Castos https://talking-zebras.castos.com TALKING ZEBRAS is a new podcast featuring conversations with “zebras” across the rare and undiagnosed world—doctors, researchers, advocates, industry, funders and especially patients and their families, illuminating key developments and trends. Topics will include new medical developments, policy discussions and spotlights on patient stories. Our host, Stephanie Tomlinson, is a longtime member of the community who began as a rare parent but who has emerged as a thoughtful and influential voice in the field. She is a co-chair of the Undiagnosed Disease Network Foundation’s PEER (Participant Engagement and Empowerment Resource) and a highly sought-after participant and speaker at gatherings of advocates and thought leaders in the rare world. Want to know more? Interested in being a guest? TalkingZebras@sweaterveststrategies.com Fri, 02 May 2025 16:50:08 +0000 en © 2025 https://episodes.castos.com/6814f4edcfe220-40456540/images/Talking-Zebras.png https://talking-zebras.castos.com TALKING ZEBRAS is a new podcast featuring conversations with “zebras” across the rare and undiagnosed world—doctors, researchers, advocates, industry, funders and especially patients and their families, illuminating key developments and trends. Topics will include new medical developments, policy discussions and spotlights on patient stories. Our host, Stephanie Tomlinson, is a longtime member of the community who began as a rare parent but who has emerged as a thoughtful and influential voice in the field. She is a co-chair of the Undiagnosed Disease Network Foundation’s PEER (Participant Engagement and Empowerment Resource) and a highly sought-after participant and speaker at gatherings of advocates and thought leaders in the rare world. Want to know more? Interested in being a guest? TalkingZebras@sweaterveststrategies.com Doug Chapin episodic TALKING ZEBRAS is a new podcast featuring conversations with “zebras” across the rare and undiagnosed world—doctors, researchers, advocates, industry, funders and especially patients and their families, illuminating key developments and trends. Topics will include new medical developments, policy discussions and spotlights on patient stories. Our host, Stephanie Tomlinson, is a longtime member of the community who began as a rare parent but who has emerged as a thoughtful and influential voice in the field. She is a co-chair of the Undiagnosed Disease Network Foundation’s PEER (Participant Engagement and Empowerment Resource) and a highly sought-after participant and speaker at gatherings of advocates and thought leaders in the rare world. Want to know more? Interested in being a guest? TalkingZebras@sweaterveststrategies.com Doug Chapin doug@sweaterveststrategies.com false https://feeds.castos.com/r39q3 yes Fri, 02 May 2025 16:50:08 +0000 Doug Chapin https://permalink.castos.com/podcast/64852/episode/2023857 https://talking-zebras.castos.com/episodes/talking-zebras-test-may-2 Host Stephanie Tomlinson introduces her new podcast, Talking Zebras, and offers some insight into her background as a rare patient and advocate. 

To hear more from the UMN Rare Disease Day she mentions, visit https://youtu.be/UFs8gWIyb-E.

]]> false Host Stephanie Tomlinson introduces her new podcast, Talking Zebras, and offers some insight into her background as a rare patient and advocate. 

To hear more from the UMN Rare Disease Day she mentions, visit https://youtu.be/UFs8gWIyb-E.

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