transcript for this episode here: http://tinyurl.com/potscast189

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E188: POTS Diary with Erica from California, an actress and dancer

Standing Up to POTS, Inc. — Sat, 20 Jan 2024 10:00:00 +0000

Erica really can't remember life without POTS symptoms and anxiety was blamed for many years. She currently attends school and lives bicoastally as she pursues a career as an actress and dancer. Her diagnosis brought relief, and learning how to control her symptoms have helped her follow her dreams.

You can read the transcript for this episode here: http://tinyurl.com/potscast188

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E187: Dr. Anjali Agarwal, Consulting Physiotherapist and Awareness Beacon in India

Standing Up to POTS, Inc. — Tue, 16 Jan 2024 02:56:00 +0000

Dr. Anjali Agarwal - consulting physiotherapist trained in UK, located in India, and consulting via telemed around the world - is a wealth of information on POTS and related conditions, describing how "everything is connected", which also presents many treatment opportunities. She shares numerous lifestyle strategies to manage POTS/dysautonomia, MCAS, hypermobility and related conditions, and she also shares her international perspective. You can follow Dr. Anjali on Twitter, Instagram, or Facebook.

You can read the transcript for this episode here: http://tinyurl.com/potscast187

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E186:Behind the Scenes of The Triad Film on POTS/MCAS/hypermobility: A Crossover Episode

Standing Up to POTS, Inc. — Thu, 11 Jan 2024 02:28:00 +0000

We have the entire medical/production team of 5 physician/researchers to give us an update and behind-the-scenes look at the documentary they are making about the trifecta of dysautonomia/POTS, MCAS and hypermobility spectrum disorders. We hear from doctors Tania Dempsey, Larry Afrin, Linda Bluestein, Lawrence Kinsella and Leonard Weinstock, along with patient Jill Brook, to hear how filming is going so far and how we can all help support the film. This is a crossover episode with Bendy Bodies with Hypermobility MD, Dr. Linda Bluestein. You can learn more about the documentary at MCASfund.org.

Chapters

00:00 Introduction

00:37 Creating Awareness and Increasing Treatment Options

03:09 The Birth of the Documentary Project

05:20 Filming in New York

07:19 Filming in St. Louis

10:32 The Motivation to Work with Complex Patients

15:49 The Journey of Recognizing MCAS

17:34 The Impact of MCAS Treatment

21:00 Personal Experiences and Incorporating MCAS Treatment

22:42 The Need for an Educational Library

25:29 The Challenge of Condensing Information

26:21 Describing MCAS in Sound Bites

31:10 The Importance of Raising Awareness

34:42 Growth and Development Abnormalities in MCAS

40:03 Main Points about Hypermobility Syndromes and Dysautonomia

44:48 Partnership with LDN Research Trust

51:47 Final Words and Call for Support

54:26 Recognition and Treatment of Unrecognized Patients

55:44 Importance of Learning and Trying

56:13 Gratitude for Dedicated Doctors

56:47 Closing Remarks and Resources

You can learn more about the physicians in this episode at:

https://aimcenterpm.com/ for Dr. Tania Dempsey and Dr. Lawrence Afrin

https://www.gidoctor.net/leonard-weinstock-md for Dr. Leonard Weinstock

https://www.ssmhealth.com/find-a-doctor/doctor-details/laurence-j-kinsella-md for Dr. Laurence Kinsella

https://www.hypermobilitymd.com/ for Dr. Linda Bluestein

You can read the transcript for this episode here: http://tinyurl.com/potscast186

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E185: POTS Diary with POTSpouse Tim and Leah

Standing Up to POTS, Inc. — Sat, 06 Jan 2024 11:38:00 +0000

Despite Leah being largely bedbound, Tim and Leah's relationship is as strong as ever. How do they balance illness, household chores, and raising their children? Find out in this heartwarming episode.

You can read the transcript for this episode here: http://tinyurl.com/potscast185

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E184: Breast Implant Illness and MCAS with Breast Surgeon Eva Nagy, MD as part of the Mast Cell Matters Series

Standing Up to POTS, Inc. — Tue, 02 Jan 2024 02:05:00 +0000

Dr. Tania Dempsey interviews Dr. Eva Nagy, a breast surgeon experienced in all sorts of breast surgeries, who has developed special interest and skill in treating breast implant illness (BII), which she believes can be related to mast cell activation syndrome (MCAS). Dr. Nagy describes BII, how she removes problem implants, and the effects this can have on a wide range of symptoms.

You can learn more about Dr. Nagy and her practice here.

You can read the transcript for this episode here: http://tinyurl.com/potscast184

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E183: Nutrient Deficiencies in POTS with Nutritionist Jill Brook

Standing Up to POTS, Inc. — Tue, 26 Dec 2023 08:47:00 +0000

In this episode, Nutritionist Jill Brook reviews the research findings on nutrient deficiencies in POTS, shares some tips, and directs listeners to a great resource for finding which lab tests are recommended by our Medical Advisory Board to determine whether nutrient imbalances may be a factor for you. With Jill’s husband as this week’s interviewer, we also learn about some nutrient experiments and misadventures in her own POTS journey.

You can read the transcript for this episode here: http://tinyurl.com/potscast183

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E182: Diary with Quinton, a fitness enthusiast and Long COVID POTS patient

Standing Up to POTS, Inc. — Sat, 23 Dec 2023 11:16:00 +0000

Quinton loves to work out and research Long COVID. About two weeks after recovering from a mild COVID infection, he developed POTS and found himself nearly bedridden. He has slowly worked his way back toward being functional, although he still has significant limitations.

You can read the transcript for this episode here: http://tinyurl.com/potscast182

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E181: Venous Insufficiency in POTS with Dr. Alexis Cutchins

Standing Up to POTS, Inc. — Tue, 19 Dec 2023 08:50:00 +0000

Dr. Alexis Cutchins wrote a comprehensive review of POTS, including less-known treatments like oral contraceptives, gluten-free diets, and diosmin. Join her in thinking about promoting good blood flow that might decrease other POTS symptoms.

Dr. Cutchin's review paper on POTS:https://www.uscjournal.com/articles/narrative-review-postural-orthostatic-tachycardia-syndrome-associated-conditions-and

You can read the transcript for this episode here: https://tinyurl.com/potscast181

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E180: Diary with Emily, an urgent care medical assistant who developed POTS

Standing Up to POTS, Inc. — Tue, 12 Dec 2023 11:52:00 +0000

Emily was working as a medical assistant when she developed POTS. While she was aware of POTS, receiving a proper diagnosis still took 7 or 8 months. Many practitioners were dismissive of her symptoms, leading to a delay in treatment.

You can read the transcript for this episode here: https://tinyurl.com/potscast180

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E179: Diary with Leah, a bedbound mom who developed POTS after acute illness

Standing Up to POTS, Inc. — Sat, 09 Dec 2023 12:03:00 +0000

Leah's life changed after her family got sick in December 2019. They rebounded in a couple of weeks, but she did not. She was diagnosed with POTS quickly, but remains largely bedbound and has had to shift her perspective to use her energy wisely for her family.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E178: Psychiatric Manifestations of MCAS with Dr. Janet Settle as part of the Mast Cell Matters series

Standing Up to POTS, Inc. — Tue, 05 Dec 2023 11:01:00 +0000

Dr. Settle is a psychiatrist who believes that mast cell activation is responsible for some symptoms of anxiety, depression, bipolar disorder type II and others. She treats MCAS as a way to stabilize both mast cells and their emotional state.

You can read the transcript for this episode here: https://tinyurl.com/potscast178

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E177: Gender Matters in Perceived Burdensomeness in POTS Patients with Dr. Cathy Pederson

Standing Up to POTS, Inc. — Tue, 28 Nov 2023 11:52:00 +0000

Perceived burdensomeness, feeling like a burden to friends and family, is common in POTS patients. This feeling can be a predictor of suicidal thinking, particularly in men. We can change feelings of burdensomeness - find out how in this episode!

You can read the transcript for this episode here: https://tinyurl.com/potscast177

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Christmas Poem 2023 — Low Expectations

Standing Up to POTS, Inc. — Sun, 26 Nov 2023 16:31:45 +0000

Happiest holidays from everyone at Standing Up to POTS!

E176: POTS Diary with Hanna, a museum educator in Oregon

Standing Up to POTS, Inc. — Sat, 25 Nov 2023 11:22:00 +0000

Hanna had a 15-year journey to her POTS diagnosis after fainting episodes that started in her teens. An avid athlete, she has completed a triathlon and climbed mountains in her less symptomatic days.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E175: Graded Exercise and Pacing in POTS with Dr. Catherine Lewan

Standing Up to POTS, Inc. — Tue, 21 Nov 2023 10:14:00 +0000

Dr. Lewan, a POTS patient with a CSF leak, helps many patients learn how to listen to their bodies and slowly progress in their physical therapy exercises. An understanding practitioner can make all the difference in assisting POTSies to live their best lives!

You can read the transcript for this episode here: https://tinyurl.com/potscast175

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E174: Building Resilience with Dr. Katie Gorman Ezell and her student Katie

Standing Up to POTS, Inc. — Tue, 14 Nov 2023 09:26:00 +0000

Resilience is a nuanced topic. How do you build it? Is it always a compliment if someone says you are resilient? How can we better support our chronic illness community? Dr. Gorman-Ezell discusses it all!

You can read the transcript for this episode here: https://tinyurl.com/potscast174

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E173: POTS Diary with Kaylee, an ER nurse whose first symptom was blue legs

Standing Up to POTS, Inc. — Sat, 11 Nov 2023 11:50:00 +0000

Kaylee is an ER nurse in Phoenix and shares her own story along with tips on how to get the most out of an ER visit, like telling the triage nurse everything gets you proper care faster. She has POTS, EDS, and MCAS and is delightful!

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E172: Pain and Hypermobility with Dr. Linda Bluestein as part of the Mast Cell Matters series

Standing Up to POTS, Inc. — Tue, 07 Nov 2023 11:52:00 +0000

MCAS expert Dr. Bluestein is an anesthesiologist and pain specialist focusing on hypermobility and its associated pain syndromes. Having EDS and her own pain, she discusses the use of opioids, ketamine, pain programs in this population, and much more!

You can read the transcript for this episode here: https://tinyurl.com/potscast172

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E171: Post-Gardasil POTS Litigation with Attorney Drew Downing

Standing Up to POTS, Inc. — Tue, 31 Oct 2023 10:57:00 +0000

Attorney Drew Downing is prosecuting a case against Merck on behalf of people who were vaccine-injured by the HPV vaccine Gardasil. He is knowledgeable about POTS and the legal system, providing insights that might help some POTS patients to gain compensation for their injuries.

For more information, visit: https://www.wisnerbaum.com/prescription-drugs/gardasil-lawsuit/ is the law firm mentioned in LA. Drew's firm is: https://www.nationalvaccineinjurylawyer.com/

You can read the transcript for this episode here: https://tinyurl.com/potscast171

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E170: Dehydration, thirst, POTS and long COVID with Dr. Harriet Carroll

Standing Up to POTS, Inc. — Tue, 24 Oct 2023 12:20:00 +0000

What do POTS, ecstasy, dehydration and thirst have in common? This is a fascinating episode with Dr. Harriett Carroll, who developed POTS after the COVID vaccine. She now uses scientific expertise to help others through chronic invisible illness.

Her website: http://www.lc-sc.co.uk/

Twitter: @angryhacademic

You can read the transcript for this episode here: https://tinyurl.com/potscast170

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E169: Live Recordings from 10th Annual SUTP 5K/2K

Standing Up to POTS, Inc. — Sun, 22 Oct 2023 00:13:00 +0000

What a fabulous episode of the POTScast taped before our in-person 5K/2K. POTS patients and their loved ones spoke from their hearts to give an authentic glimpse of the ups and downs of living with a chronic illness like POTS. We are proud to serve this community, and touched by their stories.

You can read the transcript for this episode here: https://tinyurl.com/potscast169

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E168: Headache Management in POTS with Dr. Karissa Arca

Standing Up to POTS, Inc. — Tue, 17 Oct 2023 18:21:00 +0000

Dr. Karissa Arca works at the intersection of autonomic and headache disorders at Mayo Clinic Arizona. She is a wealth of information and also an advocate for patients. Join us to learn more about headache management for POTS patients.

You can read the transcript for this episode here: https://tinyurl.com/potscast168

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E167: Listener's Questions Answered with Dr. Cathy Pederson

Standing Up to POTS, Inc. — Tue, 10 Oct 2023 11:19:00 +0000

In this episode, we cover POTS demographics, where sodium goes in the body, off-label medications, why meds stop working, and much more. Thanks to all who submitted questions!

The papers discussed in this episode for medications and dosages:

Fedorowski paper 2018: https://onlinelibrary.wiley.com/doi/full/10.1111/joim.12852

Raj paper 2022: https://www.cmaj.ca/content/194/10/E378

You can read the transcript for this episode here: https://tinyurl.com/potscast167

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E166: POTS Diary with Lauren, a tennis player who developed POTS with Long COVID

Standing Up to POTS, Inc. — Sat, 07 Oct 2023 11:02:00 +0000

Lauren was a college tennis player and was always on the run when she developed COVID, Long COVID and POTS. At 23, her life is different now, and she continues to search for her new normal.

You can read the transcript for this episode here: https://tinyurl.com/potscast166

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E165: Documentary on The Triad with Dr. Leonard Weinstock and Dr. Tania Dempsey as part of the Mast Cell Matters series

Standing Up to POTS, Inc. — Tue, 03 Oct 2023 11:18:00 +0000

Dr. Weinstock and Dr. Dempsey are spearheading the creation of a documentary about MCAS, POTS, and EDS. Still in the planning stages, this documentary intends to educate medical professionals and the general public. We hope that it will help raise awareness!

Link to the LDN Research Trust:https://ldnresearchtrust.org/mast-cell-activation-syndrome-documentary

You can read the transcript for this episode here: https://tinyurl.com/potscast165

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E164: POTS after the COVID vaccine with Rachel Hellman, NP

Standing Up to POTS, Inc. — Tue, 26 Sep 2023 11:06:00 +0000

Vaccine injury can occur after COVID injections, likely triggered by the COVID spike protein. Many people develop POTS or have worsening symptoms. Unfortunately, this can transform a healthy individual into a significant chronic illness that may impact mental health.

Websites discussed in this episode: https://www.awarenessforpotsies.org and https://www.hrsa.gov/cicp

You can read the transcript for this episode here: https://tinyurl.com/potscast164

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E163: POTS Diary with Courtney, a dog lover from Texas

Standing Up to POTS, Inc. — Sat, 23 Sep 2023 11:20:00 +0000

Several in her family have had mysterious symptoms for years, but Courtney was the first to be diagnosed with POTS. She uses Chat GPT to help her write letters to practitioners and organize her medical records.

You can read the transcript for this episode here: https://tinyurl.com/potscast163

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E162: Eating Disorders in Chronic Illness with Krista Day-Gloe

Standing Up to POTS, Inc. — Tue, 19 Sep 2023 11:54:00 +0000

In some cases, chronically ill people are mislabeled as having an eating disorder when gastroparesis or MCAS is causing their symptoms. In other cases, eating disorders can develop secondary to dietary restrictions to avoid flares, including restrictive diets. This is an interesting interview that discusses both scenarios and how to know when you might need help.

Krista's website:www.healingrootswellnesscenter.com

You can read the transcript for this episode here: https://tinyurl.com/potscast162

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E161: Heart Rate Variability and Biofeedback with Rohan Dixit

Standing Up to POTS, Inc. — Tue, 12 Sep 2023 12:11:00 +0000

Heart rate variability can be a good indicator of general health. A higher heart rate variability is preferable and shows a parasympathetic state. Learn how to control heart rate variability using biofeedback to perhaps decrease symptoms.

Their website:https://getlief.com

You can read the transcript for this episode here: https://tinyurl.com/potscast161

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E160: POTS Diaries with Jolie from TN, a mental health advocate who loves to cook

Standing Up to POTS, Inc. — Sat, 09 Sep 2023 18:52:00 +0000

Jolie was quickly diagnosed after a fainting episode, largely due to the fact that her mom is a physician. While her life has changed, she looks for joy in the small things - walking her dog, making ramen, and doing isometric exercise.

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E159: Cardiac manifestations of MCAS with Dr. Andrew Maxwell as part of the Mast Cell Matters series

Standing Up to POTS, Inc. — Tue, 05 Sep 2023 11:01:00 +0000

Treating MCAS, POTS, and Long COVID can be difficult, and physicians must attack from various angles to get patients feeling better. Dr. Maxwell walks us through his thinking and how MCAS is linked to POTS and Long COVID. This episode is a must-listen for patients and practitioners alike.

You can read the transcript for this episode here: http://tinyurl.com/potscast159

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E158: POTS Diary with Mikayla from Ohio, a college student who loves to run

Standing Up to POTS, Inc. — Tue, 29 Aug 2023 11:15:00 +0000

Mikayla was quite the athlete before POTS, and still enjoys running when she can. She was diagnosed with POTS within a month of symptom onset, and is grateful for good healthcare during this journey.

You can read the transcript for this episode here: https://tinyurl.com/potscast158

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E157: POTS Diary with Jessica from North Carolina, a college student who loves to skateboard

Standing Up to POTS, Inc. — Tue, 22 Aug 2023 12:50:00 +0000

Jessica suffered from a brain tumor at birth which caused seizures. It took several years to find a surgeon to remove the tumor. In her teen years, she slowly started to develop POTS symptoms. Despite her physical struggles, she loves to skateboard and hang out with friends.

You can read the transcript for this episode here: https://tinyurl.com/potscast157

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E156: POTS Diary with Katie, an artist, cosmotologist, and proud mom of 3

Standing Up to POTS, Inc. — Tue, 15 Aug 2023 15:19:00 +0000

Katie was diagnosed with POTS last year after being diagnosed with EDS in 2014. She tries to stay cheerful, even when not feeling well, to be a good example for her children. She loves painting and cutting hair in her small Wyoming town.

You can read the transcript for this episode here: https://tinyurl.com/potscast156

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E155: POTSmom Alison from Nebraska, her daughter developed POTS after concussion and worsened after vaccination

Standing Up to POTS, Inc. — Tue, 08 Aug 2023 11:34:00 +0000

Alison's daughter was in college and a competitive horse jumper when she developed POTS. It was manageable at first, but worsened substantially after the COVID vaccine. After a variety of medications and other traditional approaches, functional medicine really helped her daughter take back her life. **Note: After release of this episode, Dr. Lovich contacted us to say that the interviewed guest had made a misstatement about his approach and he does not ask patients to go off their medications before seeing him.

You can read the transcript for this episode here: https://tinyurl.com/potscast155

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E154: POTS Diaries with Thomas, a high level jiu jitsu athlete who developed POTS at 20

Standing Up to POTS, Inc. — Tue, 01 Aug 2023 11:30:00 +0000

Thomas loves jiu jitsu, skateboarding, and surfing. He developed POTS in college, and really struggled with stamina. Slowly, he has worked both physically and mentally to get himself back in the game. Find out how in this episode!

You can read the transcript for this episode here: https://tinyurl.com/potscast154

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E153: POTS Diary with Michael who has long COVID after acute infection in 2020

Standing Up to POTS, Inc. — Tue, 25 Jul 2023 11:44:00 +0000

Michael developed Long COVID at the beginning of the pandemic in 2020. He is fortunate to be back to 75% capacity, but recognizes the changes in his lifestyle and broader life as a result of his chronic illness. Listen to his journey through Long COVID physically, mentally, and emotionally in this episode.

You can read the transcript for this episode here: https://tinyurl.com/potscast153

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E152: POTS Diary with Autumnizhurr, a content creator and gamer from California

Standing Up to POTS, Inc. — Tue, 18 Jul 2023 11:28:00 +0000

Autumnizhurr has been disabled since college, due to POTS and Wolff Parkinson White Syndrome. She has had several heart ablations to minimize her symptoms, although they caused other problems. She is a content creator, and loves gaming because in that world she is not different from others.

You can read the transcript for this episode here: https://tinyurl.com/potscast152

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E151: POTS Diary with Rebecca from New Zealand, a young nurse who had to move home to deal with symptoms

Standing Up to POTS, Inc. — Tue, 11 Jul 2023 11:50:00 +0000

Rebecca was living the dream when POTS hit - just out of college, living in a flat with friends, working as a nurse in the hospital - and forced her to move back home. Slowly, she improved after being properly diagnosed, and now has returned to nursing in a outpatient setting that requires less stamina than the hospital floor.

You can read the transcript for this episode here: https://tinyurl.com/potscast151

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E150: Diary with POTSie Lyla and POTSmom Joli

Standing Up to POTS, Inc. — Tue, 04 Jul 2023 12:00:00 +0000

This episode features a mother and daughter describing how POTS has impacted their daily life. Lyla has had medical issues for most of her life, but a bug bite seemed to really have exacerbated her symptoms. Lyla and her family work to push through the pain to live their best lives.

You can read the transcript for this episode here: https://tinyurl.com/potscast150

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E146: Research on Long COVID and POTS with Marie Claire Seeley

Standing Up to POTS, Inc. — Mon, 03 Jul 2023 10:37:00 +0000

The pandemic has provided a unique opportunity to study new onset POTS cases with a known trigger - COVID. The symptom similarities are striking between those with POTS and Long COVID in this Australian research study. A great listen!

You can read the transcript for this episode here: https://tinyurl.com/potscast146

You can their Long COVID paper here:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10307671/ and their quality of life paper here: https://link.springer.com/article/10.1007/s10286-023-00955-9

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E149: Tried all the recommendations? What to do next?

Standing Up to POTS, Inc. — Tue, 27 Jun 2023 10:18:00 +0000

Jill and Dr. Cathy Pederson discuss what to do after you have exhausted practitioner recommendations. There are lots of ideas provided, as well as tips on how to evaluate each potential new treatment. Great episode for those of us holding onto hope of symptom improvement.

You can read the transcript for this episode here: https://tinyurl.com/potscast149

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E148: POTS Diary with Nicole from Texas, news reporter who got a POTS story on the Today Show

Standing Up to POTS, Inc. — Sat, 24 Jun 2023 11:33:00 +0000

Nicole's career as a news reporter in Anchorage, AK and Raleigh, NC was cut short when she developed POTS. While her symptoms have improved since that time, she is still not able to be upright enough to return to that career. Despite that, she pitched a story on POTS to the Today Show and was aired the following week. Thanks, Nicole, for helping to raise awareness about POTS!

Today Show POTS story: https://www.today.com/video/covid-19-linked-to-crippling-heart-condition-pots-158971973791

You can read the transcript for this episode here: https://tinyurl.com/potscast148

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E147: Gynecological Issues & Pregnancy in MCAS with Dr. Shanda Dorff

Standing Up to POTS, Inc. — Tue, 20 Jun 2023 10:28:00 +0000

After issues with her own MCAS, Dr. Shanda Dorff started to investigate the impact of MCAS on people with a variety of gynecological issues like pelvic pain, heavy bleeding, etc. and during pregnancy. She has written a journal that allows patients to track the symptoms that doctors need to diagnose. Thanks, Dr. Dorff, for sharing with us!

You can read the transcript for this episode here: https://tinyurl.com/potscast147

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E145: POTS Diary with POTS Parent Leigh from Washington DC

Standing Up to POTS, Inc. — Sat, 10 Jun 2023 12:00:00 +0000

In retrospect, Leigh's daughter had symptoms since age 4, but her daughter's POTS wasn't diagnosed until she was a teenager. Leigh describes the struggle of the parent - worry, grief, questioning decisions, the helplessness that comes with navigating your child's chronic illness. It's a great episode!

You can read the transcript for this episode here: https://tinyurl.com/potscast145

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E144: Gut motility in POTS with Dr. Linda Nguyen

Standing Up to POTS, Inc. — Tue, 06 Jun 2023 12:11:00 +0000

Dr. Linda Nguyen is a gastroenterologist who sees patients with POTS, EDS, and ME/CFS. She explains gut motility issues, nausea, and how to best prepare for an appointment. Down to earth, practical explanations about complex GI problems.

You can read the transcript for this episode here: https://tinyurl.com/potscast144

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E143: POTS Diary with Victoria from New Jersey, a chemical engineering student and cyclist

Standing Up to POTS, Inc. — Sat, 03 Jun 2023 11:08:00 +0000

Victoria is a busy college student who commutes to school on the train daily. She is a competitive cyclist, likes to run, and hopes to contribute to the POTS community by helping to develop or engineer pharmaceuticals.

You can read the transcript for this episode here: https://tinyurl.com/potscast143

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E142: Unravelling Medical Complexities with Dr. Ilene Ruhoy and Dr. David Kaufman

Standing Up to POTS, Inc. — Tue, 30 May 2023 11:20:00 +0000

Drs. Ruhoy and Kaufman specialize in people that suffer from several chronic invisible illnesses. Thinking about them as a cluster and then breaking diagnosis and treatment down into pieces can help all physicians treat POTS, ME/CFS, and MCAS. They also regularly look for anatomical problems in their patients, which medication alone cannot fix.

Link to their podcast: https://www.patreon.com/posts/introduction-75440859

You can read the transcript for this episode here: https://tinyurl.com/potscast142

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E141: POTS Diary with POTSpouse Stephen

Standing Up to POTS, Inc. — Sat, 27 May 2023 11:24:00 +0000

Stephen's wife Becca developed POTS two years ago, and he shares the caregiver's perspective about POTS. As a young couple with a toddler, taking care of himself so that he can take care of his family is important. We are thrilled that he was willing to share his story and his perspective with us!

You can read the transcript for this episode here: https://tinyurl.com/potscast141

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E140: Romance and Relationships in Chronic Illness with Dr. Katie Gorman-Ezell

Standing Up to POTS, Inc. — Tue, 23 May 2023 11:05:00 +0000

Communication is important in any relationship, but is key when one partner is chronically ill. Understanding how each partner receives love is another important step in maximizing the impact for your partner while still conserving your energy. There are many practical tips for maintaining your relationship in this episode!

Want to learn your love language? Check out https://5lovelanguages.com/

You can read the transcript for this episode here: https://tinyurl.com/potscast140

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E139: Diary with Becca, proud mom from Utah who developed POTS after food poisoning

Standing Up to POTS, Inc. — Sat, 20 May 2023 23:34:00 +0000

Becca has a fascinating and most unusual story about her POTS trigger - food poisoning from 1000 year eggs while on a mission trip in Hong Kong. She is currently pregnant, and feeling extra POTSie as a result. Regardless, she is optimistic and shares her story to help others.

You can read the transcript for this episode here: https://tinyurl.com/potscast139

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E138: Advice from Both Sides of Healthcare with Dr. Melanie Hoppers

Standing Up to POTS, Inc. — Tue, 16 May 2023 11:24:00 +0000

Dr. Melanie Hoppers has a unique perspective on POTS - she learned of it when her daughter became ill and now dedicates her medical career to patients with POTS, ME/CFS, MCAS and long COVID. Join us for this fascinating healthcare system episode from the patient and physician perspective.

You can read the transcript for this episode here: https://tinyurl.com/potscast138

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E137: Update on Long COVID with Dr. Noah Greenspan

Standing Up to POTS, Inc. — Tue, 09 May 2023 10:15:00 +0000

Dr. Noah Greenspan returns to the show to update us on long COVID patients. He also discusses recovery strategies for COVID, prevention of long COVID, and oxygen therapies that seem helpful anecdotally.

You can read the transcript for this episode here: https://tinyurl.com/potscast137

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E136: POTS Diary with Hannah from South Carolina, who developed POTS after a traumatic brain injury

Standing Up to POTS, Inc. — Sat, 06 May 2023 11:29:00 +0000

Hannah fell after getting a vaccination, and this caused significant brain trauma. As a result, she developed both POTS and SIADH (syndrome of inappropriate antidiuretic hormone secretion). Despite this injury and dealing with ongoing health issues, she remains optimistic and lives each day to its fullest.

You can read the transcript for this episode here: https://tinyurl.com/potscast136

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E135: Gastrointestinal Manifestations of MCAS with Dr. Leonard Weinstock as part of the Mast Cell Matters series

Standing Up to POTS, Inc. — Tue, 02 May 2023 11:11:00 +0000

Dr. Weinstock, a gastroenterologist who is a leading expert on MCAS, discusses mast cells in the context of the GI tract. Bloating, gas, SIBO, SIFO, and IBS are all discussed in this episode. In addition, he shares how he prescribes LDN for his patients. There is a ton of great information in this episode for patients and practitioners alike!

You can read the transcript for this episode here: https://tinyurl.com/potscast135

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E134: POTS Diary with Jessie, who was diagnosed with POTS as a teen but didn't receive treatment until much later

Standing Up to POTS, Inc. — Sat, 29 Apr 2023 11:30:00 +0000

Jesse's journey through POTS was a little different. She was diagnosed fairly quickly, but it took years for her to find a doctor who gave her proper treatment. Her life is so much better today - a supportive partner, hobbies for the good and bad days, and a really optimistic attitude. Her story is inspiring!

You can read the transcript for this episode here: https://tinyurl.com/potscast134

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E133: The Foundations of Health with Dr. Gregory Plotnikoff

Standing Up to POTS, Inc. — Tue, 25 Apr 2023 11:42:00 +0000

Dr. Plotnikoff practices holistic medicine, and thinks deeply about the role of healthcare for patients. He shares his views on honoring patients, considering alternative explanations, and the foundations necessary for good health in this episode.

You can read the transcript for this episode here: https://tinyurl.com/potscast133

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E132: Katie from Ohio, who developed POTS as a teen and a more severe form after COVID

Standing Up to POTS, Inc. — Sat, 22 Apr 2023 10:09:00 +0000

Katie developed POTS as a teen, and controlled it well enough to work as a respiratory therapist. A bout with COVID kicked her POTS to an entirely new level that she struggles to control. She has a unique perspective on how the healthcare system has changed with respect to POTS over time.

You can read the transcript for this episode here: https://tinyurl.com/potscast132

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E131: Sofie from MI and her research on Emotional Intelligence

Standing Up to POTS, Inc. — Tue, 18 Apr 2023 12:10:00 +0000

Sofie is a delightful, articulate teen who is conducting a research project on the emotional intelligence of women with POTS. As you might guess, her early results show that it is off the charts! Join Sofie for an explanation about how the two might be connected.

You can read the transcript for this episode here: https://tinyurl.com/potscast131

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E130: Health Willpower Strategies with Nutritionist Jill Brook

Standing Up to POTS, Inc. — Tue, 11 Apr 2023 12:09:00 +0000

Join our own Jill Brook to think about 10 strategies to help you build your willpower for healthy eating and other healthy habits. Willpower can be learned with practice, so don't worry if it doesn't come naturally to you. Filled with humor and great information, this episode is a must listen!

You can read the transcript for this episode here: https://tinyurl.com/potscast130

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E129: MCAS Diagnostic Criteria “Consensus-2" with Dr. Lawrence Afrin as part of the Mast Cell Matters series

Standing Up to POTS, Inc. — Tue, 04 Apr 2023 11:04:00 +0000

Dr. Afrin, a world expert in all things mast cell, talks in depth about issues with the first MCAS "consensus" statement and the need for a second MCAS consensus statement so that patients can be treated even if their lab tests don't show an elevation of tryptase levels. This opens the diagnostic door to many additional patients so that they can get the treatment that they need.

You can read the transcript for this episode here: https://tinyurl.com/potscast129

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E128: Belle from Canada, saline and physiotherapy helped her walk across her graduation stage

Standing Up to POTS, Inc. — Sat, 01 Apr 2023 10:17:00 +0000

Belle first realized that something was wrong at 16. Living in Greece didn't help, but upon return to Canada she started to find some answers. Her goal? Walk across her high school graduate stage. Find out how she was able to accomplish that while battling POTS.

You can read the transcript for this episode here: https://tinyurl.com/potscast128

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E127: New Clues in Plasma Proteins in POTS Patients with Dr. Artur Fedorowski

Standing Up to POTS, Inc. — Tue, 28 Mar 2023 11:28:00 +0000

Dr. Fedorowski is one of the top POTS researchers in the world. This episode discusses plasma proteins that are different in POTS patients vs. controls. What might this mean? What is his new POTS symptom instrument? It's a great episode with a top POTS doc!

Link to the article discussed in this episode: https://www.nature.com/articles/s41598-022-24729-x

You can read the transcript for this episode here: https://tinyurl.com/potscast127

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E126: Home Infusions with Jonathan Abraham, RN BSN CCRN

Standing Up to POTS, Inc. — Tue, 21 Mar 2023 12:00:00 +0000

Jonathan shares his experience as a nurse who has been doing home infusions for patients needing IVIG. He talks about the highs and lows of his job with humor.

You can read the transcript for this episode here: https://tinyurl.com/potscast126

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E125: POTS Diary with Dr. Alisha Alls, who suffered traumatic brain injury leading to her POTS

Standing Up to POTS, Inc. — Sat, 18 Mar 2023 11:07:00 +0000

Dr. Alls suffered a traumatic brain injury, had her heart stop, and developed POTS as a teenager. She speaks eloquently about her life experiences and how they have shaped her into the person she is today. This is a must listen episode!

You can read the transcript for this episode here: https://tinyurl.com/potscast125

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E124: Pregnancy in POTS Patients with Nurse and Doctoral Candidate Kate Morgan

Standing Up to POTS, Inc. — Tue, 14 Mar 2023 11:47:00 +0000

Kate Morgan and her team just published a paper studying pregnancy in women with POTS. She found that having a baby is safe, as is taking certain medications during the pregnancy. If you have POTS and are considering getting pregnant, this is a must listen episode!

Paper being discussed:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9795856/

You can read the transcript for this episode here: https://tinyurl.com/potscast124

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E123: Argenx Clinical Trial on Post-COVID POTS

Standing Up to POTS, Inc. — Sat, 11 Mar 2023 11:36:00 +0000

Registration is currently open for a clinical trial on post-COVID POTS investigating a new medication that might deplete autoantibodies and decrease POTS symptoms.This is an exciting development for the entire POTS community, as this attention to POTS may lead to a more effective treatment for many people currently living with the disorder.

If you are at least 18, had PCR confirmed COVID and then developed POTS, then learn more about this clinical trial: https://www.alphastudyforpots.com

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Research Study on The POTScast - please participate!

Standing Up to POTS, Inc. — Thu, 09 Mar 2023 11:44:00 +0000

You can take this IRB approved survey at: https://docs.google.com/forms/d/e/1FAIpQLSfrkhyR4cRW9DEB8O4Pvbs9kWuQIlCtZ3gs31J6E55tMoquxg/viewform

Requirements: You must be 18, have a chronic illness like POTS, and listen to The POTScast or another chronic illness podcast.

Time commitment: Approximately 15 minutes

Kate Pederson and Dr. Melanie Finney are researchers at DePauw University and are interested in how people might use podcasts as a form of social support especially for people who may have invisible or chronic illnesses. The survey will ask questions regarding how and why an individual listens to podcasts, and to what extent they find them helpful. Anyone who is older than 18 years old and chronically ill is eligible to participate in this survey. The survey responses are confidential and completely voluntary. You may stop participation at any time without penalty. If you are interested, please respond to the survey by Friday, April 7, 2023. If you have any questions, you may contact katepederson_2025@depauw.edu or mkfinney@depauw.edu. Thank you for your consideration!

E122: Mast Cell Matters: Diagnosis and Treatment of MCAS with Dr. Tania Dempsey

Standing Up to POTS, Inc. — Tue, 07 Mar 2023 11:58:00 +0000

Dr. Dempsey shares her experience in both diagnosing and treating people with MCAS. She always looks for POTS and orthostatic symptoms during diagnosis, as these are often comorbid disorders. Antihistamines and other major medications commonly used to treat MCAS are also discussed.

You can read the transcript for this episode here: https://tinyurl.com/potscast122

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E121: Diary with Shelby from KY, a mom who loves to sing and have fun

Standing Up to POTS, Inc. — Sat, 04 Mar 2023 11:09:00 +0000

Despite POTS, Shelby is a vivacious mom of two small children who is still on her POTS journey. IV fluids help, as does compression and staying hydrated. Listen to this wonderful interview!

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E120: Autoimmune Diet with Nutritionist Jill Brook

Standing Up to POTS, Inc. — Tue, 28 Feb 2023 10:57:00 +0000

Jill Brook explores 10 tips to prevent the onset of autoimmune disease or decrease its symptoms through changes in your diet. These practical suggestions can be tried easily at home to see if a certain food type triggers your symptoms. A must listen!

You can read the transcript for this episode here: https://tinyurl.com/potscast120

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E119: Service Dogs with Trainer Mary McNeight & POTS patient Makenzie

Standing Up to POTS, Inc. — Tue, 21 Feb 2023 10:57:00 +0000

Many with severe POTS consider getting a service dog. What's involved? How is the dog trained? What benefits does a service dog provide? Answers to these questions and more in this episode!

You can read the transcript for this episode here: https://tinyurl.com/potscast119

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E118: From a POTS Mom's Perspective, Paula from California

Standing Up to POTS, Inc. — Sat, 18 Feb 2023 12:06:00 +0000

Paula's youngest child developed POTS as a young teen, and shares the impact that the illness has had on LJ and the entire family. A truly honest and inspirational interview!

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E117: POTS Triggers with Dr. Cathy Pederson

Standing Up to POTS, Inc. — Tue, 14 Feb 2023 12:08:00 +0000

What event triggered your POTS? Infection? Concussion? Pregnancy? Learn about these and more in this episode. The more scientists understand this physiology, hopefully the faster we will get effective treatments.

You can read the transcript for this episode here: https://tinyurl.com/potscast117

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E116: Compass Points the Way, a book about living with POTS with author Alexis Kline

Standing Up to POTS, Inc. — Sat, 11 Feb 2023 12:00:00 +0000

Alexis modified her own experience with dysautonomia in her book for middle schoolers, "Compass Points the Way." She articulates in this book what most adolescents can't - what it feels like to have POTS during a difficult developmental period. A must read for families wanting to better understand the struggles of growing up with POTS.

You can read the transcript for this episode here: https://tinyurl.com/potscast116

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E115: Mast Cell Matters: Intro to MCAS with Dr. Tania Dempsey

Standing Up to POTS, Inc. — Tue, 07 Feb 2023 12:00:00 +0000

Dr. Dempsey is helping us to launch a new series within the POTScast focusing on all things mast cells. These cells are an important part of the immune system and are found throughout the body. Learn more about what happens with these cells malfunction!

You can read the transcript for this episode here: https://tinyurl.com/potscast115

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E114: Rachel from New York, a baker whose life was changed by COVID

Standing Up to POTS, Inc. — Sat, 04 Feb 2023 12:05:00 +0000

Rachel owned a fancy bakery when she developed COVID and then POTS. In her mid 20s, her life was forever changed and her illness has forced her to apply for disability. Finding joy in the little things is a new challenge.

You can read the transcript for this episode here: https://tinyurl.com/potscast114

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E113: Academic POTS in Australia and Life as a POTS Mom with Celine Gallagher, PhD

Standing Up to POTS, Inc. — Tue, 31 Jan 2023 11:07:00 +0000

While Dr. Gallagher was professionally involved in POTS research, her daughter was diagnosed with POTS. Her background couldn't prepare her for the reality of living with POTS and frustration of not having the answers.

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

SUTP Research Survey

Standing Up to POTS, Inc. — Sat, 28 Jan 2023 15:46:00 +0000

Please help us to better understand POTS! Dr. Pederson and Standing Up to POTS are launching a new online survey that takes 15-20 minutes to complete. We are seeking adults with a POTS diagnosis for this IRB approved survey. Please answer every question, and don't overthink it! We appreciate your time and effort to help us better understand the triggers, symptom load, and quality of life for people with POTS!

Find the survey here: https://www.standinguptopots.org/POTSresearchstudy

E112: Limbic System Retraining (part 3) with Dr. Kimberly Hindman

Standing Up to POTS, Inc. — Tue, 24 Jan 2023 12:31:00 +0000

Our last episode in this study of the vagus nerve and limbic system, Dr. Hindman offers many options to try to retrain your limbic system to only allow emotional upset when you are truly in danger. For many with hyperadrenergic POTS, this is valuable information!

Please visit Dr. Hindman's website for more information: https://healingdragon.net/wordpress/index.php/news-and-information/

You can read the transcript for this episode here: https://tinyurl.com/potscast112

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E111: POTS Diary with Allison from Ohio, a nurse whose POTS got worse with concussion

Standing Up to POTS, Inc. — Sat, 21 Jan 2023 11:54:00 +0000

Meet Allison, a long-time POTSie who gives back to the community through nursing. After a concussion, she changed specialties which is a better fit for her symptoms. Using MyChart to communicate with practitioners is a great tip! Thanks, Allison!

You can read the transcript for this episode here: https://tinyurl.com/potscast111

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E110: Vagus Nerve Exercises with Dr. Kimberly Hindman (part 2)

Standing Up to POTS, Inc. — Tue, 17 Jan 2023 11:11:00 +0000

This episode is full of free, must try tips to increase parasympathetic tone that will offset the highly active sympathetic tone found in many POTS patients. Laughing, cool compress on the back of your neck, eye exercises, and much more. A must listen!

Please visit Dr. Hindman's website for more information: https://healingdragon.net/wordpress/index.php/news-and-information/

You can read the transcript for this episode here: https://tinyurl.com/potscast110

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E109: Polyvagal Theory and Trauma Release with Dr. Kimberly Hindman (part 1)

Standing Up to POTS, Inc. — Tue, 10 Jan 2023 11:16:00 +0000

Have you wondered why symptoms seem to loop over time? Why you are stuck in hypervigilance when you are safe? If so, this is the episode for you. Learn the science of the cell danger response, vagus nerve, and the limbic system in POTS flares.

Please visit Dr. Hindman's website for more information: https://healingdragon.net/wordpress/index.php/news-and-information/

You can read the transcript for this episode here: https://tinyurl.com/potscast109

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E108: Mel from Texas, a nurse living with POTS after a concussion

Standing Up to POTS, Inc. — Sat, 07 Jan 2023 11:16:00 +0000

Mel's life changed after a concussion that led to more serious POTS symptoms. A nurse, she was struggling with symptoms when she confided in a friend who had POTS. Could it be that Mel had it too?

You can read the transcript for this episode here: https://tinyurl.com/potscast108

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E107: Benefits of compounding medications for those with sensitivities with Michelle Briest, PharmD

Standing Up to POTS, Inc. — Tue, 03 Jan 2023 11:36:00 +0000

Many in the POTS and MCAS communities react to medications. Perhaps using a compounding pharmacy that can replace inactive ingredients with alternatives that are less likely to cause a reaction is a good option!

You can read the transcript for this episode here: https://tinyurl.com/potscast107

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E106: All Things Pediatric POTS with Dr. Jeff Boris and Dr. Jeff Moak

Standing Up to POTS, Inc. — Tue, 27 Dec 2022 11:52:00 +0000

Dr. Boris and Dr. Moak, true POTS experts, take us through their new review article Pediatric POTS: Where We Stand and discuss developmental issues for children and teens, treatment options including ivabradine, IV saline, abdominal binders and much more as they try to get kids back to school and their lives. Join us for this informative interview!

Article discussed:https://www.researchgate.net/profile/Jeffrey-Boris/publication/361670227_Pediatric_Postural_Orthostatic_Tachycardia_Syndrome_Where_We_Stand/links/62bf0c2d3d26d6389e899e2e/Pediatric-Postural-Orthostatic-Tachycardia-Syndrome-Where-We-Stand.pdf?origin=publication_detail

You can read the transcript for this episode here: https://tinyurl.com/potscast106

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E105: Karen from Missouri, a nurse and mom with POTS symptoms from a young age

Standing Up to POTS, Inc. — Sat, 24 Dec 2022 11:50:00 +0000

Karen has had POTS symptoms for as long as she can remember, and started passing out at age 15. Unfortunately, it took many doctors and 17 years to get diagnosed. She shares her experience with POTS and pregnancy, how her bedside manner has changed, and much more. Join us for this conversation!

You can read the transcript for this episode here: https://tinyurl.com/potscast105

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E104: Understanding myalgic encephomyelitis/chronic fatigue syndrome through research and personal experience with Dr. Leonard Jason

Standing Up to POTS, Inc. — Tue, 20 Dec 2022 12:11:00 +0000

Dr. Leonard Jason, world renowned father of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) research, shares his very personal story with this illness along with what he has learned in his 30+ years of ME/CFS research. The energy envelope, yo-yo effect, prospective studies looking for biological markers of vulnerability, long COVID and so much more is discussed. Many in the POTS community also suffer from ME/CFS. Do you recognize yourself in this episode?

Learn more about Dr. Jason's work.

You can read the transcript for this episode here: https://tinyurl.com/potscast104

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E103: Handling Holiday Stress with Dr. Katie Gorman-Ezell

Standing Up to POTS, Inc. — Tue, 13 Dec 2022 11:29:00 +0000

The holidays can be stressful, especially when living with an unpredictable illness like POTS. Learn how to ask for what you need and make compromises as you form new holiday traditions!

You can dread the transcript for this episode here: https://tinyurl.com/potscast103

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E102: Lacy from Alabama suffers from gastroparesis, pain, and POTS

Standing Up to POTS, Inc. — Sat, 10 Dec 2022 12:01:00 +0000

Lacy is a high school student who struggles to remember a time she wasn't sick. Gastroparesis is a big issue for her and she often uses a cane for stability. She's quite upbeat, though, and ready for whatever life throws her next.

You can read the transcript for this episode here: https://tinyurl.com/potscast102

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E101: Pelvic Congestion Syndrome and POTS with Dr. Steven Smith

Standing Up to POTS, Inc. — Tue, 06 Dec 2022 12:04:00 +0000

Dr. Smith is a retired interventional radiologist who made a discovery in his career treating women with pelvic congestion syndrome (PCS): His patients with comorbid POTS often said the PCS treatment helped their POTS. This led Dr. Smith and his colleagues to hypothesize and research some connections between PCS and POTS, which may lead to new treatments for this subset of POTS patients. If you have chronic pelvic pain and POTS, then this episode is for you.

You can read the transcript for this episode here: https://tinyurl.com/potscast101

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Christmas Poem 2022 — Why Santa donates to Standing Up to POTS

Standing Up to POTS, Inc. — Sat, 03 Dec 2022 12:00:00 +0000

You can read the transcript for this poem here: https://tinyurl.com/potscastholiday22

E100: POTS Research both Past and Future with Dr. Satish Raj

Standing Up to POTS, Inc. — Tue, 29 Nov 2022 11:32:00 +0000

Dr. Raj is a world renowned POTS physician and researcher who spoke with us about three big POTS research topics: blood volume, autoimmunity, and the norepinephrine transporter. Having done much of this research himself, he paints a beautiful picture of where POTS research has been and where it is going.

You can read the transcript for this episode here: https://tinyurl.com/potscast100

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E99: Zoe from Utah, high school senior and aerialist

Standing Up to POTS, Inc. — Tue, 22 Nov 2022 12:35:00 +0000

Zoe was diagnosed with POTS in 8th grade when she started having dizzy spells and shortness of breath. She has adjusted well, and loves to fly 30 feet above the ground doing ribbon aerial work. Great episode!

You can read the transcript for this episode here: https://tinyurl.com/potscast99

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E98: Sensory Input Shaping Autonomics in Children with Dr. Kevin Lasko

Standing Up to POTS, Inc. — Tue, 15 Nov 2022 11:13:00 +0000

What is really causing POTS? Is it a problem in the heart? The brain? The gut? Dr. Lasko believes that lower parts of the brain may not be functioning properly in many with POTS, and that correcting this issue early in life, when possible, could help children avoid developing significant symptoms.

You can read the transcript for this episode here: https://tinyurl.com/potscast98

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E97: Mackenzie from British Columbia, Canada

Standing Up to POTS, Inc. — Tue, 08 Nov 2022 11:45:00 +0000

Like many POTSies, Mackenzie was a teenager leading an active life when she became ill. It took her 2.5 years and a number of ludicrous diagnoses to finally arrive at POTS. At 20, she is now adjusting to life with chronic illness and surrounding herself with people who support her unconditionally.

You can read the transcript for this episode here: https://tinyurl.com/potscast97

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E96: Jackie from Vermont, working mom with great symptom management tips

Standing Up to POTS, Inc. — Sat, 05 Nov 2022 12:22:00 +0000

Jackie developed POTS and other chronic illnesses after surgery on her foot. She delves deeply into her interests, including ways to manage her symptoms. Her optimism is inspiring as she share things that have helped her along the way. Join us for this delightful and inspiring episode!

You can read the transcript for this episode here: https://tinyurl.com/potscast96

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E95: Common POTS Medications with Clinical Pharmacist Dr. Jenna Houk

Standing Up to POTS, Inc. — Tue, 01 Nov 2022 12:38:00 +0000

Many POTSies take multiple medications. Join us for a discussion of beta blockers, midodrine, ivabridine, and fludrocortisone - how they work and possible side effects.

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E94: The Depressing Truth about Depression Scales with Dr. Cathy Pederson

Standing Up to POTS, Inc. — Tue, 25 Oct 2022 12:23:00 +0000

Dr. Pederson just published a new study looking at assessing depression in people with chronic invisible illness. The results are both depressing and enlightening. We need our healthcare practitioners and researchers to understand the contamination from many of these scales with somatic (bodily) symptoms that overinflates depression scores for many in our communty.

The paper discussed in the episode: The Depressing Truth About Depression Scales for People with Chronic Invisible Illness

Best depression scale for chronic illness (in 2022): Center for Epidemiologic Studies Depression Scale

You can read the transcript for this episode here: https://tinyurl.com/potscast94

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

9th Annual Standing Up to POTS 5K/2K: Interviews with POTSies and their supporters

Standing Up to POTS, Inc. — Sat, 22 Oct 2022 23:33:00 +0000

Members of the POTS community gathered in Springfield, Ohio on October 22, 2022 for the 9th Annual Standing Up To POTS 5K/2K, presented by Normalyte and Thrivent. The weather was gorgeous, the POTS community was out in force, and lots of connections were made. We raised more than $36,000 associated with this event that will go toward the Standing Up to POTS Research Fund.

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E93: Viral epidemics are related to myalgic encephalomyelitis (ME) and POTS with Dr. Byron Hyde

Standing Up to POTS, Inc. — Tue, 18 Oct 2022 11:30:00 +0000

What does polio have to do with myalgic encephalomyetlitis (ME) and POTS? You'll have to listen to this episode with Dr. Hyde, a top ME expert who has treated ME patients since the 1980s. He also discusses SPECT scans and how they can help to get disability payments for some patients.

Nightingale Foundation: https://nightingale.ca/

Book Downloads: https://nightingalepress.ca/collections/all

You can read the transcript for this episode here: https://tinyurl.com/potscast93

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E92: Jenna from Oregon, loves children but struggles with her stamina to work

Standing Up to POTS, Inc. — Sat, 15 Oct 2022 11:39:00 +0000

Jenna is married and trying to live her best life despite POTS. Symptoms began early, but didn't stop her from playing college volleyball. Napping in odd places is common as she battles severe fatigue.

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E91: The Importance of Vitamin D for those with Autoimmune Disorders with Dr. Eduardo Beltran

Standing Up to POTS, Inc. — Tue, 11 Oct 2022 12:15:00 +0000

Dr. Beltran explains physiological dosing of vitamin D, leaky gut syndrome as it relates to gluten, and much more in this episode of The POTScast. A real leader in high dose vitamin D therapy, Dr. Beltran explains the many and varied functions of this hormone.

Dr. Beltran's book can be found here.

You can read the transcript for this episode here: https://tinyurl.com/potscast91

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E90: POTS, Small Fiber Neuropathy, and Mystery Symptoms with Dr. David Saperstein

Standing Up to POTS, Inc. — Tue, 04 Oct 2022 12:03:00 +0000

Many people with POTS also have small fiber neuropathy - the small nerves in their legs are decreased in number and activity. Dr. Saperstein talks about that in the context of COVID and answers several listener questions about migraine headaches, tinnitus, brain fog and more. Join us for this informative chat!

You can read the transcript for this episode here: https://tinyurl.com/potscast90

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E89: Anna from New York City, college dancer and photographer

Standing Up to POTS, Inc. — Sat, 01 Oct 2022 12:00:00 +0000

Anna grew up dancing and wanted to be a pro. After a bout with mono, her legs started giving out randomly. She was diagnosed with POTS and needed to find a new dream: photography. Anna is both inspirational and insightful as she talks about how POTS has impacted her life.

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E88: Three Types of POTS with Dr. Cathy Pederson

Standing Up to POTS, Inc. — Tue, 27 Sep 2022 12:32:00 +0000

Many like to think about POTS as having three subtypes - hyperadrenergic, neuropathic, and hypovolemic. We discuss these subtypes, their causes, associated symptoms, and treatments that might help. What subtype of POTS do you think you have?

You can read the transcript for this episode here: https://tinyurl.com/potscast88

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E87: POTS following Long COVID and COVID vaccine injury with Dr. Sujana Reddy

Standing Up to POTS, Inc. — Tue, 20 Sep 2022 12:02:00 +0000

Dr. Reddy is a COVID long-hauler herself. She developed POTS, and symptoms worsened each time she caught COVID. She struggled for a diagnosis, and now is a champion in the clinic and in advocacy for people who develop POTS after COVID infection or vaccine injury. She walks through the theory of how this occurs and a range of treatment options that might help with equal parts compassion and conviction.

Dr. Reddy's article discussed in this episode: https://www.cureus.com/articles/56242

You can read the transcript for this episode here: https://tinyurl.com/potscast87

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E86: Jamie Lynn from Kentucky

Standing Up to POTS, Inc. — Tue, 13 Sep 2022 12:05:00 +0000

It took Jamie 12 years to be diagnosed with POTS after the onset of symptoms. She had "remissions" from symptoms in the early years that allowed her to become a firefighter and EMT, positions she can no longer manage. She is starting a new medication, and we hope that it helps her to feel better!

You can read the transcript for this episode here: https://tinyurl.com/potscast86

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E85: Dealing with Medical Trauma with Dr. Katie Gorman-Ezell

Standing Up to POTS, Inc. — Tue, 06 Sep 2022 10:24:00 +0000

Many people in the POTS community have experienced medical trauma as a patient, caregiver, or sibling. Gaslighting, invasive procedures, and the chronicity of the illness can all contribute. How can you protect yourself from this trauma or deal with it if trauma occurs? Join Dr. Gorman-Ezell in this episode to find out!

You can read the transcript for this episode here: https://tinyurl.com/potscast85

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E84: Stephanie w 3 concussions and POTS from MD

Standing Up to POTS, Inc. — Sat, 03 Sep 2022 12:28:00 +0000

Stephanie was a competitive volleyball player in high school when several concussions sidelined her. Over time, POTS symptoms began to appear and the battle to get diagnosed began. It took several years to find a cardiologist who believed her, but she is back on track to live her dreams.

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E83: Maddie and her therapy dog from Michigan

Standing Up to POTS, Inc. — Tue, 30 Aug 2022 12:53:00 +0000

Maddie faints a lot as part of her POTS, which she developed around age 16. She describes getting and training her therapy dog and the deep pressure that helps when she blacks out. Maddie has a great attitude about living with her chronic illness.

You can read the transcript for this episode here: https://tinyurl.com/potscast83

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E82: Are Choline Transporters Implicated in Some POTS Patients? with Dr. Laila Schenkel

Standing Up to POTS, Inc. — Tue, 23 Aug 2022 12:10:00 +0000

Dr. Laila Schenkel is a molecular geneticist who specializes in choline transporters. Comparing this transporter in the skin of one POTS patient with controls, she found that these transporters are fewer and less functional in this POTS patient. Basic science at its best!

You can read the transcript for this episode here: https://tinyurl.com/potscast82

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E81: Katherine from Pennsylvania

Standing Up to POTS, Inc. — Sat, 20 Aug 2022 10:32:00 +0000

Katherine developed POTS secondary to Lyme disease after a tick bite, causing her to complete her senior year of high school online. When at her sickest, she re-connected with the man she would marry. Find out how by listening to this wonderful episode!

Learn more about health coaches at https://www.standinguptopots.org/healthcoach

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E80: Mary Katherine Stratton from Mississippi

Standing Up to POTS, Inc. — Tue, 16 Aug 2022 12:19:00 +0000

Mary Katherine has developed POTS twice - first as a teen and again after COVID. Her PICC line to get intravenous fluids made lifting heavy objects impossible, especially for a cattle breeder who loves to show cows. Join us for this unique episode!

You can read the transcript for this episode here: https://tinyurl.com/potscast80

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E79: Employment Resources for the Chronically Ill with Chronically Capable CEO and co-Founder Hannah Olson

Standing Up to POTS, Inc. — Tue, 09 Aug 2022 11:16:00 +0000

Hannah has Lyme and POTS, and after working for others for a few years founded her own company - Chronically Capable. Featured by the Wall Street Journal and Forbes magazine, her company matches chronically ill people with potential employers with the need for accommodations front and center. Join us for this wonderful interview! Her website is wearecapable.org.

You can read the transcript for this episode here: https://tinyurl.com/potscast79

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E78: Claire from Australia

Standing Up to POTS, Inc. — Sat, 06 Aug 2022 12:12:00 +0000

Claire developed POTS after a back injury. Work as a paramedic was triggering, and she found that she had to dig herself out of a dark hole. Volunteering for The POTS Foundation in Australia was part of growing into her new reality.

Any Aussies out there looking to connect? Check out www.potsfoundation.org.au

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E77: Abby from New York

Standing Up to POTS, Inc. — Tue, 02 Aug 2022 12:08:00 +0000

Abby is a college sophomore with a love of music and crocheting. Like many, she put the pieces together to find her diagnosis. Abby is resilient despite the obstacles - finding friends who are supportive and taking care of herself. This is an inspiration episode of the POTS diaries!

You can read the transcript for this episode here: https://tinyurl.com/potscast77

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E76: Pediatric POTS and Related Disorders with Dr. Jeffrey Boris

Standing Up to POTS, Inc. — Tue, 26 Jul 2022 12:15:00 +0000

Dr. Boris is one of the top pediatric POTS docs in the world, and we were fortunate to have him share his thoughts on getting these highly achieving kids back to living their life. He covers a lot of ground - misdiagnosis of POTS as anxiety/depression, impact of POTS on development, mitochondrial disorders and so much more.

Want to learn more about Dr. Boris? Check him out at https://www.jeffreyborismd.com/

You can read the transcript for this episode here: https://tinyurl.com/potscast76

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E75: Madison from Illinois

Standing Up to POTS, Inc. — Tue, 19 Jul 2022 12:24:00 +0000

Madison was a competitive rock climber before she developed Lyme disease and POTS. She couldn't walk for 7 months, but has climbed her way back to working part time in a school and practicing meditation and yoga. Join us for this deep and personal conversation!

You can read the transcript for this epiosde here: https://tinyurl.com/potscast75

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E74: Jolene from MN

Standing Up to POTS, Inc. — Sat, 16 Jul 2022 12:34:00 +0000

Jolene was married and enjoying an adventurous life in Florida when POTS struck. Like many, she was misdiagnosed and returned home to MN to decrease her need to fly. Now a meditation and mindfulness teacher, she has found a new adventure.

You can read the transcript for this episode here: https://tinyurl.com/potscast74

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E73: Accommodations for School, College, and the Workforce - 504 and IEP plans with Dr. Sally Brannan and Dr. Cathy Pederson

Standing Up to POTS, Inc. — Tue, 12 Jul 2022 11:24:00 +0000

Many chronically ill students require assistance to level to playing field at school. 504 plans and Individualized Education Plans are state mandated and can do just that. What's the best option for your situation? Listen to this episode with Dr. Pederson and Dr. Brannan to find out!

School and College Accommodations: https://www.standinguptopots.org/livingwithpots/school

Letters for School Personnel: https://www.standinguptopots.org/advocacy/awareness

You can read the transcript for this episode here: https://tinyurl.com/potscast73

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E72: Rita from Massachusetts

Standing Up to POTS, Inc. — Tue, 05 Jul 2022 11:15:00 +0000

Rita was an actress/dancer when POTS crept in and changed her life. She could no longer continue the physicality, and channeled her creative energy into writing. She credits the CHOP exercise protocol with improving her quality of life.

You can find the CHOP exercise protocol at the bottom of this page, and her articles on POTS.

You can read the transcript for this episode here: https://tinyurl.com/2fx6nx9v

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E71: Diane from Washington

Standing Up to POTS, Inc. — Sat, 02 Jul 2022 12:01:00 +0000

Diane is a retired dietician who shares her journey with POTS as well as her knowledge of the MTHFR gene mutations and nutritional changes to support that. She move to eastern Washington to decrease her symptoms, and advocates self care.

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E70: Autoimmune Dysautonomia and more with Dr. Jill Schofield

Standing Up to POTS, Inc. — Tue, 28 Jun 2022 12:29:00 +0000

Dr. Jill Schofield is a leader in the treatment and research of POTS, mast cell activation syndrome, and antiphospholipid syndome. Join us to learn more about these, IVIG, and lifestyle changes that improve quality of life!

You can read the transcript for this episode here: https://tinyurl.com/5n82f3pf

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E69: Rhonda from Utah

Standing Up to POTS, Inc. — Sat, 25 Jun 2022 12:00:00 +0000

Join Rhonda for an exploration of healthcare from both sides - as a physician assistant and POTS patient. Her medical background and connections helped her to navigate the system, but the effects of POTS are equally devastating.

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

E68: Becky from West Virginia

Standing Up to POTS, Inc. — Tue, 21 Jun 2022 12:52:00 +0000

Becky developed POTS a few years ago after the birth of her son. Following several surgeries for endometriosis, her symptom load increased and she was diagnosed with POTS. Follow her journey through work, family, and POTS in this episode!

You can read the transcript for this episode here: https://tinyurl.com/2p9awbfz

Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you!

If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!